How I’m surviving being back on my feeding tube and slowly increasing my rate. #pawpatrol #EDS #gastroparesis #tubie
December 19, 2024 at 2:20 AM
How I’m surviving being back on my feeding tube and slowly increasing my rate. #pawpatrol #EDS #gastroparesis #tubie
I’ve gotten a whole carton of formula in my feeding tube today so far! #bigwin #gastroparesis #EDS #feedingtube #tubie
December 18, 2024 at 8:43 PM
I’ve gotten a whole carton of formula in my feeding tube today so far! #bigwin #gastroparesis #EDS #feedingtube #tubie
I called BCBS today about getting my feeding tube supplies covered. I was not allowed to speak to anybody until I downloaded their app. #extortion #EDS #gastroparesis #chronicillness #Feedingtube #medicareforall
December 11, 2024 at 11:25 PM
I called BCBS today about getting my feeding tube supplies covered. I was not allowed to speak to anybody until I downloaded their app. #extortion #EDS #gastroparesis #chronicillness #Feedingtube #medicareforall
When you lose your maternity pillow to your dogs. #EDS #disability #chronicillness #POTS #MCAS #chihuahuas
December 8, 2024 at 8:21 PM
When you lose your maternity pillow to your dogs. #EDS #disability #chronicillness #POTS #MCAS #chihuahuas
This man. Love him.
December 8, 2024 at 6:27 AM
This man. Love him.
BCBS state employees plan in SC does not cover a pump for an nj tube (pushing directly into the jejunum can cause issues), nor do they cover feeding tube formula. #tubies #EDS #gastroparesis #BCBS #UHC #feedingtubes #katesfarm #Nestle #chronicillness #disability #Enfit
December 7, 2024 at 1:01 AM
BCBS state employees plan in SC does not cover a pump for an nj tube (pushing directly into the jejunum can cause issues), nor do they cover feeding tube formula. #tubies #EDS #gastroparesis #BCBS #UHC #feedingtubes #katesfarm #Nestle #chronicillness #disability #Enfit
I’m gonna need ALL media outlets to please stop sending me an alert every single time Mango Mussolini names a new “cabinet member.” It’s starting to feel way too much like The Hunger Games. #theoddsarenotinourfavor #jumpscare #livingindenial #project2025
November 20, 2024 at 5:40 AM
I’m gonna need ALL media outlets to please stop sending me an alert every single time Mango Mussolini names a new “cabinet member.” It’s starting to feel way too much like The Hunger Games. #theoddsarenotinourfavor #jumpscare #livingindenial #project2025
I’m tired of being tired. Keeping up with syringes for bolus tube feeds has me feeling like a newborn parent again. #eds #gastroparesis #tubies #spoonies #MCAS #POTS #hypokalemia #chronicillness #disability
November 19, 2024 at 10:52 PM
I’m tired of being tired. Keeping up with syringes for bolus tube feeds has me feeling like a newborn parent again. #eds #gastroparesis #tubies #spoonies #MCAS #POTS #hypokalemia #chronicillness #disability
Waiting for my tube feed to settle, so, killing some time with nonsense. I'm #disabled from #eds, but here's my current pretend resume. #MCAS #POTS #gastroparesis #spoonies #tubies #chronicillness #sothissucks
November 19, 2024 at 9:07 AM
Waiting for my tube feed to settle, so, killing some time with nonsense. I'm #disabled from #eds, but here's my current pretend resume. #MCAS #POTS #gastroparesis #spoonies #tubies #chronicillness #sothissucks
@rarediseasemom.bsky.social Can you help us find our community?
November 17, 2024 at 5:50 AM
@rarediseasemom.bsky.social Can you help us find our community?
Looking for any new friends who have EDS, MCAS, POTS, gastroparesis, or water stuck in their ear because they washed their hair in the sink today.
November 15, 2024 at 9:30 AM
Looking for any new friends who have EDS, MCAS, POTS, gastroparesis, or water stuck in their ear because they washed their hair in the sink today.