It's so illogical and dangerous that even after seeing a virus kill tens of millions and disable many more, a majority of people still haven't adapted by making the most simple adjustments to their lives like wearing a mask or staying home when they are sick.

I'm just dipping my toe in here. I'm terrible with technology, so every new thing is a challenge. For my first post, I figured I'd offer a link to Berkeley's current crowdfunding campaign for Trial By Error, which focused on ME/CFS, long Covid, etc:
virology.ws/2023/11/16/t...

ME är inte primärt trötthet utan en influensaliknande reaktion på belastning.

funkisfeministen.wordpress.com/2023/11/16/j...

We are excited to announce that #MEpedia has gotten a complete overhaul courtesy of a generous grant! We've updated our software, staging, graphics, & design-- which got an accessibility audit, too!

Visit the new MEpedia: me-pedia.org/wiki/Welcome...

Learn more: www.meaction.net/2023/11/15/c...

Testimony #9

Hear Litsa Dremousis uninterrupted testimony of her 32+ year journey living with #MyalgicEncephalomyelitis

Listen 🔊 sptfy.com/Pj2k

Don't just pass on by, PLEASE *share* her important story ❤️

#millionsmissing #pwme #Cancer

More info in comments ⬇️

As part of this year’s Triple Giving November campaign, we are honored to introduce Sammy Lincroft, a dedicated advocate for chronic illnesses and OMF Supporter! Discover Sammy’s powerful story 👉 www.omf.ngo/Sammys-story.

Tomorrow 8pm (CET)

Testimony #9 - Litsa Dremousis shares her M.E. journey of 32+ years

PLEASE SHARE ❤️

For posterity, for a first hand account of our fates and for not letting them quietly sweep us under the rug

#MillionsMissing #pwme #MyalgicEncephalomyelitis

Linktr.ee/millionsmissingpodcast

He was 32, a new father, when he got the ALS diagnosis — and made a choice.

“He made himself a force,” said a close ally. “It really all came down to nobody can bullshit a guy who’s dying.”

ADY BARKAN, activist who fought for universal health care, passes away at 39. Our piece.

Dear fellow #pwME #MECFS #ME #MyalgicEncephalomyelitis #LongCovid, one of the most powerful/informative vids I know is now available on Youtube. @dialoguesmecfs.bsky.social created this extraordinary documentary on the history of #ME #MECFS. Essential info for advocates and researchers in our field.

I'm selling my skis today — it's a concrete admission that I will never ski again.

I loved skiing. I've skied all over the US: I did the back bowls of Vail at 5yo. I've scored well in Nastar races on former Olympic courses. I even mastered the east coast ice fields.

Fuck #MEcfs.

Let’s start a thread of awesome follows on here that relate to #MyalgicEncephalomyelitis #MECFS #LongCovid or #InfectionAssociatedChronicIllnesses.

Because it is hard to rebuild community on a new platform…but doing it as a #PwME…nearly impossible.

Let’s help each other with safe suggestions.

Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...

Testimony #8 @millionsmissingpod.bsky.social

Almost 10 years in 13 minutes.
When will our stories finally be heard?

#MEcfs #Lyme #FQAD #MCAS #CCI #POTS #SmallFiber #LongList

🎧 podcasts.apple.com/se/podcast/m...

Thank you for given me that opportunity. If you can, please do so. #TellYourStory 🙏

It is vital that you share your story; your testimony has a critical role in advocating for further exposure, better funded research and to inspire others to share theirs ❤️

Listen to and share the testimonies linktr.ee/millionsmissingpodcast

Contact millionsmissingpodcast@gmail.com

So nice to see so many community members have found us here already! For anyone new to us- we are #MEAction, a US-based non-profit, igniting a global revolution in ME care.

ME= myalgic encephalomyelitis aka ME/CFS

Learn more at meaction.net.

#pwME #MECFS #MyalgicEncephalomyelitis #LongCovid