ME Physio
@mephysio.bsky.social
UK 42 year old mum of preteen, had ME since early 20’s and I am a Specialist ME Physiotherapist www.mephysio.org.uk
My son has had surgery so we are both lying low and enjoying Christmas films ❤️
December 10, 2024 at 6:03 PM
My son has had surgery so we are both lying low and enjoying Christmas films ❤️
Reposted by ME Physio
ME Research UK:
Immune exhaustion is a state in which the immune system becomes less effective over time. It is a topic that has been garnering increasing attention in ME/CFS research.
Read about a recent study exploring immune exhaustion in ME/CFS & #longCOVID - bit.ly/3Z3ISgt
#MEcfs #PwME #CFS
Immune exhaustion is a state in which the immune system becomes less effective over time. It is a topic that has been garnering increasing attention in ME/CFS research.
Read about a recent study exploring immune exhaustion in ME/CFS & #longCOVID - bit.ly/3Z3ISgt
#MEcfs #PwME #CFS
December 3, 2024 at 2:46 PM
ME Research UK:
Immune exhaustion is a state in which the immune system becomes less effective over time. It is a topic that has been garnering increasing attention in ME/CFS research.
Read about a recent study exploring immune exhaustion in ME/CFS & #longCOVID - bit.ly/3Z3ISgt
#MEcfs #PwME #CFS
Immune exhaustion is a state in which the immune system becomes less effective over time. It is a topic that has been garnering increasing attention in ME/CFS research.
Read about a recent study exploring immune exhaustion in ME/CFS & #longCOVID - bit.ly/3Z3ISgt
#MEcfs #PwME #CFS
So true! Genuinely look like the third one today 🤣
December 2, 2024 at 6:23 PM
So true! Genuinely look like the third one today 🤣
Just been out in my wheelchair to the shop- part of my pacing after having Covid a couple of months back. My husband said how great it was to be able to be out with me. Definite gamechanger for me #pwME
November 28, 2024 at 8:01 PM
Just been out in my wheelchair to the shop- part of my pacing after having Covid a couple of months back. My husband said how great it was to be able to be out with me. Definite gamechanger for me #pwME
ME community - I’m updating my website & I’m going to put free resources on there about pacing etc as I want to give back
If you were looking at physiotherapy for ME - what would be your FAQ’s? Or what resources would you like access to?
#pwME #myalgicencephalomyelitis #mecfs #spoonie
If you were looking at physiotherapy for ME - what would be your FAQ’s? Or what resources would you like access to?
#pwME #myalgicencephalomyelitis #mecfs #spoonie
November 28, 2024 at 1:08 PM
ME community - I’m updating my website & I’m going to put free resources on there about pacing etc as I want to give back
If you were looking at physiotherapy for ME - what would be your FAQ’s? Or what resources would you like access to?
#pwME #myalgicencephalomyelitis #mecfs #spoonie
If you were looking at physiotherapy for ME - what would be your FAQ’s? Or what resources would you like access to?
#pwME #myalgicencephalomyelitis #mecfs #spoonie
Reposted by ME Physio
'Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal'
Article by Prof Chris Ponting, in The Conversation
Read the full article 👇
theconversation.com/ignored-blam...
#pwME #MECFS #MyalgicE #Covid #longCovid
Article by Prof Chris Ponting, in The Conversation
Read the full article 👇
theconversation.com/ignored-blam...
#pwME #MECFS #MyalgicE #Covid #longCovid
November 28, 2024 at 9:44 AM
'Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal'
Article by Prof Chris Ponting, in The Conversation
Read the full article 👇
theconversation.com/ignored-blam...
#pwME #MECFS #MyalgicE #Covid #longCovid
Article by Prof Chris Ponting, in The Conversation
Read the full article 👇
theconversation.com/ignored-blam...
#pwME #MECFS #MyalgicE #Covid #longCovid
When you’re trying to sleep but your husband is snoring so loudly you can’t even hear your audio book 🙄
November 28, 2024 at 12:38 AM
When you’re trying to sleep but your husband is snoring so loudly you can’t even hear your audio book 🙄
Great to see @actionforme.bsky.social here on BlueSky
November 27, 2024 at 2:46 PM
Great to see @actionforme.bsky.social here on BlueSky
Or you can be a combination, and that is just fine too
November 26, 2024 at 11:04 AM
Or you can be a combination, and that is just fine too
Do I prefer health homemade meals? Yes
Do I always have capacity?
No
Sometimes pacing can look like this. And I don’t beat myself up for it either ❤️
#pwME
Do I always have capacity?
No
Sometimes pacing can look like this. And I don’t beat myself up for it either ❤️
#pwME
November 25, 2024 at 5:26 PM
Do I prefer health homemade meals? Yes
Do I always have capacity?
