Mel Brooke
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psahq.bsky.social
Mel Brooke
@psahq.bsky.social
97 followers 200 following 30 posts
All my links: https://linktr.ee/PsA_HQ
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psahq.bsky.social
New post just dropped reflecting on why pre-award PPI is expected everywhere yet still so hard to do meaningfully!
#PPI #LivedExperience #ResearchInvolvement #PatientPartners #PreAwardPPI #CoProduction #HealthResearch #PRPNetTT
November 26, 2025 at 4:18 PM
psahq.bsky.social
Psoriatic disease isn’t “just skin.” It’s systemic — affecting heart, mind, and more. This #WorldPsoriasisDay let’s push for joined-up care and compassion across every “ology.” New blog on my substack - 🔗Link in bio

#Psoriasisawareness #PsoriaticArthritis #ChronicIllness #InvisibleIllness
October 29, 2025 at 1:38 PM
psahq.bsky.social
Looking forward to the 10th Brit-PACT annual hybrid conference on Friday! Interested researchers, HCPS and patients can register via the email at info@britpact.org 🖐️
#psoriaticdisease #rheumatology #patientpartners
October 8, 2025 at 2:10 PM
psahq.bsky.social
We’ve got lived experience, research insight, and lots of ideas. What we need is a place to share them. That’s what PRPNetTT is for - join us on prpnettt.substack.com/p/welcome-to...
August 19, 2025 at 8:05 AM
psahq.bsky.social
I just revisited an old fav topic of discussion in our peer group in my latest blog I’m sharing the fresh insights, practical tips, and a free flare-up diary download to help you keep track🖐🏻
psazzgroup.wixsite.com/psa-hq/blog
 
 #InflammatoryArthritis #FlareUps #ArthritisAwareness #invisibleillness
August 8, 2025 at 12:03 PM
psahq.bsky.social
🔍 What do PRPs really get out of being involved in research?
Quite a lot (but not always everything they need) Lets talk about the gaps!

🔗New blog post link in bio🖐🏻

#PPI #PatientInvolvement #PRPs #RheumatologyResearch #PatientVoices #PatientExperience #HealthResearch #CoProduction #HealthEquity
July 9, 2025 at 3:56 PM
psahq.bsky.social
🎉 Something exciting is on the horizon for Patient Research Partners in rheumatology! A new national, peer-led initiative.
This isn’t another top-down group. We’re experienced. We’re collaborative.

Stay tuned – expressions of interest open soon🖐🏻

#PRPNetTT #rheumatology #patientresearchpartners
June 5, 2025 at 3:37 PM
psahq.bsky.social
Time for another PsA HQ blog and this one reflects the importance of payment while acknowledging that there could be other meaningful forms of recognition for involvement. I’d love to know what you think? 🖐🏻

#patientinvolvement #patientvoice #researchanddevelopment #patientinsights #rheumatology
April 30, 2025 at 1:34 PM
psahq.bsky.social
Hi Rheum friends - sorry I can't bring you the #patientvoice from #BSR25 this year. There has been registration complications so I do not have remote access as in previous years. It's a real shame because our insights and voice matter too🖐️ #rheumatology #researchpartners
April 29, 2025 at 11:57 AM
psahq.bsky.social
Sharing this #psoriasis patient involvement call from a Dermatology registrar, RUH Bath 🖐🏻

#cityofbath #PPIE #dermatology #psoriasis #research
March 25, 2025 at 6:13 PM
psahq.bsky.social
Great time earlier today talking to my latest fantastic PsA HQ podcast guest Jana J (episode will be coming soon!)

