New paper alert! 🌟We explored the first year of an ambitious redesign to hospice services. Successful implementation happens when teams collaborate, adapt to changes, and receive support and feedback.

Thrilled to see this published! #palliativecare

Read here: journals.sagepub.com/doi/epub/10....

I am so looking forward to 'Cycles of Life' at @codydock.bsky.social

Join us for a special evening in a beautiful venue with brilliant speakers - inc. an artist, chaplain, ecologist, historian, psychologist, and an end-of-life doula 😍

You can register here:
www.eventbrite.co.uk/e/cycles-of-...

I'm organising a public event to hear from different people on themes related to Mortality, in a beautiful venue in East London.

We have some brilliant speakers already and there is time for more volunteers to contribute.

Save the date and watch this space for a registration link coming soon!

An audiobook I loved and will return to - stories of the working lives of famously accomplished people and wise advice on how to master your productivity.

Sharing as a reminder to myself as much as to recommend to others:

Do fewer things.
Obsess over quality.
Work at a natural pace.

#academicsky

I love being part of projects that seek to remove barriers to health and to research involvement.

These findings highlight the importance of really listening to people.

The lead author tried out a robust and innovative combination of Q-methodology and realist synthesis:
doi.org/10.1123/jpah...

There used to be an assumption that research participation is burdensome to palliative care patients. This is changing now. Altruism, legacy, and being heard - these can all be meaningful, even at the very end of life (see quote!)

Reflecting on lessons from hospice research nurses at #HospiceUKConf

A beautiful morning in Glasgow! Wonderful to hear lots of optimism about building hospice research capacity
#HospiceUKConf

'Virtual wards' can be used for both short-term crisis and long-term proactive care. This review looked at research evidence and spoke with stakeholders to develop explanations of how virtual wards can function effectively as a forum for integration.

Read here:
academic.oup.com/ageing/artic...

Two in one 😀
Read about realist evaluation, how it differs from other research approaches, and why it is well-suited for palliative care: journals.sagepub.com/doi/epub/10....
And how we can get to high-quality realist research through strong reflexivity practice:
journals.sagepub.com/doi/epub/10....

Is it possible to measure the outcomes of social support groups in palliative care?

This paper suggests yes - by collecting data over time from 30 patients in four different hospices, we observed a difference in loneliness, depression, and perceived emotional support:

www.mdpi.com/1660-4601/19...

The bigger question is WHY did hospices offer social support to people with life-limiting illness? How did the patient's context contribute to risk of isolation or loneliness, and what are the mechanisms through which positive outcomes can be achieved? More here:
journals.sagepub.com/doi/10.1177/...

How did hospices offer social support to people with life-limiting illness?
We carried out a survey to understand what activities were involved, in which settings, to what aims. The survey documents hospice activity before the turbulence of 2020:
bmcpalliatcare.biomedcentral.com/articles/10....