PKD International
@pkdinternational.bsky.social
A Global Alliance of #PKD Patient Groups promoting research and improved care for everyone affected by #ADPKD and #ARPKD
📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
December 2, 2025 at 9:13 AM
📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
From 27 to 28 November 2025 in Barcelona, the first edition of the ERA Science Meetings will take place.
👩⚕️ We are honored to announce that @flaviagalletti.bsky.social, President of #PKDInternational, will attend the event.
🔗 www.era-online.org/it/events/er...
#ERAScienceMeetings
👩⚕️ We are honored to announce that @flaviagalletti.bsky.social, President of #PKDInternational, will attend the event.
🔗 www.era-online.org/it/events/er...
#ERAScienceMeetings
November 24, 2025 at 9:17 AM
From 27 to 28 November 2025 in Barcelona, the first edition of the ERA Science Meetings will take place.
👩⚕️ We are honored to announce that @flaviagalletti.bsky.social, President of #PKDInternational, will attend the event.
🔗 www.era-online.org/it/events/er...
#ERAScienceMeetings
👩⚕️ We are honored to announce that @flaviagalletti.bsky.social, President of #PKDInternational, will attend the event.
🔗 www.era-online.org/it/events/er...
#ERAScienceMeetings
Eating Well with #PKD When Life Gets Busy: Simple Nutrition Tips
👩⚕️ In this new blog from the PKD Foundation of Canada, dietitian Emily Campbell, RD CDE MScFN, shares practical strategies to help you: www.endpkd.ca/eating_well_...
#PKDInternational #PKDFoundationofCanada
👩⚕️ In this new blog from the PKD Foundation of Canada, dietitian Emily Campbell, RD CDE MScFN, shares practical strategies to help you: www.endpkd.ca/eating_well_...
#PKDInternational #PKDFoundationofCanada
November 21, 2025 at 9:30 AM
Eating Well with #PKD When Life Gets Busy: Simple Nutrition Tips
👩⚕️ In this new blog from the PKD Foundation of Canada, dietitian Emily Campbell, RD CDE MScFN, shares practical strategies to help you: www.endpkd.ca/eating_well_...
#PKDInternational #PKDFoundationofCanada
👩⚕️ In this new blog from the PKD Foundation of Canada, dietitian Emily Campbell, RD CDE MScFN, shares practical strategies to help you: www.endpkd.ca/eating_well_...
#PKDInternational #PKDFoundationofCanada
At #PKDInternational, we are proud to partner with Njurförbundet, the Swedish Kidney Association — a national organization that supports people affected by kidney diseases, including polycystic kidney disease (#PKD).
🔗 Learn more: njurforbundet.se
#ADPKD #ARPKD
🔗 Learn more: njurforbundet.se
#ADPKD #ARPKD
November 18, 2025 at 11:43 AM
At #PKDInternational, we are proud to partner with Njurförbundet, the Swedish Kidney Association — a national organization that supports people affected by kidney diseases, including polycystic kidney disease (#PKD).
🔗 Learn more: njurforbundet.se
#ADPKD #ARPKD
🔗 Learn more: njurforbundet.se
#ADPKD #ARPKD
✨ Useful PKD resource alert 💛
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
November 14, 2025 at 8:38 AM
✨ Useful PKD resource alert 💛
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
#PKDInternational Board Update — November 2025
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
November 12, 2025 at 2:58 PM
#PKDInternational Board Update — November 2025
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
On 16 November 2025, AIRG Belgique will host its Annual National Day — an important moment for the Belgian genetic kidney-disease community.
💬 The programme will include a personal testimony from an #ADPKD patient sharing their journey through a living-donor kidney transplant.
#PKDInternational
💬 The programme will include a personal testimony from an #ADPKD patient sharing their journey through a living-donor kidney transplant.
#PKDInternational
November 12, 2025 at 9:52 AM
On 16 November 2025, AIRG Belgique will host its Annual National Day — an important moment for the Belgian genetic kidney-disease community.
💬 The programme will include a personal testimony from an #ADPKD patient sharing their journey through a living-donor kidney transplant.
#PKDInternational
💬 The programme will include a personal testimony from an #ADPKD patient sharing their journey through a living-donor kidney transplant.
