National Urea Cycle Disorders Foundation
@nucdf.bsky.social
We support patients and families affected by urea cycle disorders, a group of rare genetic diseases. Working to advance research, improve care, and raise awareness that saves lives https://nucdf.org
#UCDs #RareDisease #CheckAmmonia
#UCDs #RareDisease #CheckAmmonia
The project is funded through the Eugene Washington PCORI Engagement Award Program, an initiative or PCORI, the Patient-Centered Outcomes Research Institute. Read the press release: www.eurekalert.org/news-release...
National UCD Foundation to build network, create roadmap for future research in urea cycle disorders
The National Urea Cycle Disorders Foundation (NUCDF) today announced the launch of a two-year national project to establish the multistakeholder NUCDF Partner Network and develop a roadmap for future ...
www.eurekalert.org
June 18, 2025 at 2:17 PM
The project is funded through the Eugene Washington PCORI Engagement Award Program, an initiative or PCORI, the Patient-Centered Outcomes Research Institute. Read the press release: www.eurekalert.org/news-release...