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OpenNotes
@opennotes.org
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🚀 Sharing the story of healthcare, one open note at a time.
🌐 Transparency, trust, and teamwork in healthcare.
📖 Advocates for patient access to their medical records.
💡 #OpenNotes | 🩺 #MedSky | 🌟 Join the movement for open healthcare conversations!
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opennotes.org
OpenNotes @opennotes.org · Jan 9
Are you a clinician who shares your notes? ✔️
A patient who reads notes? ✔️
A researcher who studies transparency in clinical documentation? ✔️
Let us know so we can add you to the #OpenNotes starter pack! 💥

#medsky

#btsm

#cansky

go.bsky.app/FYLhysC
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opennotes.org
If you live in the United States, there's a good chance that you are a care partner.

In honor of #HospiceAndPalliativeCareMonth, read the latest study from @cait-desroches.bsky.social and team: bmcprimcare.biomedcentral.com/articles/10....
November 11, 2025 at 8:47 PM
opennotes.org
Reading medical records can be unsettling—especially when the language feels biased or doesn't seem to match what you think happened.

Read what OpenNoters @cait-desroches.bsky.social and Steve O'Neill recommend when this happens: lnkd.in/eDuxcPc4

www.opennotes.org/research/who...

#MedSky
Whom Should We Regard as a Legitimate Stakeholder in the Accuracy of Information in a Patient’s EHR? - Open Notes
This case describes a care partner who was distressed by bias and inaccuracies in a loved one's medical notes. Steve O'Neill LICSW, BCD, JD and Catherine M. DesRoches, DrPH, MSc offer guidance on how ...
www.opennotes.org
November 11, 2025 at 6:37 PM
opennotes.org
The process by which patients are evaluated for life-saving organ transplants must become more transparent and inclusive of patient voices.

Read more of our co-founder Tom Delbanco's recently co-authored paper in @jama.com Viewpoint: www.opennotes.org/research/whi...

#MedSky #PalliativeCare
November 10, 2025 at 4:36 PM
Reposted by OpenNotes
opennotes.org
Want to know what's new at OpenNotes? Get to know the OpenNotes Lab.

We are hosting a free webinar featuring some of your favorite OpenNoters: @thelizarmy.bsky.social @cait-desroches.bsky.social @chethan.bsky.social and Amanda!

📅 October 29, 2025
⏰ 12pm Eastern
🎟️ Register today: lnkd.in/eucesbGY
October 22, 2025 at 7:37 PM
opennotes.org
Want to know what's new at OpenNotes? Get to know the OpenNotes Lab.

We are hosting a free webinar featuring some of your favorite OpenNoters: @thelizarmy.bsky.social @cait-desroches.bsky.social @chethan.bsky.social and Amanda!

📅 October 29, 2025
⏰ 12pm Eastern
🎟️ Register today: lnkd.in/eucesbGY
October 22, 2025 at 7:37 PM
opennotes.org
Join DiMe, Google, and leading experts for the launch of The Playbook: Implementing AI in Healthcare, a practical guide designed to help health systems adopt AI responsibly and effectively.

🚨 Launch webinar TODAY at 11am ET: zoom.us/webinar/regi...
October 7, 2025 at 1:21 PM
opennotes.org
We are proud to be a partner on The Playbook: Implementing AI in Healthcare, launching October 8!

📅 Wednesday, October 8 | 11:00 am ET

🔗 Register for the launch webinar with Danton Char, Abhishek Khowala,Jen McKay, MD MS and @gracecordovano.bsky.social: zoom.us/webinar/regi...

#PatientsUseAI
October 6, 2025 at 8:55 PM
opennotes.org
"The evidence shows that the more a patient gets involved in their own care, the better the outcomes,” Tom Delbanco told @wsj.com.

Read more on DIY health trends such as wearables and AI from experts like @hugooc.bsky.social @annawexler.bsky.social

lnkd.in/e9cSRzvk

#MedSky #PatientsUseAI #MedAI
Patients Are Diagnosing Themselves With Home Tests, Devices and Chatbots
Patients increasingly take on their own healthcare amid long waits for doctors’ appointments and a rise in self-care options
www.wsj.com
October 1, 2025 at 5:00 PM
opennotes.org
If you've known OpenNotes since the beginning, you know Tom Delbanco, MD.

