Courtney Waller
@policyservedrare.bsky.social
Policy guru specializing in Rare Disease Policy. Writer and Political Commentator Mom to Theodora, who lost her battle with Timothy Syndrome on 2/16/2024
courtneyexplainsitall.substack.com
courtneyexplainsitall.substack.com
Reposted by Courtney Waller
If I could define my disdain for mainstream media in one way it would be this: no one gets smarter or more informed about policy/history/procedures from watching CNN. If you forced someone to watch CNN cover a bill for a month, 99% of viewers wouldn't be able to answer basic questions about the bill
June 30, 2025 at 6:57 PM
If I could define my disdain for mainstream media in one way it would be this: no one gets smarter or more informed about policy/history/procedures from watching CNN. If you forced someone to watch CNN cover a bill for a month, 99% of viewers wouldn't be able to answer basic questions about the bill
Every single American will pay more across several sectors if Medicare/Medicaid is cut. It won't just be healthcare. It will mean increased taxes, reduced property values and staggering unemployment.
open.substack.com/pub/courtney...
open.substack.com/pub/courtney...
The Reality Of Medicare Cuts (Even If You Don't Use It)
Even if you aren't enrolled in Medicare or Medicaid, cutting those programs will lead to an increased financial burden for us all.
open.substack.com
May 17, 2025 at 9:29 PM
Every single American will pay more across several sectors if Medicare/Medicaid is cut. It won't just be healthcare. It will mean increased taxes, reduced property values and staggering unemployment.
open.substack.com/pub/courtney...
open.substack.com/pub/courtney...
And yet somehow they both will continue to be usurped by the insufferability of Chicago Catholics as a whole. 🤣
Villanova Catholics about to become more insufferable than Notre Dame Catholics 😂
May 9, 2025 at 12:08 AM
And yet somehow they both will continue to be usurped by the insufferability of Chicago Catholics as a whole. 🤣
Reposted by Courtney Waller
A US judge to govt lawyers defending the NIH's grant terminations:
"I understand the administration is against DEI. Respectfully, I just don't know what you mean. This isn't a teasing question. There has to be some working definition.
This is research to advance healthcare for all our citizens."
"I understand the administration is against DEI. Respectfully, I just don't know what you mean. This isn't a teasing question. There has to be some working definition.
This is research to advance healthcare for all our citizens."
May 8, 2025 at 4:27 PM
A US judge to govt lawyers defending the NIH's grant terminations:
"I understand the administration is against DEI. Respectfully, I just don't know what you mean. This isn't a teasing question. There has to be some working definition.
This is research to advance healthcare for all our citizens."
"I understand the administration is against DEI. Respectfully, I just don't know what you mean. This isn't a teasing question. There has to be some working definition.
This is research to advance healthcare for all our citizens."
Reposted by Courtney Waller
@kenmartin.bsky.social 🚨 You said we need to “land the right punch.”I am asking you to rally the troops and fight, now. We are losing crucial time.
May 1, 2025 at 3:16 PM
@kenmartin.bsky.social 🚨 You said we need to “land the right punch.”I am asking you to rally the troops and fight, now. We are losing crucial time.
April 29, 2025 at 7:12 PM
We need to take the focus off Trump and start looking at the people around him.
Rubio is more complicit and has been dreaming of what’s happening since 2018. He didn’t sell his soul. He saw an opening and took it.
open.substack.com/pub/courtney...
Rubio is more complicit and has been dreaming of what’s happening since 2018. He didn’t sell his soul. He saw an opening and took it.
open.substack.com/pub/courtney...
Lil' Marco Finally Gets His Chance
Marco Rubio has long been at the forefront of rhetoric against both China and Maduro. Bukele offered him a chance to hurt both.
open.substack.com
April 27, 2025 at 6:05 PM
We need to take the focus off Trump and start looking at the people around him.
Rubio is more complicit and has been dreaming of what’s happening since 2018. He didn’t sell his soul. He saw an opening and took it.
open.substack.com/pub/courtney...
