#NotJustFatigue
@notjustfatigue.bsky.social
We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue. Visit www.notjustfatigue.org
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8/18/25, It Happened To Me, A Rare Disease and Medical Challenges Podcast: “Not Just Fatigue: Global Advocating for ME/CFS from Bed”
“Joined by…Elizabeth Ansell, founder of #NotJustFatigue..bringing urgently needed awareness to…ME/CFS…”
podcasts.apple.com/us/podcast/6...
“Joined by…Elizabeth Ansell, founder of #NotJustFatigue..bringing urgently needed awareness to…ME/CFS…”
podcasts.apple.com/us/podcast/6...
#66 Not Just Fatigue: Global Advocating for ME/CFS from Bed
Podcast Episode · It Happened To Me: A Rare Disease and Medical Challenges Podcast · 08/18/2025 · 51m
podcasts.apple.com
August 18, 2025 at 7:55 PM
8/18/25, It Happened To Me, A Rare Disease and Medical Challenges Podcast: “Not Just Fatigue: Global Advocating for ME/CFS from Bed”
“Joined by…Elizabeth Ansell, founder of #NotJustFatigue..bringing urgently needed awareness to…ME/CFS…”
podcasts.apple.com/us/podcast/6...
“Joined by…Elizabeth Ansell, founder of #NotJustFatigue..bringing urgently needed awareness to…ME/CFS…”
podcasts.apple.com/us/podcast/6...
Reposted by #NotJustFatigue
Many others working behind the scenes made this happen, including @notjustfatigue.bsky.social. We're glad to see that the appropriations language landed in a good place for funding for #MECFS.
Even with knowledge of all the obstacles that remain, it's very good news. /fin
Even with knowledge of all the obstacles that remain, it's very good news. /fin
August 1, 2025 at 2:29 PM
Many others working behind the scenes made this happen, including @notjustfatigue.bsky.social. We're glad to see that the appropriations language landed in a good place for funding for #MECFS.
Even with knowledge of all the obstacles that remain, it's very good news. /fin
Even with knowledge of all the obstacles that remain, it's very good news. /fin
Reposted by #NotJustFatigue
If you are in Maine and living with ME and/or Long COVID (or a caregiver, family or friend, or ally) and interested in meeting with a member of Congress, please fill out this form: forms.gle/G6RArahgpvPW...
@notjustfatigue.bsky.social
@notjustfatigue.bsky.social
Looking For An Activist In Maine
#MEAction is looking for an individual in the state of Maine to help us secure a meeting with Senator Susan Collins. She has been an ally of the ME Community before (co-sponsor on the Senate ME Resolu...
forms.gle
June 17, 2025 at 6:06 PM
If you are in Maine and living with ME and/or Long COVID (or a caregiver, family or friend, or ally) and interested in meeting with a member of Congress, please fill out this form: forms.gle/G6RArahgpvPW...
@notjustfatigue.bsky.social
@notjustfatigue.bsky.social
Reposted by #NotJustFatigue
We’ve currently been working with @notjustfatigue.bsky.social on meetings with the hill on the research roadmap- a two-pronged approach to getting funding for ME in one of the most contentious times in recent history when it comes to research.
Sign the roadmap letter: airtable.com/appEwdLZCdtR...
Sign the roadmap letter: airtable.com/appEwdLZCdtR...
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airtable.com
June 17, 2025 at 6:06 PM
We’ve currently been working with @notjustfatigue.bsky.social on meetings with the hill on the research roadmap- a two-pronged approach to getting funding for ME in one of the most contentious times in recent history when it comes to research.
Sign the roadmap letter: airtable.com/appEwdLZCdtR...
Sign the roadmap letter: airtable.com/appEwdLZCdtR...
Check out our founder talk about her personal experiences with ME/CFS, #NotJustFatigue, and our economic data on people with the disease in Healthy Women
www.healthywomen.org/real-women-r...
www.healthywomen.org/real-women-r...
I'm Tired of ME/CFS Being Misunderstood
I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome
www.healthywomen.org
June 10, 2025 at 2:53 PM
Check out our founder talk about her personal experiences with ME/CFS, #NotJustFatigue, and our economic data on people with the disease in Healthy Women
www.healthywomen.org/real-women-r...
www.healthywomen.org/real-women-r...
