@pahsons.bsky.social
My colitis gets under control but the possibility of lymphoma and that I can't bend my my knees fully because of that is scary
November 24, 2025 at 12:06 PM
My colitis gets under control but the possibility of lymphoma and that I can't bend my my knees fully because of that is scary
Im tapering off prednisone and my knees are starting to bother me again. I hope the lumps in my legs don't come back
November 13, 2025 at 2:23 PM
Im tapering off prednisone and my knees are starting to bother me again. I hope the lumps in my legs don't come back
One of my kids found a picture of me, probably 19, with my lovely chihuahua. Miss that dog a lot
November 8, 2025 at 12:18 PM
One of my kids found a picture of me, probably 19, with my lovely chihuahua. Miss that dog a lot
Being sick for these last couple of months have zapped my strength and stamina, which can only come back with hard work. Was at the junkyard yesterday and I was dead afterwards, three straight hours of taking an engine apart for one piece. At least my kid's car will run again
October 26, 2025 at 11:29 AM
Being sick for these last couple of months have zapped my strength and stamina, which can only come back with hard work. Was at the junkyard yesterday and I was dead afterwards, three straight hours of taking an engine apart for one piece. At least my kid's car will run again
Prepping all night for procedure today. In a few weeks, I should be on some sort of plan, a medication that will actually prevent flare ups. Still don't know what the growths are in my legs. Still need the heart surgery. But we are looking at the growths
October 24, 2025 at 9:40 AM
Prepping all night for procedure today. In a few weeks, I should be on some sort of plan, a medication that will actually prevent flare ups. Still don't know what the growths are in my legs. Still need the heart surgery. But we are looking at the growths
I have a colonoscopy tomorrow and I can't wait for the results so I can get that much needed full diagnosis. I can have some control over my life that I just haven't for decades hopefully. I am so emotional about it, I think I should hide today, I'm gonna be a mess.
October 23, 2025 at 10:57 AM
I have a colonoscopy tomorrow and I can't wait for the results so I can get that much needed full diagnosis. I can have some control over my life that I just haven't for decades hopefully. I am so emotional about it, I think I should hide today, I'm gonna be a mess.
I'm sleeping through the night now. Days are still rough and I've had a couple of accidents but the pain is mostly gone. Today I went to birthday brunch with my kids and I think I was glutened, passed out afterwards and bathroom frequency is way up. Time spend with my kids is all that matters
October 19, 2025 at 9:10 PM
I'm sleeping through the night now. Days are still rough and I've had a couple of accidents but the pain is mostly gone. Today I went to birthday brunch with my kids and I think I was glutened, passed out afterwards and bathroom frequency is way up. Time spend with my kids is all that matters
I have to drink a bunch of barium for a scan today. To go from where I was two weeks ago to where I am now...its such a relief. Still investigating what's going on with my legs so I am not out of the woods by any means, but I'm not in insufferable pain 24/7
October 12, 2025 at 9:50 AM
I have to drink a bunch of barium for a scan today. To go from where I was two weeks ago to where I am now...its such a relief. Still investigating what's going on with my legs so I am not out of the woods by any means, but I'm not in insufferable pain 24/7
I cried when I got the medication, as if was life saving. In a way it is, saving my mental and emotional life. Gf cried when she saw me smile for the first time in months. I have lots of appointments and new meds coming. Wether I can afford these is a different story, but we shall see
October 11, 2025 at 9:16 AM
I cried when I got the medication, as if was life saving. In a way it is, saving my mental and emotional life. Gf cried when she saw me smile for the first time in months. I have lots of appointments and new meds coming. Wether I can afford these is a different story, but we shall see
I was given lots of prednisone. Its gonna take at least a week to start going to the bathroom normally but the frequency has all dropped significantly and I don't feel the enormous pain I've had for the last month and a half
October 10, 2025 at 7:52 AM
I was given lots of prednisone. Its gonna take at least a week to start going to the bathroom normally but the frequency has all dropped significantly and I don't feel the enormous pain I've had for the last month and a half
I finally am seeing the gastrointestinal doctor today. I hope this goes well
October 9, 2025 at 8:21 AM
I finally am seeing the gastrointestinal doctor today. I hope this goes well
I am finally seeing some doctors. I see a gastrointestinal doctor Thursday. First step in pain reduction
October 8, 2025 at 8:26 AM
I am finally seeing some doctors. I see a gastrointestinal doctor Thursday. First step in pain reduction
I slept 22 hours of thursday away. I called out, i couldn't stay awake. I went in the next day exhausted. I'm eating what I can, I just feel so dead. My gf is super worried and who can blame her? I can't fully be d my right knee and I'm so worried about that
October 4, 2025 at 1:46 PM
I slept 22 hours of thursday away. I called out, i couldn't stay awake. I went in the next day exhausted. I'm eating what I can, I just feel so dead. My gf is super worried and who can blame her? I can't fully be d my right knee and I'm so worried about that
Today was no better or worse, until I tried to kneel, which caused all the things in my legs to just inflame.
