Patty Reboli Spears
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paspears88.bsky.social
Patty Reboli Spears
@paspears88.bsky.social
550 followers 600 following 11 posts
Cancer Research Patient Advocate at UNC Lineberger CCC. Breast & Liver cancer, clinical trials, PROMs, #SciComm
Posts Replies Media Videos
Reposted by Patty Reboli Spears
ewsomm.bsky.social
Great discussion with @rickbuck.bsky.social & all @theaacr.bsky.social is doing to unite cancer centers across the country to advocate for cancer research. #naccdopamn2025
May 20, 2025 at 1:24 PM
Reposted by Patty Reboli Spears
ewsomm.bsky.social
Dr. Ribisl gives one heck of a presentation, even for this non-scientist 😉 Fascinating research around smoking cessation & advertising + cancer control efforts. @unclineberger.bsky.social
September 9, 2025 at 3:29 PM
Reposted by Patty Reboli Spears
ewsomm.bsky.social
We love Shelley Earp, MD! 🩵
@unclineberger.bsky.social
September 9, 2025 at 12:37 PM
Reposted by Patty Reboli Spears
ewsomm.bsky.social
Kicking off 50 years of @unclineberger.bsky.social with @robertferrismdphd.bsky.social & the 48th Annual Scientific Symposium… looking forward to hearing the amazing reflections on #50years of #cancerresearch!
September 9, 2025 at 12:31 PM
paspears88.bsky.social
Patient/community engagement can make a difference. Building trust and fostering communication directly with researchers matters.

I am excited about this new fund to foster innovative cancer research! #UNCLinenerger #bcsm #lcsm #cancerresearch

unchealthfoundation.org/gifts-at-wor...
A Patient-Philanthropist's Vision for New Cancer Research - UNC Health Foundation
Philanthropy has always played a major role in research at UNC, but Barbara Dean has taken this one step further by being an active participant in supporting those research efforts. Dean’s experience ...
unchealthfoundation.org
August 3, 2025 at 3:10 PM
Reposted by Patty Reboli Spears
unclineberger.bsky.social
Patty Spears is set to chair the #AACR25 Patient Advocate Poster Symposium: 3 – 4:30 p.m. CT, Room S402. unclineberger.org/news/unc-lin... @paspears88.bsky.social @theaacr.bsky.social
April 27, 2025 at 1:52 PM
paspears88.bsky.social
Landed in Chicago! On my way to @theaacr.bsky.social #AACR25 meeting as part of the #AACRSSP25 program! Looking forward to networking and learning about cancer research… @unclineberger.bsky.social #patientadvocacy @arosen380.bsky.social @jillfeldman4.bsky.social @bobriter.bsky.social
April 26, 2025 at 2:32 PM
paspears88.bsky.social
New study from the Stanford Mind & Body Lab to better understand and support the health and well-being of people recently diagnosed with cancer.
You can take part from home.
For more info: www.embracestudy.org

@stanford-cancer.bsky.social #bcsm #lcsm #mmsm #pcsm #crcsm #cancerwellbeing
April 21, 2025 at 10:50 PM
paspears88.bsky.social
So excited about this session! Hear about patient and community engagement - @bobriter @e_paskett @EugeneManley CJ Williams, A. Co-Dyre, R. Prosser, B.Salhia, A. Saghian #patientengagement #AACRSSP #AACR25 @unclineberger.bsky.social @theaacr.bsky.social www.abstractsonline.com/pp8/#!/20273...
April 20, 2025 at 8:47 PM
Reposted by Patty Reboli Spears
sundermannaj.bsky.social
NIH cutting COVID research because “the pandemic is over” is like grounding all weather satellites because it’s sunny out today ☀️

We need to study pathogens before they’re emergencies

...It's not sunny in Pittsburgh today #PublicHealth
March 26, 2025 at 2:23 PM
Reposted by Patty Reboli Spears
theaacr.bsky.social
At today's Congressional Forum, Dr. Larry Saltzman testified that NIH-funded research was crucial to his 15-year survival with chronic lymphocytic leukemia. "For patients waiting on the next treatment, time is everything. These cuts could rob us of the time we need most."
March 26, 2025 at 7:24 PM
Reposted by Patty Reboli Spears
drjacekdebiec.bsky.social
"Grant termination letters went out last night to principal investigators of 29 awards made by the National Institute of Allergy and Infectious Diseases.., including 9 grants that were part of a program hoping to deliver antiviral drugs to prevent future pandemics."

www.science.org/content/arti...
Saying ‘pandemic is over,’ NIH starts cutting COVID-19 research
Grant terminations halt research on improving vaccinations and preventing future pandemics
www.science.org
March 26, 2025 at 2:00 PM
paspears88.bsky.social
Heads up: [Wed, March 26th at 2:30 pm (ET)] Congressional Forum on Capitol Hill to discuss the devastating cuts at NIH that are jeopardizing cures for Alzheimer’s Disease and many cancers.

press release www.baldwin.senate.gov/news/press-r...

