Pete Caruso
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petecaruso.bsky.social
Pete Caruso
@petecaruso.bsky.social
1.2K followers 1.4K following 120 posts
Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.

Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
Posts Replies Media Videos
petecaruso.bsky.social
A Sjogrens trial of ianalumab (in Phase III) announced reaching primary endpoints. Ianalumab is a B-cell depletion and BAFF-R inhibition treatment. Ianalumab has the potential to become the first and only targeted treatment for Sjogrens, once its approved.

www.novartis.com/news/media-r...
Novartis announces both ianalumab Phase III clinical trials met primary endpoint in patients with Sjögren’s disease
www.novartis.com
August 18, 2025 at 4:19 AM
Reposted by Pete Caruso
atranscendedman.bsky.social
At the University of Washington and University of Victoria, researchers used DNA from 852 people to train a new AI model that distinguishes ME/CFS from Long COVID with 97% accuracy, offering a potential blood test for these misunderstood illnesses.

www.biorxiv.org/content/10.1...
Mobius: Mixture-Of-Experts Transformer Model in Epigenetics of ME/CFS and Long COVID
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID are chronic debilitating post-infectious illnesses that collectively affect up to 470 million individuals. Unlike illnesses o...
www.biorxiv.org
May 28, 2025 at 1:16 PM
Reposted by Pete Caruso
phillyphile215.bsky.social
@davidfajgenbaum.bsky.social ME is exactly the type of challenge you are good at unraveling. Please help us fight #GreatestMEdicalScandal and find effective cures/treatments for #pwME! 🙏
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · May 23
We’re sending out a #DisabilitySOS to @DavidFajgenbaum.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate David Fajgenbaum for this” in red text. On left side, an image of David Fajgenbaum as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.
May 23, 2025 at 10:15 PM
Reposted by Pete Caruso
bhanlon15.bsky.social
The Sick Times: 'Colorado art exhibition showcases creative expressions of Long COVID, advocates for research and treatment'

'The gallery is both a stark witness to people’s lived truth with Long COVID and a bright space of creativity and community.'

thesicktimes.org/2025/05/23/c...
Colorado art exhibition showcases creative expressions of Long COVID, advocates for research and treatment - The Sick Times
A new exhibition at the Artworks Center for Contemporary Art in Loveland, Colorado, showcases 24 pieces of visual art by 15 artists who live with or are impacted by Long COVID. Within a dynamic galler...
thesicktimes.org
May 23, 2025 at 9:02 PM
Reposted by Pete Caruso
phillyphile215.bsky.social
Please help us @latenightseth.bsky.social 🙏
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · May 23
We’re sending out a #DisabilitySOS to @latenightseth.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Seth Meyers for this” in red text. On left side, an image of Seth Meyers as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.
May 23, 2025 at 10:18 PM
Reposted by Pete Caruso
bhanlon15.bsky.social
NL Times: 'Muscles of long Covid patients respond differently to inactivity than healthy people'

'Researchers also saw issues when it came to energy production. This came as a result of malfunctioning mitochondria, which are the energy factories...'

nltimes.nl/2025/05/23/m...
Muscles of long Covid patients respond differently to inactivity than healthy people
The muscles of people who suffer from long Covid or the chronic illness ME/CVS respond differently to a workout after a period of inactivity than the muscles of people with a clean bill of health, a s...
nltimes.nl
May 23, 2025 at 9:04 PM
Reposted by Pete Caruso
phillyphile215.bsky.social
Help us out @saquonbarkley.bsky.social! 🙏 #GoBirds
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · May 23
We’re sending out a #DisabilitySOS to @saquonbarkley.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds
A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Saquon Barkley for this” in red text. On left side, an image of Saquon Barkley as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.
May 23, 2025 at 10:16 PM
Reposted by Pete Caruso
bhanlon15.bsky.social
Health Rising: “Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID”

www.healthrising.org/blog/2025/05...
Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID - Health Rising
Researchers assessing T-cell exhaustion in ME/CFS and long COVID could ultimately identify what caused these diseases.
www.healthrising.org
May 15, 2025 at 11:33 PM
Reposted by Pete Caruso
bhanlon15.bsky.social
The Sick Times: ““Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support

thesicktimes.org/2025/05/12/m...
“Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support - The Sick Times
Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C., this afternoon. Organized by the advocacy group #MEAction...
thesicktimes.org
May 13, 2025 at 3:46 AM
Reposted by Pete Caruso
katha1970.bsky.social
Reminder: On May 12-13, the “International ME/CFS Conference 2025” will take place. Speakers include Carmen Scheibenbogen, David Putrino, Michael Peluso, Michael Stingl, Klaus Wirth and many more.

