Pete Caruso
@petecaruso.bsky.social
Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
“We already have a division at NIH devoted to study Long COVID and figure out cures...creating a CDC agency for vaccine injuries and also Lyme disease…more and more people are suffering from these diseases” - RFK Jr.
Chris Cuomo didn't ask about the Long COVID Recover cuts announced this week.
Chris Cuomo didn't ask about the Long COVID Recover cuts announced this week.
March 28, 2025 at 4:21 PM
“We already have a division at NIH devoted to study Long COVID and figure out cures...creating a CDC agency for vaccine injuries and also Lyme disease…more and more people are suffering from these diseases” - RFK Jr.
Chris Cuomo didn't ask about the Long COVID Recover cuts announced this week.
Chris Cuomo didn't ask about the Long COVID Recover cuts announced this week.
The @wecrunchme report "The Future is a Policy Choice" shows that #LongCOVID and #MECFS are significantly underfunded, compared to other major diseases. This information needs to be shared to inform policy makers.
![Figure 6 from the @wecrunchme first report titled "The Future is a Policy Choice". The figure is titled: "Figure 6: Estimated 2025 NIH funding per DALY [49,50] The left y-axis is titled “Funding ($) / DALY“. The x-axis has the names of selected diseases, Multiple Sclerosis, IBD, Rheumatoid Arthritis, Parkinson's Disease, ME/CFS, Asthma, Kidney Disease, Diabetes, Long COVID". Inset in the figure, “Long Covid and ME/CFS are underfunded to their disease burden, receiving $62 and $14 per DALY respectively“. Above each disease is a vertical bar that indicates the $’s/DALYS, with Long COVID and ME/CFS having the smallest amount of funding per disease burden measured by DALYs.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:mjmkbp2ueuant5m5vrpsgkyq/bafkreifkmdz7bdj6rjputnjhfn43htwplky4qgzyov4yc5mxqlgfwu6y6y@jpeg)
January 29, 2025 at 5:04 AM
The @wecrunchme report "The Future is a Policy Choice" shows that #LongCOVID and #MECFS are significantly underfunded, compared to other major diseases. This information needs to be shared to inform policy makers.
The @wecrunchme report shows that #LongCovid has the same disease burden of Type I and Type II diabetes, yet it's considerably underfunded.
Download and share "The Future is a Policy Choice" in the
drive.google.com/file/d/17fgU...
Download and share "The Future is a Policy Choice" in the
drive.google.com/file/d/17fgU...
![Figure 4 from the @wecrunchme first report titled "The Future is a Policy Choice". The figure is titled: "Figure 4: US Disease burden of selected diseases [36]. The left y-axis is titled "DALYS". The x-axis has the names of selected diseases, Multiple Sclerosis, IBD, Rheumatoid Arthritis, Parkinson's Disease, ME/CFS, Asthma, Kidney Disease, Diabetes, Long COVID". Inset in the figure, "The estimated disease burden of Long Covid is comparable to diabetes". Above each disease is a vertical bar that indicates the number of DALYS, with diabetes and Long COVID having the same number of DALYS, which are greater than any other listed disease.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:mjmkbp2ueuant5m5vrpsgkyq/bafkreihjiz5jzsnegltosy5gfelamxlgjluqgvqhzmiclnoffilfh7eehu@jpeg)
January 29, 2025 at 5:04 AM
The @wecrunchme report shows that #LongCovid has the same disease burden of Type I and Type II diabetes, yet it's considerably underfunded.
Download and share "The Future is a Policy Choice" in the
drive.google.com/file/d/17fgU...
Download and share "The Future is a Policy Choice" in the
drive.google.com/file/d/17fgU...
December 31, 2024 at 8:53 PM
For recent followers, I’m an Aerospace engineer (permanently paused) to take care of my spouse with moderate M.E. I use my spoons to promote Long COVID, M.E. research and clean air prevention measures. I follow patient-let awareness campaigns and try to provide creativity to the campaign. 🧵
November 18, 2024 at 7:48 PM
For recent followers, I’m an Aerospace engineer (permanently paused) to take care of my spouse with moderate M.E. I use my spoons to promote Long COVID, M.E. research and clean air prevention measures. I follow patient-let awareness campaigns and try to provide creativity to the campaign. 🧵
Main takeaways:
- Specific IgG antibodies from people can develop Long Covid symptoms in mice
- IgG antibodies transfer specific symptoms of subsets of patients
- A mouse model of LC can support development of treatments
- More evidence of biomarkers for subtypes
- Specific IgG antibodies from people can develop Long Covid symptoms in mice
- IgG antibodies transfer specific symptoms of subsets of patients
- A mouse model of LC can support development of treatments
- More evidence of biomarkers for subtypes
June 2, 2024 at 4:19 PM
Main takeaways:
- Specific IgG antibodies from people can develop Long Covid symptoms in mice
- IgG antibodies transfer specific symptoms of subsets of patients
- A mouse model of LC can support development of treatments
- More evidence of biomarkers for subtypes
- Specific IgG antibodies from people can develop Long Covid symptoms in mice
- IgG antibodies transfer specific symptoms of subsets of patients
- A mouse model of LC can support development of treatments
- More evidence of biomarkers for subtypes
I support every Long Covid and ME awareness event with a song. The Unite to Fight Long Covid and ME/CFS community driven conference is May 15-16.
May 7, 2024 at 2:08 AM
I support every Long Covid and ME awareness event with a song. The Unite to Fight Long Covid and ME/CFS community driven conference is May 15-16.
If link to draft agenda doesn’t work, screenshots are shown below.
December 2, 2023 at 9:02 AM
If link to draft agenda doesn’t work, screenshots are shown below.
Similar story. Debra's parents are 89, shower every day, meet friends socially, and leave the house 4 times a week - all things that she can only do once every 10-14 days. For this reason, 40 is the new 90. We need to speed up treatments.
#LongCovid
#MECFS
#LongCovid
#MECFS
October 30, 2023 at 7:49 PM
Similar story. Debra's parents are 89, shower every day, meet friends socially, and leave the house 4 times a week - all things that she can only do once every 10-14 days. For this reason, 40 is the new 90. We need to speed up treatments.
#LongCovid
#MECFS
#LongCovid
#MECFS
Fall has finally arrived in the Southeast.
October 25, 2023 at 4:38 AM
Fall has finally arrived in the Southeast.
Same beach, two weeks ago.
October 15, 2023 at 6:41 PM
Same beach, two weeks ago.
#Sjogrens disease activity was reduced using the ESSDAI: European League Against Rheumatism Sjögren’s Syndrome Disease Activity Index and the ESSPRI: European Alliance of Associations for Rheumatology SS patient Reported Index.
October 13, 2023 at 5:25 AM
#Sjogrens disease activity was reduced using the ESSDAI: European League Against Rheumatism Sjögren’s Syndrome Disease Activity Index and the ESSPRI: European Alliance of Associations for Rheumatology SS patient Reported Index.
The #sjogrens study compared a significantly enhanced stem cell group to placebo group for saliva production. Graph shows increasing UWS: unstimulated whole saliva; SWS: Stimulated whole saliva; and LF: lacrimal flow.
October 13, 2023 at 5:21 AM
The #sjogrens study compared a significantly enhanced stem cell group to placebo group for saliva production. Graph shows increasing UWS: unstimulated whole saliva; SWS: Stimulated whole saliva; and LF: lacrimal flow.
The people living with the condition are the experts.
October 6, 2023 at 3:56 PM
The people living with the condition are the experts.