Could you be my next guest? Let’s talk - ping me a message here or check the links in my bio for other ways to get in touch 🖐🏻

#rheumatology #research #podcastshow #patientvoice
March 12, 2025 at 4:33 PM
psahq.bsky.social
Suns out, it’s garden time but I’m struggling with what I can actually do. Even the gloves won’t go on. I don’t want to be defeated. The point of telling you this is awareness of everyday choices that arthritis steals from people 🪴🖐🏻
#arthritisawareness #livingwithchronicillness #psoriaticdisease
March 9, 2025 at 5:25 PM
psahq.bsky.social
The answer to yesterday’s quiz was ‘A’ (there were more women than men responders to the Patient Research Partner survey!) I have popped some ponderings on this imbalance on a new blog page over on the PsA HQ website. The link in bio- please check it out🖐🏻 #patientresearchpartners
#gendergap
March 7, 2025 at 12:22 PM
psahq.bsky.social
Some mid-week fun and a peek into the early UK PRP survey results. Can you guess the answer? Comment below ….. (the actual answer will be added later) 👇🏻

#patientresearchpartners #researchresults #rheumatology #patientexperience #patientinvolvement #ppie #arthritisawareness #patientvoice
March 6, 2025 at 8:03 PM
psahq.bsky.social
Tune in to listen along to a new PsA HQ podcast episode as I catch up with PRP friend & psoriatic disease advocate Russ Cowper🖐🏻
🎧Links in bio🔗🤘🏻
#researchpodcast #patientinvolvement #livedexperience #rheumatology #psoriaticarthritis
February 21, 2025 at 8:18 PM
psahq.bsky.social
New year update, news and a little bit of fun with this podcast episode - out now, link below :

psazzgroup.wixsite.com/psa-hq/podcast 🖐
January 20, 2025 at 4:10 PM
psahq.bsky.social
Just in case you are not signed up for the PsA HQ emails:
We all walk this path, it's not easy. I am incredibly grateful for the support and engagement of our PsA HQ community. May the festive holiday bring you peace, less pain, joy and warmth 🖐
#psoriaticdisease #awareness #patients #rheumatology
December 24, 2024 at 12:19 PM
psahq.bsky.social
It was such a pleasure to have Dr Jo Daniels as guest for this
BIRD podcast! Jo brings incredible expertise to the table, weaving her vast experience into impactful research. If you’re dealing with #Raynaud’s this winter, this is an episode you won’t want to miss! 🖐️❄️
December 18, 2024 at 11:25 AM
psahq.bsky.social
A quick post to say thanks to everyone who’s been listening in to my #podcasts on PsA HQ channel, it really helps to inspire me & makes it worthwhile. 🎤More planned so please stay tuned and follow 🖐🏻🎧All links in my bio #rheumatology #patientperspective #patientresearchpartners
December 17, 2024 at 10:46 AM
psahq.bsky.social
This morning Skin@Bath Dr LauraCoates has been
talking about HPOS study that aims to discover if it is possible to prevent #psoriaticarthritis in people with #psoriasis 🖐️ 🎧There is a podcast about HPOS here👉 tinyurl.com/d6d7wyzn
December 13, 2024 at 11:04 AM
psahq.bsky.social
The pre-Christmas juggling madness …. 🤪🎄 Going to need to step back and pace😬
December 13, 2024 at 9:27 AM
psahq.bsky.social
Good to see Dr Will Tillett presenting on #psoriaticarthritis at Skin@Bath conf. Important to understand the impact of high #BMI on disease activity, recognise it being a modifiable risk factor and to consider as part of a holistic care approach🖐️
December 12, 2024 at 11:40 AM
psahq.bsky.social
New PsA HQ Podcast Episode: join me as I talk with Prof Oliver Fitzgerald about the HPOS study that aims to uncover biomarkers, risk factors, prevention strategies + uses the power of patient involvement🖐️Tune in 👉 creators.spotify.com/pod/show/psa...
#PsoriaticArthritis #research #rheumatology
December 10, 2024 at 1:18 PM
psahq.bsky.social
I'm new here so introducing PsA HQ. I advocate, listen and support people with #psoriaticarthritis through engagement, news + research opportunities. I also produce podcasts and help researchers with their #PPIE plans. Please follow and share your news with us🖐️ Link: psazzgroup.wixsite.com/psa-hq
The PsA HQ website (for people with Psoriatic Arthritis)
December 6, 2024 at 12:56 PM