Registration for the livestream is still possible at events.mecfs-research.org/de/events
May 12, 2025 at 1:18 AM
Reposted by Pete Caruso
putrinolab.bsky.social
Great to see this paper out, showing persistent heart and lung inflammation in people with #LongCOVID, but also highlighting once again that SARS-CoV-2 is a virus that profoundly affects vascular health and that every new infection can do damage.
www.mountsinai.org/about/newsro...
Long COVID May Cause Long-Term Changes in the Heart and Lungs and May Lead to Cardiac and Pulmonary Diseases
www.mountsinai.org
May 7, 2025 at 7:10 AM
Reposted by Pete Caruso
tomkindlon.bsky.social
Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome

Links in image:
www.cochranelibrary.com/cdsr/doi/10....

retractionwatch.com/2025/01/23/t...

Screenshot from the AMMES May email newsletter

#MEcfs #CFS
Image of a woman running Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome The decision to abandon a process to re-evaluate a review recommending exercise therapy for chronic fatigue syndrome (ME/CFS) has reignited calls for the article to be withdrawn. The 2019 version of the Cochrane Library review, “Exercise therapy for chronic fatigue syndrome,” has accumulated 67 citations, according to Clarivate’s Web of Science.
May 4, 2025 at 12:50 AM
Reposted by Pete Caruso
susscrofa.bsky.social
Rory Preston: Our analysis suggests Long COVID, inc. COVID-triggered ME/CFS, now ranks among the most burdensome diseases in the US — ahead of stroke, diabetes & COPD

It’s a rough estimate, but the message is clear: this crisis can’t be ignored.

We need to scale research, funding & support
Rory Preston: Our analysis suggests Long COVID, inc. COVID-triggered ME/CFS, now ranks among the most burdensome diseases in the US — ahead of stroke, diabetes & COPD It’s a rough estimate, but the message is clear: this crisis can’t be ignored. We need to scale research, funding & support
May 2, 2025 at 8:34 AM
Reposted by Pete Caruso
carlarus.bsky.social
One of my recent articles published in Frontiers in Neurology just reached a new impact milestone. Here is the link if you would like to read our study

Mijn Laatste artikel over post COVID bereikte een mijlpaal!

doi.org/10.3389/fneu...
Frontiers | Disruptions in serotonin- and kynurenine pathway metabolism in post-COVID: biomarkers and treatment
This opinion article attempts to connect knowledge about post-Covid syndrome (PCS) gained in neuropsychiatry and immunology. It discusses some misunderstandi...
doi.org
April 5, 2025 at 7:25 PM
Reposted by Pete Caruso
tomkindlon.bsky.social
Toward a Disease Module for ME/CFS: A Network-Based Gene Prioritization

www.medrxiv.org/content/10.1...

Screenshot is from the latest Science for ME weekly update

#MEcfs #CFS
Preprint: MedRxiv Toward a Disease Module for ME/CFS: A Network-Based Gene Prioritization — Paolo Maccallini "Enrichment analysis identified significant overlaps with sphingolipid metabolism and signaling, and energy-related pathways. Heme degradation, TP53-regulated metabolic genes, and thermogenesis were also identified as possibly contributing to the pathogenesis of ME/CFS."
April 24, 2025 at 3:14 AM
Reposted by Pete Caruso
riemerville.bsky.social
To the vaxx-and-relax crowd: you’re not out of the woods.

There are 200+ symptoms of Long Covid. Vaccines help reduce some risks but not neurological or vascular damage.