No
Sometimes pacing can look like this. And I don’t beat myself up for it either ❤️
#pwME
Do I always have capacity?
No
Sometimes pacing can look like this. And I don’t beat myself up for it either ❤️
#pwME
Two to-do lists written and prioritised for the week 💪🏼
One for work and one for home. Highlighted with low, medium and high intensity activity to help with pacing.
Have you got a system? #peME #mecfs #chronicillness #spoonie
One for work and one for home. Highlighted with low, medium and high intensity activity to help with pacing.
Have you got a system? #peME #mecfs #chronicillness #spoonie
November 25, 2024 at 9:07 AM
Two to-do lists written and prioritised for the week 💪🏼
One for work and one for home. Highlighted with low, medium and high intensity activity to help with pacing.
Have you got a system? #peME #mecfs #chronicillness #spoonie
One for work and one for home. Highlighted with low, medium and high intensity activity to help with pacing.
Have you got a system? #peME #mecfs #chronicillness #spoonie
November 23, 2024 at 11:20 PM
Having a poorly child today and being up in the night means literally one job on my days to do list has been done. That’s ok. It’s not a race and pacing takes priority as I can’t help my son if I’m in a PEM crash
#slowliving #mumlife #pwME
#slowliving #mumlife #pwME
November 21, 2024 at 6:01 PM
Having a poorly child today and being up in the night means literally one job on my days to do list has been done. That’s ok. It’s not a race and pacing takes priority as I can’t help my son if I’m in a PEM crash
#slowliving #mumlife #pwME
#slowliving #mumlife #pwME
Spanner in the works - up in the night with poorly child (12) and then run around getting medical appointments and logistics etc. Thank goodness it’s nearly the end of the week! I’m a Celeb and straight to bed for me tonight #guiltypleasure #imaceleb #boymum #pwME
November 21, 2024 at 2:23 PM
Spanner in the works - up in the night with poorly child (12) and then run around getting medical appointments and logistics etc. Thank goodness it’s nearly the end of the week! I’m a Celeb and straight to bed for me tonight #guiltypleasure #imaceleb #boymum #pwME
I attended a great seminar on Severe/Very Severe ME this evening - really opened my eyes on how much can be done to support nutrition, especially so if the need is picked up early. Anoter thing i can help my patients with signposting to appropriate sevices
November 20, 2024 at 7:48 PM
I attended a great seminar on Severe/Very Severe ME this evening - really opened my eyes on how much can be done to support nutrition, especially so if the need is picked up early. Anoter thing i can help my patients with signposting to appropriate sevices
Payback time for me after attending an event yesterday - lots of rest, hydration and not beating myself up for it! The pre emptive energy banking before the event has definitely reduced the PEM today though ❤️ #pwME
November 17, 2024 at 9:21 PM
Payback time for me after attending an event yesterday - lots of rest, hydration and not beating myself up for it! The pre emptive energy banking before the event has definitely reduced the PEM today though ❤️ #pwME
Ok, I’m still getting my head around this platform - can anyone kindly tell me how I see the comments on people’s posts please?
November 15, 2024 at 6:42 PM
Ok, I’m still getting my head around this platform - can anyone kindly tell me how I see the comments on people’s posts please?
Preemptive pacing for m for an event to tomorrow evening.
For me that involves looks reclined rest, eyes closed listening to an audiobook (limiting sensory input through my eyes), good sleep hygiene and nutrition and some YouTube guided sleep meditation before bed.
#pwME
What’s your best tip?
For me that involves looks reclined rest, eyes closed listening to an audiobook (limiting sensory input through my eyes), good sleep hygiene and nutrition and some YouTube guided sleep meditation before bed.
#pwME
What’s your best tip?
November 15, 2024 at 10:56 AM
Preemptive pacing for m for an event to tomorrow evening.
For me that involves looks reclined rest, eyes closed listening to an audiobook (limiting sensory input through my eyes), good sleep hygiene and nutrition and some YouTube guided sleep meditation before bed.
#pwME
What’s your best tip?
For me that involves looks reclined rest, eyes closed listening to an audiobook (limiting sensory input through my eyes), good sleep hygiene and nutrition and some YouTube guided sleep meditation before bed.
#pwME
What’s your best tip?
Change in the weather and air pressure gives us that seasonal slide. Im thinking i might do a bit of a pacing/baseline challenge on here in the run up to December to help us all if anyone would like to join me?
Comic by Wonky Cat - I changed the words a bit for chronic illness
#chronicillness #chronicallyill #chronicillnessmemes
#chronicillness #chronicallyill #chronicillnessmemes
November 14, 2024 at 1:06 PM
Change in the weather and air pressure gives us that seasonal slide. Im thinking i might do a bit of a pacing/baseline challenge on here in the run up to December to help us all if anyone would like to join me?