For 55 years, he has been transforming primary care.

Register for his upcoming Grand Rounds Lecture: bit.ly/46HXlT2

📅 Thursday, October 16th
⏰ 8am to 9am Eastern
📽️ Recording available
🎟️ Free

#MedSky #WhyInformatics
October 1, 2025 at 4:38 PM
opennotes.org
If you're a chronic patient, you've probably had the experience of updating your medication list again and again.

This #WorldPharmacistDay, read about how open notes help patients manage medications and keep these med lists up to date.

www.acpjournals.org/doi/10.7326/...

#MedSky #WhyInformatics
September 25, 2025 at 2:17 PM
opennotes.org
This study asks: how do psychiatrists and psychologists adapt their language and documentation practices after implementing open notes?

Some are removing jargon and using open notes as a digital therapeutic tool.

Read what else they're doing: www.jmir.org/2025/1/e72667/

#MedSky #WhyInformatics
September 24, 2025 at 8:17 PM
opennotes.org
What is the environmental cost of Health AI?

@chethan.bsky.social recently coauthored a paper IN NEJM Catalyst with strategies for more sustainable AI adoption for health system leaders, technologists, and policymakers.

catalyst.nejm.org/doi/full/10....

#MedSky #WhyInformatics #MedAI
Sustainably Advancing Health AI: A Decision Framework to Mitigate the Energy, Emissions, and Cost of AI Implementation
The authors offer an exploration of AI’s growing impact on carbon emissions, electricity consumption, and cost implications for health systems; present a new framework for mitigation of environment...
catalyst.nejm.org
September 19, 2025 at 3:55 PM
opennotes.org
This study asks: how do psychiatrists and psychologists adapt their language and documentation practices after implementing open notes?

Some are removing jargon and using open notes as a digital therapeutic tool.

Read what else they're doing: www.jmir.org/2025/1/e72667/

#MedSky #WhyInformatics
Changes in Documentation After Implementing Open Notes in Mental Health Care: Pre-Post Mixed Methods Study
Background: The practice of providing patients with digital access to clinical narrative documentation by health care professionals (HCPs) is known as open notes. In mental health care, this innovatio...
www.jmir.org
September 17, 2025 at 7:27 PM
opennotes.org
About how many patients are using AI to receive health information?
1️⃣ Approximately 1 in 7 adults over 50 according to University of Michigan
2️⃣ Around 1 in 4 adults under age 30 according to @kff.org

Read more from @thelizarmy.bsky.social in @npr.org: www.npr.org/sections/sho...

#PatientsUseAI
Running your lab results by ChatGPT? Here's what to keep in mind
While patients wait to hear back from their doctors about test results, many turn to AI assistants for answers. There are issues with privacy and accuracy.
www.npr.org
September 15, 2025 at 8:29 PM
opennotes.org
Spiritual care is an important part of healthcare.

A chaplain has a unique relationship with an oncology patient.

Read some recommendations in
@springernature.com for chaplains when it comes to recording open notes (paywalled 🔒): link.springer.com/article/10.1...

#MedSky #Cansky #BTSM #Patient
September 9, 2025 at 8:11 PM
opennotes.org
"Helping people identify as caregivers/care partners needs to be integrated into our health systems."

Geri Baumblatt echoes Coalition for Care Partners' call: care partners should formally enroll in shared access to the patient portal.

Read more: www.healthliteracysolutions.org/blogs/iha-st...
Lost in the Fog of Caregiving
As our population ages, more and more people help a parent, partner, adult sibling or friend with their health and care. Yet, we don’t usually think of ourselves as caregivers. That may not sound seri...
www.healthliteracysolutions.org
September 8, 2025 at 5:56 PM
opennotes.org
FUNDING ANNOUNCEMENT 📣

NIH's National Library of Medicine has awarded BIDMC $1.5 million.

Sigall Bell, MD and Adam Rodman, MD, MPH, FACP will use the award to study a large language model (LLM)-driven chatbot.

Learn more about HealthCoach: www.opennotes.org/news/opennot...

#MedSky #AI #Health
September 4, 2025 at 2:29 PM
opennotes.org
How might we help the care partners of pediatric patients during their child's hospitalization?

