meg’s malaise
@megclems.bsky.social
she/her
Long COVID since 7/2020 with a side of ME + Dysautonomia
Let’s talk Sociology, Ethnic Studies, Knitting, Writing, Drag Race & Dragula 🤍
Long COVID since 7/2020 with a side of ME + Dysautonomia
Let’s talk Sociology, Ethnic Studies, Knitting, Writing, Drag Race & Dragula 🤍
Pinned
meg’s malaise
@megclems.bsky.social
· Aug 6
As always, my heart is with people who have long COVID, ME/CFS, Dysautonomia, MCAS, etc.
Sending lots of love to everyone who’s suffering, LC community and beyond 🩵🩵🩵
I hope for every person punching down on you, there are a dozen lifting you up 🥺
Sending lots of love to everyone who’s suffering, LC community and beyond 🩵🩵🩵
I hope for every person punching down on you, there are a dozen lifting you up 🥺
It’s a good day to bring this one back it seems… Sending hugs to Disabled and Chronically Ill People, especially those of us who still mask to protect ourselves 🩶
You are NOT to blame for your own oppression
You are NOT to blame for your own oppression
Reposted by meg’s malaise
Sometimes I forget that normies don’t understand the “possible permanent decline” part. Yes, getting sick after basic tasks is terrible enough. But we want to LIVE. If we could assuredly recover we’d do ALL THE THINGS, get sick, recover & repeat. That alone would be life-changing. #MECFS #LongCovid
People with #MECFS, and many with #LongCOVID experience post-exertional malaise: a flare of symptoms after activity. The response is disproportionate to the activity and can lead to permanent drops in functional capacity.
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
November 21, 2025 at 4:31 PM
Sometimes I forget that normies don’t understand the “possible permanent decline” part. Yes, getting sick after basic tasks is terrible enough. But we want to LIVE. If we could assuredly recover we’d do ALL THE THINGS, get sick, recover & repeat. That alone would be life-changing. #MECFS #LongCovid
Reposted by meg’s malaise
"526 (14%) did not meet criteria for Long COVID at 3 months but had increasing symptoms by 15 months"
I thought I was "finally recovering" multiple times the first year, then got much worse in year 2 and have stayed there.
I thought I was "finally recovering" multiple times the first year, then got much worse in year 2 and have stayed there.
Nature: 'Long COVID trajectories in the prospectively followed RECOVER-Adult US cohort'
'Longitudinal trajectories of Long COVID remain ill-defined, yet are critically needed to advance clinical trials, patient care & public health initiatives for millions..'
www.nature.com/articles/s41...
'Longitudinal trajectories of Long COVID remain ill-defined, yet are critically needed to advance clinical trials, patient care & public health initiatives for millions..'
www.nature.com/articles/s41...
Long COVID trajectories in the prospectively followed RECOVER-Adult US cohort - Nature Communications
Long COVID has heterogeneous presentation and clinical trajectories are not well defined. Here, the authors define trajectories using data from a prospective cohort study in the United States involvin...
www.nature.com
November 17, 2025 at 6:28 PM
"526 (14%) did not meet criteria for Long COVID at 3 months but had increasing symptoms by 15 months"
I thought I was "finally recovering" multiple times the first year, then got much worse in year 2 and have stayed there.
I thought I was "finally recovering" multiple times the first year, then got much worse in year 2 and have stayed there.
Reposted by meg’s malaise
i can’t believe a good thing happened we should do this more often
November 5, 2025 at 2:26 AM
i can’t believe a good thing happened we should do this more often
Reposted by meg’s malaise
The landscape of this country would be entirely different if the Reconstruction Era electoral wins secured by newly freed Black folks had never been stifled by lynchings and pogroms.
The violence now, after decades of wins for queer, trans, Black, Brown, disabled, and migrant folks, same energy.
The violence now, after decades of wins for queer, trans, Black, Brown, disabled, and migrant folks, same energy.
October 4, 2025 at 1:05 PM
The landscape of this country would be entirely different if the Reconstruction Era electoral wins secured by newly freed Black folks had never been stifled by lynchings and pogroms.
The violence now, after decades of wins for queer, trans, Black, Brown, disabled, and migrant folks, same energy.
The violence now, after decades of wins for queer, trans, Black, Brown, disabled, and migrant folks, same energy.
Reposted by meg’s malaise
People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏
September 27, 2025 at 8:23 PM
People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏
Reposted by meg’s malaise
Reposted by meg’s malaise
Great to see a UK GP writing a BMJ e-letter like this:
"Research must consider Post Exertional Malaise as a neurological event underpinning fluctuating cognitive dysfunction in Long Covid"
www.bmj.com/content/390/...
#PEM #LongCovid
"Research must consider Post Exertional Malaise as a neurological event underpinning fluctuating cognitive dysfunction in Long Covid"
www.bmj.com/content/390/...
#PEM #LongCovid
September 10, 2025 at 11:57 PM
Great to see a UK GP writing a BMJ e-letter like this:
"Research must consider Post Exertional Malaise as a neurological event underpinning fluctuating cognitive dysfunction in Long Covid"
www.bmj.com/content/390/...
#PEM #LongCovid
"Research must consider Post Exertional Malaise as a neurological event underpinning fluctuating cognitive dysfunction in Long Covid"
www.bmj.com/content/390/...
#PEM #LongCovid
Reposted by meg’s malaise
It’s an absolute shame that DC fired Gretchen Felker- Martin for exercising free speech and then @bsky.app suspended her account. Every writer here should be decrying this because we have to stand up for each other! This is ridiculous.
September 11, 2025 at 5:43 PM
It’s an absolute shame that DC fired Gretchen Felker- Martin for exercising free speech and then @bsky.app suspended her account. Every writer here should be decrying this because we have to stand up for each other! This is ridiculous.
