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OpenNotes
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🚀 Sharing the story of healthcare, one open note at a time.
🌐 Transparency, trust, and teamwork in healthcare.
📖 Advocates for patient access to their medical records.
💡 #OpenNotes | 🩺 #MedSky | 🌟 Join the movement for open healthcare conversations!
If you live in the United States, there's a good chance that you are a care partner.

In honor of #HospiceAndPalliativeCareMonth, read the latest study from @cait-desroches.bsky.social and team: bmcprimcare.biomedcentral.com/articles/10....
November 11, 2025 at 8:47 PM
The process by which patients are evaluated for life-saving organ transplants must become more transparent and inclusive of patient voices.

Read more of our co-founder Tom Delbanco's recently co-authored paper in @jama.com Viewpoint: www.opennotes.org/research/whi...

#MedSky #PalliativeCare
November 10, 2025 at 4:36 PM
Want to know what's new at OpenNotes? Get to know the OpenNotes Lab.

We are hosting a free webinar featuring some of your favorite OpenNoters: @thelizarmy.bsky.social @cait-desroches.bsky.social @chethan.bsky.social and Amanda!

📅 October 29, 2025
⏰ 12pm Eastern
🎟️ Register today: lnkd.in/eucesbGY
October 22, 2025 at 7:37 PM
Join DiMe, Google, and leading experts for the launch of The Playbook: Implementing AI in Healthcare, a practical guide designed to help health systems adopt AI responsibly and effectively.

🚨 Launch webinar TODAY at 11am ET: zoom.us/webinar/regi...
October 7, 2025 at 1:21 PM
We are proud to be a partner on The Playbook: Implementing AI in Healthcare, launching October 8!

📅 Wednesday, October 8 | 11:00 am ET

🔗 Register for the launch webinar with Danton Char, Abhishek Khowala,Jen McKay, MD MS and @gracecordovano.bsky.social: zoom.us/webinar/regi...

#PatientsUseAI
October 6, 2025 at 8:55 PM
If you've known OpenNotes since the beginning, you know Tom Delbanco, MD.

For 55 years, he has been transforming primary care.

Register for his upcoming Grand Rounds Lecture: bit.ly/46HXlT2

📅 Thursday, October 16th
⏰ 8am to 9am Eastern
📽️ Recording available
🎟️ Free

#MedSky #WhyInformatics
October 1, 2025 at 4:38 PM
If you're a chronic patient, you've probably had the experience of updating your medication list again and again.

This #WorldPharmacistDay, read about how open notes help patients manage medications and keep these med lists up to date.

www.acpjournals.org/doi/10.7326/...

#MedSky #WhyInformatics
September 25, 2025 at 2:17 PM
This study asks: how do psychiatrists and psychologists adapt their language and documentation practices after implementing open notes?

Some are removing jargon and using open notes as a digital therapeutic tool.

Read what else they're doing: www.jmir.org/2025/1/e72667/

#MedSky #WhyInformatics
September 24, 2025 at 8:17 PM
Spiritual care is an important part of healthcare.

A chaplain has a unique relationship with an oncology patient.

Read some recommendations in
@springernature.com for chaplains when it comes to recording open notes (paywalled 🔒): link.springer.com/article/10.1...

#MedSky #Cansky #BTSM #Patient
September 9, 2025 at 8:11 PM
FUNDING ANNOUNCEMENT 📣

NIH's National Library of Medicine has awarded BIDMC $1.5 million.

Sigall Bell, MD and Adam Rodman, MD, MPH, FACP will use the award to study a large language model (LLM)-driven chatbot.

Learn more about HealthCoach: www.opennotes.org/news/opennot...

#MedSky #AI #Health
September 4, 2025 at 2:29 PM
How might we help the care partners of pediatric patients during their child's hospitalization?

This intervention has the potential to mitigate safety risks and improve care without increasing care partner anxiety.

Read more: shmpublications.onlinelibrary.wiley.com/doi/10.1002/...

#medsky
September 2, 2025 at 7:50 PM
Dogs make the best care partners. But they might not be so helpful when given patient portal proxy access. 🐾

Happy #InternationalDogDay! Here's to our team's loyal companions through it all.

