Michael Ben-Yehuda
@michaelb-y.bsky.social
Global availability of
'Smart People for Smart People'
#Scientist #Researcher
#Disability
#Resist #Ukraine🇺🇦 #MaskUp #Vaccinate
'Smart People for Smart People'
#Scientist #Researcher
#Disability
#Resist #Ukraine🇺🇦 #MaskUp #Vaccinate
On Facebook there are a few RYR1 support groups.
Search RYR1 or RYR-1
Also check out ryr1.org
The ryr1 foundation. Huge amount of information and they are organizing a lot of research.
There is good stuff coming with excellent prospects for effective treatment. Google "Rycals" Stay Strong!
Search RYR1 or RYR-1
Also check out ryr1.org
The ryr1 foundation. Huge amount of information and they are organizing a lot of research.
There is good stuff coming with excellent prospects for effective treatment. Google "Rycals" Stay Strong!
Home - ryr1.org
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ryr1.org
May 23, 2025 at 12:04 PM
On Facebook there are a few RYR1 support groups.
Search RYR1 or RYR-1
Also check out ryr1.org
The ryr1 foundation. Huge amount of information and they are organizing a lot of research.
There is good stuff coming with excellent prospects for effective treatment. Google "Rycals" Stay Strong!
Search RYR1 or RYR-1
Also check out ryr1.org
The ryr1 foundation. Huge amount of information and they are organizing a lot of research.
There is good stuff coming with excellent prospects for effective treatment. Google "Rycals" Stay Strong!
We are in southern California.
Yes, you are very lucky to have a good doctor who kept digging for answers! It's been an ongoing difficulty here to get the genetic testing and be taken seriously. Over 10 years and still doing battle with doctors! If you're on fa
Yes, you are very lucky to have a good doctor who kept digging for answers! It's been an ongoing difficulty here to get the genetic testing and be taken seriously. Over 10 years and still doing battle with doctors! If you're on fa
May 23, 2025 at 12:04 PM
We are in southern California.
Yes, you are very lucky to have a good doctor who kept digging for answers! It's been an ongoing difficulty here to get the genetic testing and be taken seriously. Over 10 years and still doing battle with doctors! If you're on fa
Yes, you are very lucky to have a good doctor who kept digging for answers! It's been an ongoing difficulty here to get the genetic testing and be taken seriously. Over 10 years and still doing battle with doctors! If you're on fa
Hi you are not alone. My spouse has Ryr1 and is in constant debilitating pain.
No one can understand what that's like unless they've experienced it and that's just the start of the impact
No one can understand what that's like unless they've experienced it and that's just the start of the impact
May 23, 2025 at 10:05 AM
Hi you are not alone. My spouse has Ryr1 and is in constant debilitating pain.
No one can understand what that's like unless they've experienced it and that's just the start of the impact
No one can understand what that's like unless they've experienced it and that's just the start of the impact