But first thing in the morning, my coworker comes in and tells us she has leukemia. She was in tears, scared to death. I hope she can get treatment and get better
But first thing in the morning, my coworker comes in and tells us she has leukemia. She was in tears, scared to death. I hope she can get treatment and get better
October 1, 2025 at 10:27 PM
Today was no better or worse, until I tried to kneel, which caused all the things in my legs to just inflame.
But first thing in the morning, my coworker comes in and tells us she has leukemia. She was in tears, scared to death. I hope she can get treatment and get better
But first thing in the morning, my coworker comes in and tells us she has leukemia. She was in tears, scared to death. I hope she can get treatment and get better
Every morning, I'm up early for work and have nothing but thoughts to keep me company. Every single one is morbid, thoughts of cancer ravaging my body and they can't help me. Having to tell my loved ones I'm dying. How do I pay as much as I can into this house so my gf doesn't lose it? I cry a lot
September 30, 2025 at 11:52 AM
Every morning, I'm up early for work and have nothing but thoughts to keep me company. Every single one is morbid, thoughts of cancer ravaging my body and they can't help me. Having to tell my loved ones I'm dying. How do I pay as much as I can into this house so my gf doesn't lose it? I cry a lot
This is not even including my heart issue, which i had surgery as a teenager, celiac, or a severe medicine allergy. Or my weekly visits to the chiropractor. I feel hopeless, in constant pain, and like there is no end in sight.
September 28, 2025 at 3:48 PM
This is not even including my heart issue, which i had surgery as a teenager, celiac, or a severe medicine allergy. Or my weekly visits to the chiropractor. I feel hopeless, in constant pain, and like there is no end in sight.
This does not include the feeling like I've been punched in the face, because a growth is happening at the bridge of my nose and in six spots on my legs. Cancer in the face killed my father but I can't do anything about this until I see a specialist.
September 28, 2025 at 3:45 PM
This does not include the feeling like I've been punched in the face, because a growth is happening at the bridge of my nose and in six spots on my legs. Cancer in the face killed my father but I can't do anything about this until I see a specialist.
No one has gotten back to me, so I wait. I have lost so much weight, I'm actually napping, and have completely lost my appetite. I am forcing myself to eat, because I know I have to. I am taking supplements because I know I'm no longer absorbing nutrients. It looks like alchemy in the morning
September 28, 2025 at 3:43 PM
No one has gotten back to me, so I wait. I have lost so much weight, I'm actually napping, and have completely lost my appetite. I am forcing myself to eat, because I know I have to. I am taking supplements because I know I'm no longer absorbing nutrients. It looks like alchemy in the morning
Oh, the primaries kept leaving as well. I've gone to this practice for 40+ years and I'm done and asked my insurance for another practice. I can't see anyone for another month to start this process over. I've called and asked if there is something they can do in the meantime
September 28, 2025 at 3:40 PM
Oh, the primaries kept leaving as well. I've gone to this practice for 40+ years and I'm done and asked my insurance for another practice. I can't see anyone for another month to start this process over. I've called and asked if there is something they can do in the meantime
I've suffered with ulcerative colitis for the past 25 years. Medications have never worked and that specialist doctors keep leaving the practice, so I have to start over constantly. I've been in full flare for the last two months and I can't see anyone for it until I get a new primary
September 28, 2025 at 3:37 PM
I've suffered with ulcerative colitis for the past 25 years. Medications have never worked and that specialist doctors keep leaving the practice, so I have to start over constantly. I've been in full flare for the last two months and I can't see anyone for it until I get a new primary
I don't use this platform that much, no one knows I have it, so I am to diary here. Its going to be very sad.
I cry every day, not because of lives lost, not because of current events, but because I am literally dying. I am in the US and our health care sucks.
I cry every day, not because of lives lost, not because of current events, but because I am literally dying. I am in the US and our health care sucks.
September 28, 2025 at 3:34 PM
I don't use this platform that much, no one knows I have it, so I am to diary here. Its going to be very sad.
I cry every day, not because of lives lost, not because of current events, but because I am literally dying. I am in the US and our health care sucks.
I cry every day, not because of lives lost, not because of current events, but because I am literally dying. I am in the US and our health care sucks.