This year, #NotJustFatigue partnered with @meactnet.bsky.social to meet with congressional representatives to get the ME/CFS Research Roadmap funded. Wanna help? Please call your representative if you’re in these areas or get your friends/family to call if they’re in these areas about funding it
June 3, 2025 at 2:01 AM
This year, #NotJustFatigue partnered with @meactnet.bsky.social to meet with congressional representatives to get the ME/CFS Research Roadmap funded. Wanna help? Please call your representative if you’re in these areas or get your friends/family to call if they’re in these areas about funding it
Reposted by #NotJustFatigue
Really great work from @notjustfatigue.bsky.social on the impact of #MECFS:
www.notjustfatigue.org/NotJustFatig...
www.notjustfatigue.org/NotJustFatig...
www.notjustfatigue.org
May 20, 2025 at 1:27 PM
Really great work from @notjustfatigue.bsky.social on the impact of #MECFS:
www.notjustfatigue.org/NotJustFatig...
www.notjustfatigue.org/NotJustFatig...
Excited that our founder Elizabeth Ansell was featured in Friday’s newsletter from The Newsette talking about @notjustfatigue.bsky.social , #MECFS, medical gender bias, and being a supportive friend or family member to someone with an illness
April 26, 2025 at 7:52 PM
Excited that our founder Elizabeth Ansell was featured in Friday’s newsletter from The Newsette talking about @notjustfatigue.bsky.social , #MECFS, medical gender bias, and being a supportive friend or family member to someone with an illness
Reposted by #NotJustFatigue
#MEAction has been hard at work connecting individuals to their elected officials. We’ve been partnering with @notjustfatigue.bsky.social setting up congressional meetings to ask Congress for their support in making funding the ME/CFS Research Roadmap a reality. www.meaction.net/2025/04/23/m...
#MEAction: Congress Is Hearing from Us
#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth. We’ve been partnering with #NotJustFatigue on se...
www.meaction.net
April 24, 2025 at 6:45 PM
#MEAction has been hard at work connecting individuals to their elected officials. We’ve been partnering with @notjustfatigue.bsky.social setting up congressional meetings to ask Congress for their support in making funding the ME/CFS Research Roadmap a reality. www.meaction.net/2025/04/23/m...
Reposted by #NotJustFatigue
Cast your votes here: shortyawards.com/17th/notjust...
#NotJustFatigue - The Shorty Awards
An international award show that recognizes and celebrates the innovation and creativity in digital and social media, by brands, agencies, nonprofits and individuals.
shortyawards.com
April 19, 2025 at 8:49 PM
Cast your votes here: shortyawards.com/17th/notjust...
Reposted by #NotJustFatigue
Once you're logged in, casting a daily vote for @notjustfatigue.bsky.social is a matter of two clicks :). (I keep the window open & visit with my first cup of coffee.)
Let's help #NotJustFatigue reach many viewers w their excellent work on #MyalgicEncephalomyelitis!
shortyawards.com/17th/notjust...
Let's help #NotJustFatigue reach many viewers w their excellent work on #MyalgicEncephalomyelitis!
shortyawards.com/17th/notjust...
April 22, 2025 at 5:56 PM
Once you're logged in, casting a daily vote for @notjustfatigue.bsky.social is a matter of two clicks :). (I keep the window open & visit with my first cup of coffee.)
Let's help #NotJustFatigue reach many viewers w their excellent work on #MyalgicEncephalomyelitis!
shortyawards.com/17th/notjust...
Let's help #NotJustFatigue reach many viewers w their excellent work on #MyalgicEncephalomyelitis!
shortyawards.com/17th/notjust...
Reposted by #NotJustFatigue
Just voted again—will do it every day I remember! After you vote the first time the next time it’s just two simple clicks!
Note @notjustfatigue.bsky.social’s excellent timeline of #GreatestMEdicalScandal history—a fantastic resource for journos covering ME & Long Covid: www.notjustfatigue.org/past
Note @notjustfatigue.bsky.social’s excellent timeline of #GreatestMEdicalScandal history—a fantastic resource for journos covering ME & Long Covid: www.notjustfatigue.org/past
April 19, 2025 at 8:39 PM
Just voted again—will do it every day I remember! After you vote the first time the next time it’s just two simple clicks!
Note @notjustfatigue.bsky.social’s excellent timeline of #GreatestMEdicalScandal history—a fantastic resource for journos covering ME & Long Covid: www.notjustfatigue.org/past
Note @notjustfatigue.bsky.social’s excellent timeline of #GreatestMEdicalScandal history—a fantastic resource for journos covering ME & Long Covid: www.notjustfatigue.org/past
Reposted by #NotJustFatigue
Got my Saturday voting in. (Remember we can vote daily friends!)
Have you checked out the site and its excellent history of #MyalgicEncephalomyelitis ?
#GreatestMEdicalScandal
#NotJustFatigue @notjustfatigue.bsky.social
Have you checked out the site and its excellent history of #MyalgicEncephalomyelitis ?