Rubio is more complicit and has been dreaming of what’s happening since 2018. He didn’t sell his soul. He saw an opening and took it.
open.substack.com/pub/courtney...
Scott Walker is the most embarrassing thing to ever happen to WI.
The Wisconsin GOP tonight have already started talking about impeaching and removing Judge Hannah Dugan. Our piece of shit former governor Scott Walker is already asking for a special session of the legislature to take up the matter.
#Maddow
#Maddow
April 26, 2025 at 3:37 AM
Scott Walker is the most embarrassing thing to ever happen to WI.
Reposted by Courtney Waller
The Wisconsin GOP tonight have already started talking about impeaching and removing Judge Hannah Dugan. Our piece of shit former governor Scott Walker is already asking for a special session of the legislature to take up the matter.
#Maddow
#Maddow
April 26, 2025 at 1:39 AM
The Wisconsin GOP tonight have already started talking about impeaching and removing Judge Hannah Dugan. Our piece of shit former governor Scott Walker is already asking for a special session of the legislature to take up the matter.
#Maddow
#Maddow
When asked if there was dysfunction at the Pentagon, Trump said to “ask the Houthis”
Why? Did Hegseth include them in a Signal chat of classified information too? It would not surprise me at the rate this is going
Why? Did Hegseth include them in a Signal chat of classified information too? It would not surprise me at the rate this is going
April 21, 2025 at 6:48 PM
When asked if there was dysfunction at the Pentagon, Trump said to “ask the Houthis”
Why? Did Hegseth include them in a Signal chat of classified information too? It would not surprise me at the rate this is going
Why? Did Hegseth include them in a Signal chat of classified information too? It would not surprise me at the rate this is going
It seems like Boasberg isn’t convinced he has jurisdiction to rule on the ACLU’s petition.
April 18, 2025 at 11:02 PM
It seems like Boasberg isn’t convinced he has jurisdiction to rule on the ACLU’s petition.
Currently waiting for the Boasberg hearing to start.
April 18, 2025 at 10:16 PM
Currently waiting for the Boasberg hearing to start.
Reposted by Courtney Waller
I know you aren't going to want to hear this but the reason the system can deport Mahmoud Khalil and send Kilmar Abrego Garcia to El Salvador is that for years we've been executing factually innocent people like Marcellus Williams and sending legally innocent people to places like Riker's Island.
April 15, 2025 at 12:20 AM
I know you aren't going to want to hear this but the reason the system can deport Mahmoud Khalil and send Kilmar Abrego Garcia to El Salvador is that for years we've been executing factually innocent people like Marcellus Williams and sending legally innocent people to places like Riker's Island.
The delusion....
Karoline Leavitt, "China needs to make a deal with us, we don't have to make a deal with them"
"China wants what we have, what every country wants, what we have, the American consumer"
"Or to put it another way they need our money"
"China wants what we have, what every country wants, what we have, the American consumer"
"Or to put it another way they need our money"
April 15, 2025 at 8:31 PM
The delusion....
Tariffs on pharmaceuticals does not just mean prescription medication. But it does mean that people who need prescription medication will be in life and death situations. Not all of them will survive.
April 13, 2025 at 11:11 PM
Tariffs on pharmaceuticals does not just mean prescription medication. But it does mean that people who need prescription medication will be in life and death situations. Not all of them will survive.
Rubio has confirmed today that 10 more immigrants were sent to El Salvador last night per the NYT
April 13, 2025 at 11:09 PM
Rubio has confirmed today that 10 more immigrants were sent to El Salvador last night per the NYT
Timothy Syndrome can cause autism. The mutation on the CAC1NAC gene is the cause for those kids. I know of at least 4 other mutations on other genes....all rare mutations. I'm sure that's not being considered at all
The fact that he calls it an epidemic tells you right from the off this isn't rooted in evidence. He also doesn't recognize that there could be causes that aren't environmental.
