The Doctor is Missing
pestilany.bsky.social
The Doctor is Missing
@pestilany.bsky.social
Neurodivergent queer disabled pwME anthropologist.

Anthropology. Social work. Disability. Long Covid. ME/CFS. Race & ethnicity. Dogs. Queer stuff. Eastern Europe. Literature. Design & photography. Gardens. TV & pop culture. Social justice. Opre Roma.
Reposted by The Doctor is Missing
I get that sanism is your emotional support bigotry that helps you sleep at night, because you get to Sit there going "I cant do and believe terrible things, I'm not "insane" like those bigots and fascists. I have the essentially good brain, unlike these evil bad brain people." 7/🧵
November 10, 2023 at 8:38 PM
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Normalize virus reports like weather reports. We appreciate weather reports even if they bring us bad news, as they help us plan ahead and avoid accidents.

We need to stop being in denial about airborne viruses spreading. Sharing data helps us prepare and makes our lives easier.
January 5, 2024 at 8:12 PM
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UPDATE: The CDC just updated its COVID wastewater data.

COVID wastewater levels continue to rise, exceeding levels at the same time last year. COVID wastewater levels in the U.S. are at their highest since Omicron in 2021-22.
January 5, 2024 at 8:57 PM
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For @thesicktimes.bsky.social next week, I'll be writing about Project N95 winding down their operations. Would love to hear from people in the #LongCovid community who have relied on this organization for masks!
Winding Down | Project N95
Project N95 is winding down operations by the end of 2023. The nonprofit shop will remain open for business until December 15th to help you stock up on live-saving respiratory protection. Read about w...
www.projectn95.org
November 28, 2023 at 9:06 PM
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You can provide input before the Census Bureau implements a new framework that could lead to a 40% cut in disability estimates here:
Agency Information Collection Activities; Submission to the Office of Management and Budget (OMB) fo...
The Department of Commerce, in accordance with the Paperwork Reduction Act (PRA) of 1995, invites the general public and other Federal agencies to comment on proposed, and continuing information colle...
www.federalregister.gov
November 22, 2023 at 4:48 PM
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The US Census Bureau is considering changing how it tracks disability. The change could result in estimates of people with disabilities dropping by 40%. This would affect funding for disabled communities inc. Long Covid.

thesicktimes.org/2023/11/21/c...
November 22, 2023 at 4:43 PM
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Personally, I'm a bit bummed that tens of millions have died and that hundreds of millions have been maimed and that it is all still happening. How are you?
November 16, 2023 at 8:13 PM
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If I see you break this out I'm getting the fuck out of your house
November 20, 2023 at 12:09 AM
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Start with believing we can probably have more than they're telling us we can have.
November 20, 2023 at 4:08 AM
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there’s this neat little trick here to getting more visibility. see what i did there? yeah, i’m talking about alt-text. not using it is just fucked. i won’t reskeet your shit if you don’t, and i’m far from the only one. so here’s what’s happening 👇

you’re going to settings, then to accessibility 👇
November 19, 2023 at 8:39 PM
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I love that more people are at least trying! I’m also trying by following “How To” tutorials like this one allyant.com/how-to-make-...

but ofc I welcome comments about my attempts at alt texts! :)🌹
6 Steps to Make Your Social Media Accessible | Allyant
You can make your social media accessible by a few simple steps that include adding alt text, capitalizing each word in hashtags, using simple, concise language, limiting the use of emojis, and using ...
allyant.com
November 20, 2023 at 1:38 AM
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Workwell teams up with STAT Health

Our research aims to understand whether cerebral blood flow is reduced during post-exertional malaise (PEM) and if this metric helps explain the worsened orthostatic symptoms many report while in PEM. 

Check out our new blog on this exciting collaboration!
Workwell Teams up with STAT Health | Workwell Foundation
Workwell Foundation recently teamed up with Daniel Lee, the co-founder and CEO of STAT Health, to test an exciting new in-ear wearable device that measures blood flow to the head.
workwellfoundation.org
November 15, 2023 at 9:59 PM
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oh are we doing food/cooking snobbery again? could we fucking not?
November 19, 2023 at 8:13 PM
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please for the love of all that is unholy stop conflating "people who are bigoted/problematic" with mental illness

signed,
a very tired neurodivergent person
November 19, 2023 at 2:37 PM
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Users: Can we get DMs? Muted words? Privacy options?

Bluesky: We hear you loud and clear: We will now show everything you say to all of your harassers and make you easier to be found by anyone who is stalking you. You're welcome!
bsky.app Bluesky @bsky.app · Nov 16
Exciting news: We’re taking another step to making Bluesky an open network for public conversations.

Around the end of this month, we’ll release a public web interface. With this, you’ll be able to view posts on Bluesky without being logged in on an account.
November 16, 2023 at 5:43 PM
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Public libraries in New York will be forced to close on weekends due to Mayor Eric Adams budget cuts
NYC public libraries shutter weekend service due to Mayor Adams budget cuts
NEW YORK (PIX11) — Public libraries in Manhattan, Queens, and Brooklyn will be forced to close on weekends after Mayor Eric Adams announced the full list of proposed cuts to city fu…
t.co
November 17, 2023 at 5:43 PM
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When we warn the real threat of AI is how it’s used against people in the present, not the fantasies that some day computers might think for themselves, this is exactly the kind of thing we’re talking about: health insurers using AI to deny care.

arstechnica.com/health/2023/...
November 18, 2023 at 11:00 PM
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This was a heartbreaking story to work on: New data from reveals the crushing burden of Long Covid in NZ.

Reading testimonies is like reading obituaries. LC patients describe their lives in the past tense, because the lives they used to have are now gone.
newsroom.co.nz/2023/11/17/t...
'This isn't a life': The crushing burden of Long Covid
The first authoritative NZ research reveals the heartbreaking impact of the Long Covid illness on patients' lives
newsroom.co.nz
November 17, 2023 at 6:49 PM
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Bragging on my wife Meg: She apprenticed in stained glass in New Orleans, worked in the business, and now does miniatures. This is a dollhouse replica of the Nathan window from Canterbury Cathedral. 5.75x2.75 inches, 279 pieces, fired-on glass paint, foil and solder construction. I am in awe.
November 8, 2023 at 2:25 PM
Pesti lány is a colloquial way to refer to a girl from Budapest. In case you were wondering. I'm USian but Pest is a second home to me.

I repost liberally and follow my eclectic special interests where they take me.

Big cognitive limitations right now, please bear with me.

You may know me from 🐦
November 19, 2023 at 7:36 AM
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Here's a nun trying to get a cat to trade a fish for a penis. 1555. www.rijksmuseum.nl/en/collectio...
November 19, 2023 at 6:21 AM