#GreatestMEdicalScandal
#NotJustFatigue @notjustfatigue.bsky.social
April 19, 2025 at 7:44 PM
Got my Saturday voting in. (Remember we can vote daily friends!)
Have you checked out the site and its excellent history of #MyalgicEncephalomyelitis ?
#GreatestMEdicalScandal
#NotJustFatigue @notjustfatigue.bsky.social
Have you checked out the site and its excellent history of #MyalgicEncephalomyelitis ?
#GreatestMEdicalScandal
#NotJustFatigue @notjustfatigue.bsky.social
Reposted by #NotJustFatigue
We can vote daily and in both categories for #NotJustFatigue @notjustfatigue.bsky.social ❤️
(I've just cast my daily votes)
(I've just cast my daily votes)
April 18, 2025 at 10:49 PM
We can vote daily and in both categories for #NotJustFatigue @notjustfatigue.bsky.social ❤️
(I've just cast my daily votes)
(I've just cast my daily votes)
Link to the opinion piece our founder Elizabeth Ansell co-authored in @statnews.com today. It argues for a more inclusive RECOVER Initiative. We at @notjustfatigue.bsky.social have spent almost a year advocating that ME/CFS be included in the RECOVER Initiative.
www.statnews.com/2025/02/04/r...
www.statnews.com/2025/02/04/r...
NIH must address the twin crises of long Covid and ME/CFS — together
NIH has an historic opportunity to transform post-viral illness research by bringing ME/CFS into its long Covid RECOVER Initiative.
www.statnews.com
February 4, 2025 at 4:15 PM
Link to the opinion piece our founder Elizabeth Ansell co-authored in @statnews.com today. It argues for a more inclusive RECOVER Initiative. We at @notjustfatigue.bsky.social have spent almost a year advocating that ME/CFS be included in the RECOVER Initiative.
www.statnews.com/2025/02/04/r...
www.statnews.com/2025/02/04/r...
Thank you for the interview @meactnet.bsky.social !
Have you seen any of the #NotJustFatigue videos? Wondered about who made them & why?
We reached out to the creator, Elizabeth Ansell, to discuss how this series came to be & the behind-the-scenes work that went into producing these videos. Full interview: www.meaction.net/2025/01/13/n...
We reached out to the creator, Elizabeth Ansell, to discuss how this series came to be & the behind-the-scenes work that went into producing these videos. Full interview: www.meaction.net/2025/01/13/n...
#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell
Over the past year, the #NotJustFatigue website, created by Elizabeth Ansell, releases a 10-part, documentary style, short form video series on different aspects involved in living with ME. Titles of ...
www.meaction.net
January 14, 2025 at 9:59 PM
Thank you for the interview @meactnet.bsky.social !
Reposted by #NotJustFatigue
oh there’s another movie about #mecfs it’s on this website how nice
i can’t watch it now but i will when i can. slowly. sharing so more people can find #NotJustFatigue
#pwme #NEISvoid #MyalgicE
i can’t watch it now but i will when i can. slowly. sharing so more people can find #NotJustFatigue
#pwme #NEISvoid #MyalgicE
Super excited to announce we won ELEVEN Vega awards for www.notjustfatigue.org. We hope this will spread our message and educate the general public on ME/CFS
December 25, 2024 at 7:06 PM
oh there’s another movie about #mecfs it’s on this website how nice
i can’t watch it now but i will when i can. slowly. sharing so more people can find #NotJustFatigue
#pwme #NEISvoid #MyalgicE
i can’t watch it now but i will when i can. slowly. sharing so more people can find #NotJustFatigue
#pwme #NEISvoid #MyalgicE
Still looking for #pwME in the NYC area who are interested in being professionally photographed and giving quotes so that we can tell your story! Please email connect@notjustfatigue.org
December 11, 2024 at 4:30 PM
Still looking for #pwME in the NYC area who are interested in being professionally photographed and giving quotes so that we can tell your story! Please email connect@notjustfatigue.org
Super excited to announce we won ELEVEN Vega awards for www.notjustfatigue.org. We hope this will spread our message and educate the general public on ME/CFS
November 23, 2024 at 6:48 PM
Super excited to announce we won ELEVEN Vega awards for www.notjustfatigue.org. We hope this will spread our message and educate the general public on ME/CFS
Today is the last day of our crowdfunding fundraiser! Link to check it out and make a donation: givebutter.com/notjustfatigue
Help #NotJustFatigue Continue Their Education + Advocacy Efforts
We’re sounding the alarm on ME/CFS
givebutter.com
November 19, 2024 at 2:25 PM
Today is the last day of our crowdfunding fundraiser! Link to check it out and make a donation: givebutter.com/notjustfatigue