This intervention has the potential to mitigate safety risks and improve care without increasing care partner anxiety.

Read more: shmpublications.onlinelibrary.wiley.com/doi/10.1002/...

#medsky
September 2, 2025 at 7:50 PM
opennotes.org
What happens when bad news arrives via a cancer patient's portal at 5pm on a Friday?

This article investigates the concerns of palliative care and oncology clinicians when it comes to open notes. Hint: they differ by specialty.

Read on: www.sciencedirect.com/science/arti...

#MedSky #CanSky #BTSM
August 28, 2025 at 4:31 PM
Reposted by OpenNotes
opennotes.org
It's @thelizarmy.bsky.social's first day back at school!

Liz Salmi, AS, has first-authored and co-authored 30 peer reviewed articles in prominent journals like @jama.com and @jmirpub.bsky.social

We can't wait to see what Liz does next as a pioneering patient-researcher.

#MedSky #BTSM #CanSky
thelizarmy.bsky.social Liz Salmi @thelizarmy.bsky.social · Aug 25
After 18 years away (thanks, #braincancer), I'm going back to school! My major has now changed from Communications to Cognitive Science. Wish me luck!

TL;DR: I'll still be working 2 days/week with @opennotes.org, and going to school full time.

Details: www.thelizarmy.com/blog/im-goin...
August 25, 2025 at 6:49 PM
Reposted by OpenNotes
opennotes.org
Our own Dr. Sigall Bell has been named by Becker's Hospital Review as a Patient Safety Expert to Know.

Dr. Bell has....
👏 Trained over 1,000 clinicians in disclosure practices
👏 Developed the “OurDX” diagnostic engagement tool

Read more: www.beckershospitalreview.com/hospital-man...

#MedSky
132 patient safety experts to know | 2025 - Becker's Hospital Review | Healthcare News & Analysis
The following patient safety experts are unwavering champions for patient harm reduction, disease management and disaster preparedness. Representing various roles across hospitals, health systems and ...
www.beckershospitalreview.com
August 22, 2025 at 7:41 PM
opennotes.org
Dogs make the best care partners. But they might not be so helpful when given patient portal proxy access. 🐾

Happy #InternationalDogDay! Here's to our team's loyal companions through it all.

Left to right: Brandi and Claudia, Poppy, Jason and Bruno

#MedSky #NationalDogDay #DogDay #Dog #Dogs
August 26, 2025 at 12:04 PM
opennotes.org
It's @thelizarmy.bsky.social's first day back at school!

Liz Salmi, AS, has first-authored and co-authored 30 peer reviewed articles in prominent journals like @jama.com and @jmirpub.bsky.social

We can't wait to see what Liz does next as a pioneering patient-researcher.

#MedSky #BTSM #CanSky
thelizarmy.bsky.social Liz Salmi @thelizarmy.bsky.social · Aug 25
After 18 years away (thanks, #braincancer), I'm going back to school! My major has now changed from Communications to Cognitive Science. Wish me luck!

TL;DR: I'll still be working 2 days/week with @opennotes.org, and going to school full time.

Details: www.thelizarmy.com/blog/im-goin...
August 25, 2025 at 6:49 PM
opennotes.org
Our own Dr. Sigall Bell has been named by Becker's Hospital Review as a Patient Safety Expert to Know.

Dr. Bell has....
👏 Trained over 1,000 clinicians in disclosure practices
👏 Developed the “OurDX” diagnostic engagement tool

Read more: www.beckershospitalreview.com/hospital-man...

#MedSky
132 patient safety experts to know | 2025 - Becker's Hospital Review | Healthcare News & Analysis
The following patient safety experts are unwavering champions for patient harm reduction, disease management and disaster preparedness. Representing various roles across hospitals, health systems and ...
www.beckershospitalreview.com
August 22, 2025 at 7:41 PM
opennotes.org
Are people looking at their patient portals when hospitalized?

People who were older, Black, male, non‐English speaking, covered by Medicaid, or from out‐of‐state were less likely to have an active patient portal account.

#MedSky #PatientEngagement

Read more: pubmed.ncbi.nlm.nih.gov/40474464/
August 21, 2025 at 8:28 PM