He's giving away his predetermined conclusion.
He's giving away his predetermined conclusion.
RFK Jr: "By September we will know what has caused the autism epidemic and we will be able to eliminate those exposures."
April 11, 2025 at 9:48 PM
Timothy Syndrome can cause autism. The mutation on the CAC1NAC gene is the cause for those kids. I know of at least 4 other mutations on other genes....all rare mutations. I'm sure that's not being considered at all
This is absolutely ridiculous
Not great.
SCOOP: The Social Security Administration (SSA) will be shifting its public communication exclusively to X, sources tell WIRED. This comes as agency plans to cut its regional office workforce by roughly 90 percent.
April 11, 2025 at 6:58 PM
This is absolutely ridiculous
Reposted by Courtney Waller
Forcing people to pay $130 for a passport in order to vote is just a Jim Crow poll tax by another name.
It is blatantly unconstitutional.
It is blatantly unconstitutional.
April 10, 2025 at 9:46 PM
Forcing people to pay $130 for a passport in order to vote is just a Jim Crow poll tax by another name.
It is blatantly unconstitutional.
It is blatantly unconstitutional.
They would be in 2011 with the National Defense Authorization Act.
I still can’t figure out when “we can deport you” turned into “we can put you in a hell hole prison in a third country, indefinitely, with no legal recourse.”
April 9, 2025 at 5:26 PM
They would be in 2011 with the National Defense Authorization Act.
Everyone is talking about the huge crowds in DC, Boston, NYC ect.
But you know what makes me heart sing….the videos of protests from small towns in really conservative areas.
It’s harder to get people to care in places like that. And to see even 100 people-200 people—500 people is truly magical.
But you know what makes me heart sing….the videos of protests from small towns in really conservative areas.
It’s harder to get people to care in places like that. And to see even 100 people-200 people—500 people is truly magical.
April 6, 2025 at 4:49 PM
Everyone is talking about the huge crowds in DC, Boston, NYC ect.
But you know what makes me heart sing….the videos of protests from small towns in really conservative areas.
It’s harder to get people to care in places like that. And to see even 100 people-200 people—500 people is truly magical.
But you know what makes me heart sing….the videos of protests from small towns in really conservative areas.
It’s harder to get people to care in places like that. And to see even 100 people-200 people—500 people is truly magical.
I’m more concerned it gives DOGE access to voter registrations.
election law followers please correct me if i’m wrong, but most of this seems basically unenforceable? like, the president does not have the legal authority to force a resident of virginia to submit a passport to register to vote in the state
March 25, 2025 at 10:07 PM
I’m more concerned it gives DOGE access to voter registrations.
I liked Jasmine Crockett. I did. I was horrified by the comment she made about Greg Abbott. Even if she did not mean it as a remark on disability, it was a gaffe all the same, and instead of apologizing, she got defensive, and attacked anyone who was offended was a "political rival" It's not ok
March 25, 2025 at 9:55 PM
I liked Jasmine Crockett. I did. I was horrified by the comment she made about Greg Abbott. Even if she did not mean it as a remark on disability, it was a gaffe all the same, and instead of apologizing, she got defensive, and attacked anyone who was offended was a "political rival" It's not ok
In Tempe waiting for @aoc.bsky.social and @sanders.senate.gov to take the stage!
March 21, 2025 at 1:10 AM
In Tempe waiting for @aoc.bsky.social and @sanders.senate.gov to take the stage!
Reposted by Courtney Waller
Note that this means that other than the declaration due tomorrow (that they are actually considering state secrets), they'll get to rail against Boasberg to the D.C. Cir on Monday 3/24 before having to show cause why they violated his TRO by Tuesday 3/25.
March 20, 2025 at 8:29 PM
Note that this means that other than the declaration due tomorrow (that they are actually considering state secrets), they'll get to rail against Boasberg to the D.C. Cir on Monday 3/24 before having to show cause why they violated his TRO by Tuesday 3/25.