PomonaKa
@pomonaka.bsky.social
Artist, traveler, living with advanced endometrial cancer, dogs & cat. Proud, Liberal Californian. She/her.
Sometimes I go back to previous reports to compare them to the latest versions. I also go back and re-read physicians’ notes after a bit of time has passed to check for errors or to prepare for an upcoming visit.
November 11, 2025 at 3:08 AM
Sometimes I go back to previous reports to compare them to the latest versions. I also go back and re-read physicians’ notes after a bit of time has passed to check for errors or to prepare for an upcoming visit.
It never gets any easier no matter how many scans you have. Hang in there.
November 7, 2025 at 5:12 AM
It never gets any easier no matter how many scans you have. Hang in there.
I’m so sorry for that devastating news. Wishing you peace.
November 4, 2025 at 1:23 AM
I’m so sorry for that devastating news. Wishing you peace.
That it appears to be AI written at least makes it suspect of containing inaccuracies, especially without any citations.
November 3, 2025 at 11:35 PM
That it appears to be AI written at least makes it suspect of containing inaccuracies, especially without any citations.
Woohoo!!! My MRI looked good PET in 2 weeks to see if I’m still NED. I hope to join your club.
November 1, 2025 at 12:21 AM
Woohoo!!! My MRI looked good PET in 2 weeks to see if I’m still NED. I hope to join your club.
And yet you are still here. Keep on keeping on!
October 31, 2025 at 5:16 AM
And yet you are still here. Keep on keeping on!
When people tell me “ You look so good!!!” due to my cancer medication-induced weight loss, my typical response is “You don’t want my diet plan.” If they push for my “secret” I give it to them with both barrels. “Ok, so you start with post-menopausal bleeding, then a biopsy…”
October 31, 2025 at 3:38 AM
When people tell me “ You look so good!!!” due to my cancer medication-induced weight loss, my typical response is “You don’t want my diet plan.” If they push for my “secret” I give it to them with both barrels. “Ok, so you start with post-menopausal bleeding, then a biopsy…”
Unbelievable. The ignorance & stupidity multiplies exponentially.
October 30, 2025 at 3:31 AM
Unbelievable. The ignorance & stupidity multiplies exponentially.
Then I agree with your decision to stop it. Quality of life is important. My neuropathy lessened over time after I finished chemo, but I still have some residual numbness in my fingers & toes. Hopefully yours will resolve as well.
October 26, 2025 at 11:24 PM
Then I agree with your decision to stop it. Quality of life is important. My neuropathy lessened over time after I finished chemo, but I still have some residual numbness in my fingers & toes. Hopefully yours will resolve as well.
I was on Carboplatin & paclitaxel for a recurrence of endometrial cancer. When the peripheral neuropathy got to the point of interfering with daily activities, my oncologist cut the paclitaxel dosage in half for the remainder of chemo treatment. A reduced dose may be an option.
October 26, 2025 at 10:35 PM
I was on Carboplatin & paclitaxel for a recurrence of endometrial cancer. When the peripheral neuropathy got to the point of interfering with daily activities, my oncologist cut the paclitaxel dosage in half for the remainder of chemo treatment. A reduced dose may be an option.
See, venting on this platform works! Just got notified that my PET was rescheduled for 3 weeks out.
October 24, 2025 at 3:55 PM
See, venting on this platform works! Just got notified that my PET was rescheduled for 3 weeks out.
I forgot to mention- ask your port nurse to confirm that you are using the lidocaine cream correctly. You don’t rub it into the skin - put a big glob on top of the port & cover it (Glad press-n-seal works great) to keep it in place. Do that at least 30 mins to an hour before your port is accessed.
October 20, 2025 at 10:02 AM
I forgot to mention- ask your port nurse to confirm that you are using the lidocaine cream correctly. You don’t rub it into the skin - put a big glob on top of the port & cover it (Glad press-n-seal works great) to keep it in place. Do that at least 30 mins to an hour before your port is accessed.
Ugh. So sorry to hear this. I’m lying awake waiting for my alarm to go off for an MRI that will determine if I’m having a 3rd recurrence of #endometrialcancer At least I will meet with one of my oncs later today, and not have the waiting game. Hang in there.
October 20, 2025 at 9:33 AM
Ugh. So sorry to hear this. I’m lying awake waiting for my alarm to go off for an MRI that will determine if I’m having a 3rd recurrence of #endometrialcancer At least I will meet with one of my oncs later today, and not have the waiting game. Hang in there.
Oooh, sorry! My port is great! Is the pain from the skin on top of the port being pierced or under the port when pressure is placed on it? Discuss with your port nurse - you may be resistant to lidocaine & perhaps they can prescribe something else.
October 19, 2025 at 10:08 PM
Oooh, sorry! My port is great! Is the pain from the skin on top of the port being pierced or under the port when pressure is placed on it? Discuss with your port nurse - you may be resistant to lidocaine & perhaps they can prescribe something else.
I was grateful that my first recurrence occurred after I retired (and even more grateful when Medicare kicked in shortly thereafter). I don’t think I would have put so much energy into treatments if I knew I was just going back to spreadsheets, conference calls & useless meetings. I hear you.
October 16, 2025 at 12:17 AM
I was grateful that my first recurrence occurred after I retired (and even more grateful when Medicare kicked in shortly thereafter). I don’t think I would have put so much energy into treatments if I knew I was just going back to spreadsheets, conference calls & useless meetings. I hear you.
When I’m not sure of or don’t fully understand something one of my physicians has said, I seek assistance from another provider on my team. For example, I check what my medical oncologist has said with my supportive care doc or surgical onc.
October 10, 2025 at 10:12 PM
When I’m not sure of or don’t fully understand something one of my physicians has said, I seek assistance from another provider on my team. For example, I check what my medical oncologist has said with my supportive care doc or surgical onc.
And, Happy Birthday to you! 🎂🍰🧁🥮.
October 9, 2025 at 6:10 PM
And, Happy Birthday to you! 🎂🍰🧁🥮.
I too had my birthday & infusion day coincide. I wore a gold glitter “Birthday Girl” sash & plastic tiara to the cancer center. The staff were so happy to see me celebrating my birthday that they brought a piece of flourless chocolate cake to me during my infusion & sang happy birthday! 🎂
October 9, 2025 at 6:09 PM
I too had my birthday & infusion day coincide. I wore a gold glitter “Birthday Girl” sash & plastic tiara to the cancer center. The staff were so happy to see me celebrating my birthday that they brought a piece of flourless chocolate cake to me during my infusion & sang happy birthday! 🎂
I am so sorry. The only appropriate response is #fuckcancer My condolences to you and your family.
October 2, 2025 at 11:33 PM
I am so sorry. The only appropriate response is #fuckcancer My condolences to you and your family.
Most definitely. I’ve never been in any part of a hospital where that sentiment would not apply.
September 25, 2025 at 4:25 AM
Most definitely. I’ve never been in any part of a hospital where that sentiment would not apply.