Jill
@pumpkinspiceisa.bsky.social
⭐️ widow, suburban mother of two wonderful kids who happen to have a terminal neurodegenerative disorder called Juvenile Huntingtons disease 💜💙 🌊🍑 🏳️🌈 #CUREHD #huntington #disease
Reposted by Jill
These name changes aren’t cheap.
All signage, letterhead, IDs, everything has to change.
Someone ask Musk, is this waste or financial abuse?
Like with Bragg, pretending it’s being renamed for a different Benning is definitely fraud.
All signage, letterhead, IDs, everything has to change.
Someone ask Musk, is this waste or financial abuse?
Like with Bragg, pretending it’s being renamed for a different Benning is definitely fraud.
March 3, 2025 at 11:56 PM
These name changes aren’t cheap.
All signage, letterhead, IDs, everything has to change.
Someone ask Musk, is this waste or financial abuse?
Like with Bragg, pretending it’s being renamed for a different Benning is definitely fraud.
All signage, letterhead, IDs, everything has to change.
Someone ask Musk, is this waste or financial abuse?
Like with Bragg, pretending it’s being renamed for a different Benning is definitely fraud.
Yet here we are watching billionaires rip apart our country, leaving ppl to die. I feel like this is the beginnings of a new era of eugenics in the US and no one gives a damn. 😭
February 11, 2025 at 2:05 AM
Yet here we are watching billionaires rip apart our country, leaving ppl to die. I feel like this is the beginnings of a new era of eugenics in the US and no one gives a damn. 😭
I had no idea when I brought the two most beautiful innocent babies into this world that one day they would be diagnosed with a terminal disease. I never thought that a large segment society would rather see us parish than to see one cent of their taxes go to making life just a little more tolerable
February 11, 2025 at 2:05 AM
I had no idea when I brought the two most beautiful innocent babies into this world that one day they would be diagnosed with a terminal disease. I never thought that a large segment society would rather see us parish than to see one cent of their taxes go to making life just a little more tolerable
their father 14yrs ago. I’ve done everything they say to do. I pulled myself up by my bootstraps. I never gave up, I worked my ass off for companies that didn’t hesitate to fire me the moment they felt I was putting my kids above my work responsibilities. I never expected to be in this position.
February 11, 2025 at 2:05 AM
their father 14yrs ago. I’ve done everything they say to do. I pulled myself up by my bootstraps. I never gave up, I worked my ass off for companies that didn’t hesitate to fire me the moment they felt I was putting my kids above my work responsibilities. I never expected to be in this position.
I have exhausted all of my savings taking care of my disabled adult children. I have maxed out my credit cards, I have begged and borrowed to make sure my children have all the care and medications ect needed. I’m about to lose my home and be homeless if something doesn’t give. I’ve already lost…
February 11, 2025 at 2:05 AM
I have exhausted all of my savings taking care of my disabled adult children. I have maxed out my credit cards, I have begged and borrowed to make sure my children have all the care and medications ect needed. I’m about to lose my home and be homeless if something doesn’t give. I’ve already lost…
Our case worker was wfh. Our states ss staff is so low that they used employees from other states who could work remote. Now that they can no longer wfh it has created an even bigger problem & left god knows how many Americans suffering without healthcare, without financial help, without resources.
February 11, 2025 at 2:05 AM
Our case worker was wfh. Our states ss staff is so low that they used employees from other states who could work remote. Now that they can no longer wfh it has created an even bigger problem & left god knows how many Americans suffering without healthcare, without financial help, without resources.
I don’t know what else to do. I was prepared to appeal in case of denial for social security but this… this I have no defense, no action, nothing I can possibly do. Everything is on freeze, social security is already short staffed and now they have fired and let go more social workers.
February 11, 2025 at 2:05 AM
I don’t know what else to do. I was prepared to appeal in case of denial for social security but this… this I have no defense, no action, nothing I can possibly do. Everything is on freeze, social security is already short staffed and now they have fired and let go more social workers.
Just how much Trump has crippled every day Americans. I’ve been battling our patch work, shoddy healthcare system for yrs & I’m truly at my breaking point. I have two children that only have maybe 10yrs of life left & Trump is ensuring that it will be the most cruel years for me and my children.
February 11, 2025 at 2:05 AM
Just how much Trump has crippled every day Americans. I’ve been battling our patch work, shoddy healthcare system for yrs & I’m truly at my breaking point. I have two children that only have maybe 10yrs of life left & Trump is ensuring that it will be the most cruel years for me and my children.
that cost thousands a month. The med Austedo, a prescription medication used to treat involuntary muscle movements caused by Huntington's disease and tardive dyskinesia is roughly $15k a month and Trump rescinded Bidens EO that allowed Medicaid to cover the cost. People have no idea …
February 11, 2025 at 2:05 AM
that cost thousands a month. The med Austedo, a prescription medication used to treat involuntary muscle movements caused by Huntington's disease and tardive dyskinesia is roughly $15k a month and Trump rescinded Bidens EO that allowed Medicaid to cover the cost. People have no idea …
Do what is called a preemptive approval due to the overwhelming evidence. All I had to do was fill out a few more documents. Fast forward to Feb. suddenly our case is dead in water. The case worker assigned to our case gone. Can’t reach any one at social security. My son is on medications …
February 11, 2025 at 2:05 AM
Do what is called a preemptive approval due to the overwhelming evidence. All I had to do was fill out a few more documents. Fast forward to Feb. suddenly our case is dead in water. The case worker assigned to our case gone. Can’t reach any one at social security. My son is on medications …
compassionate allowance, which is supposed to ensure your disability application is reviewed ahead of others. Well Jan 13th I finally got the call. A SS worker was assigned to our case and had reviewed all of the material that i painstakingly gathered for my son’s case. I was told that they would …
February 11, 2025 at 2:05 AM
compassionate allowance, which is supposed to ensure your disability application is reviewed ahead of others. Well Jan 13th I finally got the call. A SS worker was assigned to our case and had reviewed all of the material that i painstakingly gathered for my son’s case. I was told that they would …