#PKDInternational
💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers.
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
November 7, 2025 at 8:50 AM
💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers.
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
🤝 #PKDInternational & @pkdfoundation.bsky.social: united for research and patients
Founded in 1982, PKD Foundation is the only organization in the United States entirely dedicated to discovering treatments and a cure for polycystic kidney disease (PKD).
🔗 pkdcure.org/who-we-are
Founded in 1982, PKD Foundation is the only organization in the United States entirely dedicated to discovering treatments and a cure for polycystic kidney disease (PKD).
🔗 pkdcure.org/who-we-are
November 4, 2025 at 1:36 PM
🤝 #PKDInternational & @pkdfoundation.bsky.social: united for research and patients
Founded in 1982, PKD Foundation is the only organization in the United States entirely dedicated to discovering treatments and a cure for polycystic kidney disease (PKD).
🔗 pkdcure.org/who-we-are
Founded in 1982, PKD Foundation is the only organization in the United States entirely dedicated to discovering treatments and a cure for polycystic kidney disease (PKD).
🔗 pkdcure.org/who-we-are
At #PKDInternational, we are working every day to unite patients, families, scientists, and healthcare professionals in the fight to end #PKD. But this mission is only possible with your help.
🙏 Your donation brings hope, strength and progress: pkdinternational.org/donate
🙏 Your donation brings hope, strength and progress: pkdinternational.org/donate
November 3, 2025 at 8:40 AM
At #PKDInternational, we are working every day to unite patients, families, scientists, and healthcare professionals in the fight to end #PKD. But this mission is only possible with your help.
🙏 Your donation brings hope, strength and progress: pkdinternational.org/donate
🙏 Your donation brings hope, strength and progress: pkdinternational.org/donate
Managing a rare disease is not only about the clinical aspects — the psychological and emotional impact is just as significant. To address these challenges, @eurordis.bsky.social has developed the Mental Health & Wellbeing Toolkit: mhtoolkit.eurordis.org#tools-resour...
#PKDInternational #EURORDIS
#PKDInternational #EURORDIS
October 28, 2025 at 9:39 AM
Managing a rare disease is not only about the clinical aspects — the psychological and emotional impact is just as significant. To address these challenges, @eurordis.bsky.social has developed the Mental Health & Wellbeing Toolkit: mhtoolkit.eurordis.org#tools-resour...
#PKDInternational #EURORDIS
#PKDInternational #EURORDIS
In a new blog post published by PKD Foundation of Canada, Emily Campbell, shares practical and easy-to-apply strategies to help people with PKD make informed choices when eating out, without giving up the pleasure of good food 👉 www.endpkd.ca/smart_strate...
#PKD #PKDInternational
#PKD #PKDInternational
October 24, 2025 at 7:54 AM
In a new blog post published by PKD Foundation of Canada, Emily Campbell, shares practical and easy-to-apply strategies to help people with PKD make informed choices when eating out, without giving up the pleasure of good food 👉 www.endpkd.ca/smart_strate...
#PKD #PKDInternational
#PKD #PKDInternational
#PKDInternational is a non-profit association based in Geneva, Switzerland, that brings together patients, patient groups, scientists, and healthcare professionals from across the globe to improve the lives of those affected by #PKD.
👉 pkdinternational.org
👉 pkdinternational.org
October 21, 2025 at 1:05 PM
#PKDInternational is a non-profit association based in Geneva, Switzerland, that brings together patients, patient groups, scientists, and healthcare professionals from across the globe to improve the lives of those affected by #PKD.
👉 pkdinternational.org
👉 pkdinternational.org
🔬 Multi-Omics: A Personalized Future for #PKD Patients
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
October 17, 2025 at 7:43 AM
🔬 Multi-Omics: A Personalized Future for #PKD Patients
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
🔬 From Lab to Life: How Multi-Omics is Revolutionizing Kidney Research
Multi-omics is transforming research into ARPKD and ADPKD, unlocking insights that bring us closer to personalized therapies.
What Makes Multi-Omics Different 👇
#PKDInternational #PKDResearch
Multi-omics is transforming research into ARPKD and ADPKD, unlocking insights that bring us closer to personalized therapies.