A paper on this was published in January and It was buried.
April 7, 2025 at 4:28 PM
Reposted by Pete Caruso
riemerville.bsky.social
“We put men on the moon decades ago, but women are still dying from severe nausea and vomiting during pregnancy,”
April 5, 2025 at 10:25 AM
Reposted by Pete Caruso
phillyphile215.bsky.social
@lastweektonight.com @thedailyshow.com @weeklyshowpodcast.bsky.social 👀 What would Jo(h)n do?
April 1, 2025 at 7:54 PM
Reposted by Pete Caruso
thesicktimes.org
In a crisis-filled world, breaking through the noise requires creativity, strategy — and, occasionally, a really good meme. This is why the #JohnVsJonVsME campaign began. bit.ly/4hTwUxa
A black background with neon purple and turquoise gaming-esque framing features photos of John Oliver and Jon Stewart facing off. White text reads, “The Sick Times. The history of ME deserves a late-night spotlight. That’s why we started the #JohnVsJonVsME campaign. by Eliza Charley, Emily Fraser, Julie, Katie Klocksin, Melissa Mazur, María Richardson.” White text inside a neon colored speech bubble reads, "Medical professionals don’t just neglect people with ME but often only offer them harmful treatments like cognitive behavioral therapy or graded exercise therapy. COVID-19 has added millions of new people with ME to the millions already sick, making coverage of this scandal imperative now more than ever." - #JohnVsJonVsME Core Planning Group: Eliza Charley, Emily Fraser, Julie, Katie Klocksin, Melissa Mazur, and María Richardson
April 1, 2025 at 7:00 PM
Reposted by Pete Caruso
bhanlon15.bsky.social
Yahoo News Canada: 'The pandemic didn't end for this P.E.I. woman, who wants more support for those with long COVID'

"It's like you're a battery that doesn't charge all the way," the Summerside resident said.

ca.news.yahoo.com/pandemic-did...
The pandemic didn't end for this P.E.I. woman, who wants more support for those with long COVID
Just over two years ago, Nikkie Gallant never would have imagined that simply sitting up in bed would be an exhausting task for her. That's been the P.E.I. musician's reality since the fall of 2022, w...
ca.news.yahoo.com
March 29, 2025 at 1:18 AM
Reposted by Pete Caruso
mileswgriffis.bsky.social
🚨 BREAKING: Long COVID research grants rescinded earlier this week have been restored, according to researchers & patient reps. Advocates organized quickly yesterday in response to the news, helping reverse the decision.

Exclusive in @thesicktimes.bsky.social

thesicktimes.org/2025/03/28/u...
UPDATE: RECOVER Long COVID pathobiology grants restored - The Sick Times
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, accord...
thesicktimes.org
March 28, 2025 at 7:36 PM
petecaruso.bsky.social
#NotLongCOVIDCuts
petecaruso.bsky.social Pete Caruso @petecaruso.bsky.social · Mar 28
NIH RECOVER cuts have started. There’s still time to contact Congress and ask them to stop the Long COVID Recover cuts. See easy toolkit by Long COVID Campaign to send a message.

#NotLongCOVIDcuts

bsky.app/profile/lcca...
March 28, 2025 at 7:08 PM
petecaruso.bsky.social
“We already have a division at NIH devoted to study Long COVID and figure out cures...creating a CDC agency for vaccine injuries and also Lyme disease…more and more people are suffering from these diseases” - RFK Jr.

Chris Cuomo didn't ask about the Long COVID Recover cuts announced this week.
March 28, 2025 at 4:21 PM
petecaruso.bsky.social
❤️
thatingrid.bsky.social ThatIngrid @thatingrid.bsky.social · Mar 24
Responsible clinicians wear proper masks. ❤️
March 24, 2025 at 6:19 PM
petecaruso.bsky.social
Sjogren's Disease News: Nipocalimab investigational treatment has been granted FDA breakthrough therapy designation and Fast Track designation.

Nipocalimab is a fully human mAb that targets the neonatal crystallizable fragment receptor (FcRn).

#Sjogrens

www.jnj.com/media-center...
Nipocalimab, the first and only investigational treatment to be granted U.S. FDA Breakthrough Therapy designation for the treatment of adults with moderate-to-severe Sjögren’s disease, has now receive...
Sjögren’s disease (SjD) is a prevalent, debilitating autoantibody disease with no FDA-approved advanced treatments The Company is actively enrolling patients in the Phase 3 DAFFODIL study This marks t...
www.jnj.com
March 23, 2025 at 6:36 AM