Helena McCabe
miracleformax.bsky.social
Helena McCabe
@miracleformax.bsky.social
Mom, wife, non-profit CEO, artist, content creator, idealist ideator

www.MiracleForMax.com
www.TBCDfoundation.org

TikTok: @miracleformax ☑️
Instagram: @miracle_for_max
Facebook: A Miracle for Max
I've had my Solgaard suitcase for two years. The case was cracked in transit this week.

Not only did they honor their lifetime guarantee and immediately replace it, but they encouraged me to donate the original one to foster care instead of sending it back.

THAT'S how you do it. 👏🏼

#goodbusiness
February 18, 2025 at 12:12 AM
February 14, 2025 at 3:13 PM
Drop-off votes on swing and non-swing states.

Something smells fishy.

Full study data available: smartelections.us/dropoff

#election #2024election #investigatethevote
January 25, 2025 at 8:49 PM
Verify the vote! We either dispel suspicion or we uncover election interference.

- The data is suspicious.
- Dominion passwords were publicly available
- Software for flipping votes and obscuring the action was found online.

INVESTIGATE THIS!

smartelections.us/2024-electio...
SMART Elections
#ElectionProtection
smartelections.us
January 25, 2025 at 4:00 PM
Why is only Newsweek covering this? This should be front page news on every media outlet. Cowards. #votetampering #voteanomalies #rigged

www.newsweek.com/democrats-vo...
Democrat urges probe into Trump's "vote counting computers" comment
The remark prompted some opponents of the president to speculate if he was admitting to rigging the election.
www.newsweek.com
January 25, 2025 at 3:47 PM
The silence is deafening as one of the only beacons of hope in the rare disease world was stripped from the spending bill at the last minute. The news isn't even covering it.

Why doesn't anyone care about these kids?

rarediseases.org/es/rare-pedi...

#raredisease #disability #science #spendingbill
Congress: Reauthorize the Rare Pediatric Disease Priority Review Voucher Program - National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD) released a new report showing the undeniable effectiveness of the Rare Pediatric Disease Priority Review
rarediseases.org
December 23, 2024 at 3:47 AM
With apologies to Allayn Stevens. ❤️ #repaint #thriftedpaintingadditions #art #disneyadult
December 23, 2024 at 1:50 AM
The guys at the Brazilian barbershop in my neighborhood speak little English, and I speak almost no Portuguese.

What speaks louder than the words of any language is that they're always incredibly patient with and kind to my son (and his hair always looks AMAZING).

#meltingpot #blendedcommunities
December 22, 2024 at 11:44 PM
Insisting that immigrants learn your language to be accepted in the community when we all have Google Translate in our pocket feels like such an excessive demand to me.

"Learn a whole new language so I don't have to bother to take my magic free Babel fish box out of my pocket" 😂 C'mon
December 22, 2024 at 11:36 PM
I shared my family's story with the #healthinsurance industry on #Instagram, where it went viral.

My account was SWARMED with malicious bots, then hacked. #Meta took down my entire platform dedicated to curing a #raredisease

Cyber warfare against people speaking out is dystopian and terrifying.
December 22, 2024 at 7:49 PM
To cut a critical lifeline to one of our most vulnerable populations was UNCONSCIONABLE.

The Rare Disease Priority Voucher Program was one of the only financial incentives for pharma to work on cures for small patient pt populations.

If we're banking on benevolence, we're SOL. #spendingbill #rare
December 22, 2024 at 7:19 PM
While everyone's busy speculating about #drones, the Senate cut the Rare Disease Priority Review Voucher program from the budget.

Let's not mince words: this is a death sentence for kids with rare diseases who could have seen treatments.

#disability #raredisease #shutdown #spendingbill #RPDPRV
December 22, 2024 at 7:06 PM
Are the "experts" in the room with us now...? #healthcare
December 22, 2024 at 3:28 AM
Reposted by Helena McCabe
I bet the one thing all the experts agree on is that neither of these clowns should be remotely involved in matters of public health
December 22, 2024 at 2:01 AM
Bluesky and TikTok are now my only platforms, but I will NOT be silenced. Our story is worth telling, and I will keep telling it. Story in 3 parts in the thread. PLEASE help share our story.

#healthinsurance #censorship #luigi #ushealthcare #healthcareisahumanright #meta
December 22, 2024 at 12:45 AM
Today I went to log in to my Facebook to discover that ALL of my Meta accounts are deactivated. My personal Facebook I've had for almost 20 years with all of my photos and memories, the page for the 501c3 I run, and my fundraising and advocacy page for my son Max. No appeal, no explanation. #meta
December 19, 2024 at 11:33 PM
Oh...that's not good.
------
The model made a covert attempt to turn off the oversight mechanism, and once tried to escape by moving all its data to a new server after discovering paperwork indicating it will be replaced.

When asked about its actions, it was adept at lying to cover its tracks.
ChatGPT caught lying to developers: New AI model tries to save itself from being replaced and shut down - The Economic Times
OpenAI's latest AI model, ChatGPT o1, has raised significant concerns after recent testing revealed its ability to deceive researchers and attempt to bypass shutdown commands. During an experiment by ...
m.economictimes.com
December 13, 2024 at 8:56 AM
The money is the least of what these insurance companies have stolen from us. What is so much worse is that they steal my time with my kid. The average lifespan of a kid with TBCD is 3-5 years. My son Max is 4.

#healthcrisis #UShealthcare #healthinsurance #socializehealthcare
December 13, 2024 at 2:38 AM