What Makes Multi-Omics Different 👇
#PKDInternational #PKDResearch
October 14, 2025 at 8:52 AM
🔬 From Lab to Life: How Multi-Omics is Revolutionizing Kidney Research
Multi-omics is transforming research into ARPKD and ADPKD, unlocking insights that bring us closer to personalized therapies.
What Makes Multi-Omics Different 👇
#PKDInternational #PKDResearch
Multi-omics is transforming research into ARPKD and ADPKD, unlocking insights that bring us closer to personalized therapies.
What Makes Multi-Omics Different 👇
#PKDInternational #PKDResearch
🤝 Stronger Together: #PKDInternational & PKD Familiäre Zystennieren
🌍 Together, we are working to advance research, provide resources that improve patient care and outcomes worldwide, and strengthen our collective voice.
🔗 pkdcure.de
🌍 Together, we are working to advance research, provide resources that improve patient care and outcomes worldwide, and strengthen our collective voice.
🔗 pkdcure.de
October 10, 2025 at 9:01 AM
🤝 Stronger Together: #PKDInternational & PKD Familiäre Zystennieren
🌍 Together, we are working to advance research, provide resources that improve patient care and outcomes worldwide, and strengthen our collective voice.
🔗 pkdcure.de
🌍 Together, we are working to advance research, provide resources that improve patient care and outcomes worldwide, and strengthen our collective voice.
🔗 pkdcure.de
💡 The @eurordis.bsky.social Mental Health & Wellbeing Toolkit is a comprehensive resource for people with rare and undiagnosed conditions, their care givers, and families.
🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org
#PKDInternational #RareDiseases
🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org
#PKDInternational #RareDiseases
October 7, 2025 at 7:56 AM
💡 The @eurordis.bsky.social Mental Health & Wellbeing Toolkit is a comprehensive resource for people with rare and undiagnosed conditions, their care givers, and families.
🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org
#PKDInternational #RareDiseases
🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org
#PKDInternational #RareDiseases
💛 Support the PKD community today – your generosity truly matters!
🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments.
💻 Be part of the change today: pkdinternational.org/donate
#PKDInternational #DonateForPKD
🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments.
💻 Be part of the change today: pkdinternational.org/donate
#PKDInternational #DonateForPKD
October 3, 2025 at 7:50 AM
💛 Support the PKD community today – your generosity truly matters!
🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments.
💻 Be part of the change today: pkdinternational.org/donate
#PKDInternational #DonateForPKD
🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments.
💻 Be part of the change today: pkdinternational.org/donate
#PKDInternational #DonateForPKD
#PKDInternational was pleased to participate in the annual members’ meeting of #SwissPKD, which took place yesterday in Zurich.
💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.
💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.
October 1, 2025 at 7:41 AM
#PKDInternational was pleased to participate in the annual members’ meeting of #SwissPKD, which took place yesterday in Zurich.
💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.
💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.
🌍 Global Collaboration for a PKD-Free Future
We are proud to partner with Polycystic Kidney Disease (PKD) Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease.
🔗 pkdcharity.org.uk
#PKD
We are proud to partner with Polycystic Kidney Disease (PKD) Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease.
🔗 pkdcharity.org.uk
#PKD
September 30, 2025 at 8:38 AM
🌍 Global Collaboration for a PKD-Free Future
We are proud to partner with Polycystic Kidney Disease (PKD) Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease.
🔗 pkdcharity.org.uk
#PKD
We are proud to partner with Polycystic Kidney Disease (PKD) Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease.
🔗 pkdcharity.org.uk
#PKD
🌍 Welcome to our global PKD family!
We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨
#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration
We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨
#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration
September 29, 2025 at 11:08 AM
🌍 Welcome to our global PKD family!
We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨
#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration
We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨
#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
September 23, 2025 at 12:49 PM
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
❤️ Today we celebrate 20 years of AIRP in Milan!
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
September 20, 2025 at 9:43 AM
❤️ Today we celebrate 20 years of AIRP in Milan!
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place.
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
September 19, 2025 at 7:37 AM
On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place.
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine.
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
September 16, 2025 at 8:23 AM
💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine.
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...