Left to right: Brandi and Claudia, Poppy, Jason and Bruno

#MedSky #NationalDogDay #DogDay #Dog #Dogs
August 26, 2025 at 12:04 PM
Are people looking at their patient portals when hospitalized?

People who were older, Black, male, non‐English speaking, covered by Medicaid, or from out‐of‐state were less likely to have an active patient portal account.

#MedSky #PatientEngagement

Read more: pubmed.ncbi.nlm.nih.gov/40474464/
August 21, 2025 at 8:28 PM
🚨 New OpenNotes research from Germany!

#PatientsUseAI to understand their open notes in between appointments.

New research alliances are forming internationally to study patient use of AI and make recommendations.

Read more: www.the-mind.org/the-mind/iss...

#MedSky #Medicine #PatientEngagement
August 20, 2025 at 4:46 PM
It's hard to get patients and care partners sharing access to the portal... but there are some new recommendations in the latest research.

Read the Coalition for Care Partners' latest issue brief: publichealth.jhu.edu/sites/defaul...

#CarePartners #MedSky #PatientOutcomes
August 6, 2025 at 5:09 PM
In 2020, more than 50 million patients in the U.S. and Canada gained access to their notes.

In 2021, the Cures Act went into effect and the concept of open notes became the “law of the land.”

Read more about our history: www.opennotes.org

#MedSky #CanSky #PatientEngagement #PatientExperience
July 31, 2025 at 6:24 PM
In 2016, @cait-desroches.bsky.social joined OpenNotes as our first Executive Director.

That same year, 10 million Americans were able to choose to read their medical notes online.

Read more of our history: www.opennotes.org/history/

#medsky #patientexperience #patientengagement #patients #cansky
July 28, 2025 at 1:27 PM
In the first published OpenNotes study, few patients were worried or confused by their notes.

In 2012, health systems made plans to adopt open notes.

In 2013, the VA adopted open notes as well.

Read more of our history: www.opennotes.org/history/

#medsky #patientexperience #patientengagement
July 24, 2025 at 7:13 PM
Sharing the medical record is a part of humanizing medicine.

Read the questions that Budd Shenkin proposes in the Journal of Pediatrics: www.sciencedirect.com/science/arti...

What are some questions you think we should be asking ourselves about the healthcare system?
July 22, 2025 at 8:40 PM
In 1998, patient portals entered the picture.

In 2010, OpenNotes launched its first exploratory study funded by the Robert Wood Johnson Foundation.

Read more of the history on our website: www.opennotes.org/history/

#medsky #cansky #patients
July 22, 2025 at 1:09 PM
In 1991, there was hope that the electronic health record would change medicine.

In 1996, the Health Insurance Portability and Accountability Act (aka HIPAA) was signed by into law by President Clinton.

Read more of the history on our website: www.opennotes.org/history/

#medsky #cansky #patients
July 16, 2025 at 5:37 PM
Older adults are living longer and redefining what it means to age, but is our country equipped to help them thrive as they age?

Get the answer by watching Aging in America: Survive or Thrive, a PBS documentary. Request a screening and guide: aginginamericasurviveorthrive.com/contact/

#MedSky
July 10, 2025 at 1:32 PM
Medical notes are available to patients, but are hospitalized patients actually using them?

See who was less likely to have an active patient portal account: pubmed.ncbi.nlm.nih.gov/40474464/

@cait-desroches.bsky.social

#MedSky #DigitalHealth #PatientExperience
July 10, 2025 at 1:28 PM
What makes patients feel judged or offended by their medical notes?

A 2021 study found that these three categories throw patients off: errors and surprises, labeling, and disrespect.

Find out what language doesn't work: link.springer.com/article/10.1...

#MedSky #DigitalHealth #PatientExperience
July 7, 2025 at 6:58 PM
It was a meeting of the minds last week at @harvard.edu!

@cait-desroches.bsky.social spoke on Thursday at the DCI Network conference on Digital Patient Engagement.

Pictured from L to R with Cait: @amyprice.bsky.social, Brad Crotty, MD, @epatientdave.bsky.social, Danny van Leeuwen, MPH

#medsky
June 30, 2025 at 3:45 PM