Livestream at youtube.com/live/JofqSdWmhbM
NEW: Baldwin, Welch Announce Forum on Devastating Trump Cuts at NIH Jeopardizing Cures for Alzheimer’s Disease, Cancers | U.S. Senator Tammy Baldwin of Wisconsin
WASHINGTON, D.C. – Today, U.S. Senators Tammy Baldwin (D-WI) and Peter Welch (D-VT) announced that...
www.baldwin.senate.gov
March 25, 2025 at 6:52 PM
Reposted by Patty Reboli Spears
tmprowell.bsky.social
#MedSky #NeuroSky

Wonderful @nytimes.com op ed by @holdenthorp.bsky.social about his diagnosis of #autism spectrum disorder in midlife & his take on why the incidence of the condition appears to be increasing.

www.nytimes.com/2025/03/20/o...
Opinion | Sorry, R.F.K.: There Is No Autism Mystery (Gift Article)
Greater awareness, not vaccines, has driven an increase in diagnoses.
www.nytimes.com
March 21, 2025 at 1:53 AM
Reposted by Patty Reboli Spears
oncodaily.bsky.social
Fighting for Better Access to Genetic Testing - Rob Winn

oncodaily.com/blog/252443r...

#Cancer #Medicine #Health #FightAgainstCancer #Oncology #OncoDaily
Rob Winn: Fighting for Better Access to Genetic Testing - OncoDaily
Rob Winn: Fighting for Better Access to Genetic Testing / AACI, Association of American Cancer Institutes, cancer, fight against cancer, genetic testing,
oncodaily.com
March 8, 2025 at 8:28 PM
Reposted by Patty Reboli Spears
boghuma.bsky.social
Why basic research matters and defunding and firing scientists will cost us.
Many life-saving breakthroughs started as curiosity-driven science with no clear application. Yet, these discoveries once seen as obscure ended up transforming medicine.
Here’s why funding basic science is essential.
A 🧵👇
March 2, 2025 at 3:12 PM
Reposted by Patty Reboli Spears
standupforscience.bsky.social
"When you hear about patients surviving stage 4 cancer because of immunotherapy, that was based on NIH research over many decades. When you hear about sickle cell disease being cured because of CRISPR gene editing, that was built on years of research supported by NIH"

apnews.com/article/nih-...
Renowned geneticist Francis Collins retires from NIH, urging 'respect' for embattled workers
Dr. Francis Collins, a renowned geneticist, and former longtime director of the National Institutes of Health, is retiring from the government agency and urging “respect” for its embattled workers.
apnews.com
March 1, 2025 at 9:44 PM
Reposted by Patty Reboli Spears
bwjones.bsky.social
By @katherinejwu.com

"The NIH... supported 99 percent of the drugs approved in the U.S. from 2010 to 2019. The agency has had a hand in “nearly all of our major medical breakthroughs over the past several decades,”

The NIH is in a struggle for its (and our) lives. This is existential to America:
Inside the Collapse at NIH
Administration officials pressured NIH to avoid clear advice from the agency’s own lawyers to restart grant funding now.
www.theatlantic.com
February 27, 2025 at 5:29 PM
Reposted by Patty Reboli Spears
tmprowell.bsky.social
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up

You can do it. Don’t give up.
February 27, 2025 at 1:56 AM
Reposted by Patty Reboli Spears
npr.org
The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.
NIH funding freeze stalls applications on $1.5 billion in medical research funds
The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.
www.npr.org
February 22, 2025 at 6:39 PM
Reposted by Patty Reboli Spears
marcelias.bsky.social
My open letter to Elon Musk.👇

Mr. Musk,

You recently criticized me and another prominent lawyer fighting for the rule of law and democracy in the United States. I am used to being attacked for my work, particularly on the platform you own and dominate. www.democracydocket.com/opinion/my-o...
My Open Letter to Elon Musk
From Marc | Elon Musk recently posted on his site that another lawyer and I are “undermining civilization.” This is my response.
www.democracydocket.com
February 22, 2025 at 8:25 PM
Reposted by Patty Reboli Spears
scott-delaney.bsky.social
NIH indirects case update:

Hearing ongoing now, and I'll try to live tweet some notable exchanges.

Prior to more detailed arguments, Judge Kelley starts off with a few point questions to both sides:

(I'm paraphrasing here)
February 21, 2025 at 3:19 PM
Reposted by Patty Reboli Spears
fumikochino.bsky.social
"the silencing of science and health-related communications through suppression or erasure of information, and the corresponding silence by many in the fields of biomedicine and public health, deserve special consideration."

"The free exchange of ideas is essential to scientific progress"
@jama.com
Reaffirming the JAMA Network Commitment to the Health of Patients and the Public
In the first month of the new administration responsible for leading the US, the executive branch has issued a flurry of orders, including ones associated with the dismissal or resignation of tens of ...
jamanetwork.com
February 21, 2025 at 2:09 AM
Reposted by Patty Reboli Spears
doublewhammied.bsky.social
Let's do one in #Seattle !! 😎 Paging @uwmedicine.bsky.social @fredhutch.bsky.social #scienceforall
standupforscience.bsky.social Stand Up for Science! @standupforscience.bsky.social · Feb 12
Welcome to the Bluesky account for Stand Up for Science 2025!

Keep an eye on this space for updates, event information, and ways to get involved. We can't wait to see everyone #standupforscience2025 on March 7th, both in DC and locations nationwide!

#scienceforall #sciencenotsilence
February 20, 2025 at 1:47 AM
Reposted by Patty Reboli Spears
theaacr.bsky.social
AACR urges Congress to reaffirm its long history of steadfast and bipartisan support for medical research by ensuring that NIH has all of the resources needed to advance its lifesaving mission to prevent, diagnose, and treat cancer and other diseases: AACR.org/NIH
February 18, 2025 at 6:10 PM