Reposted by meg’s malaise
I don't mourn white supremacists
September 11, 2025 at 12:50 AM
I don't mourn white supremacists
Reposted by meg’s malaise
Thinking more about the quiet violence & deaths than the loud ones 💙🕯️
September 11, 2025 at 2:53 AM
Thinking more about the quiet violence & deaths than the loud ones 💙🕯️
Reposted by meg’s malaise
The MSNBC commentator saying that most political violence has historically come from the left just once again showed how we suffer from failing to learn history. Lynching, pogroms, race riots, the political violence that ended Reconstruction, and against the Civil Rights Movement. Come on.
September 10, 2025 at 7:36 PM
The MSNBC commentator saying that most political violence has historically come from the left just once again showed how we suffer from failing to learn history. Lynching, pogroms, race riots, the political violence that ended Reconstruction, and against the Civil Rights Movement. Come on.
Reposted by meg’s malaise
Two students & the shooter are in critical condition after a shooting at Evergreen High School in Evergreen, Colorado. The shooting happened outside the school.
This is the 47th shooting that took place at a school in the US so far this year 23 were on K-12 school grounds
www.cnn.com/2025/09/10/u...
This is the 47th shooting that took place at a school in the US so far this year 23 were on K-12 school grounds
www.cnn.com/2025/09/10/u...
At least 2 students injured after shooting at a Denver-area high school, officials say | CNN
At least two students are in critical condition after a shooting at Evergreen High School in Evergreen, Colorado, where more than 100 law enforcement officers cleared the school “room by room” as it w...
www.cnn.com
September 10, 2025 at 10:17 PM
Two students & the shooter are in critical condition after a shooting at Evergreen High School in Evergreen, Colorado. The shooting happened outside the school.
This is the 47th shooting that took place at a school in the US so far this year 23 were on K-12 school grounds
www.cnn.com/2025/09/10/u...
This is the 47th shooting that took place at a school in the US so far this year 23 were on K-12 school grounds
www.cnn.com/2025/09/10/u...
Reposted by meg’s malaise
Save any empathy you were about to give Charlie Kirk, the TPUSA founder, double it, and send it towards Evergreen High School instead.
Three kids in critical condition….
www.cbsnews.com/colorado/new...
Three kids in critical condition….
www.cbsnews.com/colorado/new...
Shooting at Evergreen High School in Colorado leaves several students hurt; suspect among those injured
Three students were critically wounded on Wednesday in a shooting at Evergreen High School in the Colorado foothills. The Jefferson County Sheriff's Office says one of those students is the shooting s...
www.cbsnews.com
September 10, 2025 at 10:06 PM
Save any empathy you were about to give Charlie Kirk, the TPUSA founder, double it, and send it towards Evergreen High School instead.
Three kids in critical condition….
www.cbsnews.com/colorado/new...
Three kids in critical condition….
www.cbsnews.com/colorado/new...
Reposted by meg’s malaise
Three high schoolers, who likely didn't make a career out of enabling and encouraging fascism, were shot in Colorado today.
September 10, 2025 at 9:13 PM
Three high schoolers, who likely didn't make a career out of enabling and encouraging fascism, were shot in Colorado today.
Reposted by meg’s malaise
Michael Peluso slide from the RECOVER-TLC conference today.
ADRD = "Alzheimer's Disease and Related Dementias"
As someone affected, I am actually relieved to hear someone be straight about this: Long Covid "brain fog" is dementia. Enough soft-pedaling; it's a crisis.
ADRD = "Alzheimer's Disease and Related Dementias"
As someone affected, I am actually relieved to hear someone be straight about this: Long Covid "brain fog" is dementia. Enough soft-pedaling; it's a crisis.
September 9, 2025 at 6:49 PM
Michael Peluso slide from the RECOVER-TLC conference today.
ADRD = "Alzheimer's Disease and Related Dementias"
As someone affected, I am actually relieved to hear someone be straight about this: Long Covid "brain fog" is dementia. Enough soft-pedaling; it's a crisis.
ADRD = "Alzheimer's Disease and Related Dementias"
As someone affected, I am actually relieved to hear someone be straight about this: Long Covid "brain fog" is dementia. Enough soft-pedaling; it's a crisis.
Reposted by meg’s malaise
people are always telling me that we just have to wait for olds to die off & then everything will be fine.
i usually respond with, "the woman who lied about emmett till whistling & got him lynched was 21. the murderers were 24 & 35. there's more to do than wait.”
there will always be hitler youth.
i usually respond with, "the woman who lied about emmett till whistling & got him lynched was 21. the murderers were 24 & 35. there's more to do than wait.”
there will always be hitler youth.
Video from Texas State Rep. Brian Harrison X acct. Student secretly records her convo with the prof.
"I'm not entirely sure this is legal to be teaching. ...according to our president, um, there's only two genders. ...I don't want to promote something that is, um, against our president's laws."
"I'm not entirely sure this is legal to be teaching. ...according to our president, um, there's only two genders. ...I don't want to promote something that is, um, against our president's laws."
September 9, 2025 at 5:16 PM
people are always telling me that we just have to wait for olds to die off & then everything will be fine.
i usually respond with, "the woman who lied about emmett till whistling & got him lynched was 21. the murderers were 24 & 35. there's more to do than wait.”
there will always be hitler youth.
i usually respond with, "the woman who lied about emmett till whistling & got him lynched was 21. the murderers were 24 & 35. there's more to do than wait.”
there will always be hitler youth.
Reposted by meg’s malaise
Need this to get national attention, this is such a massive victory for people in Atlanta.
ATLANTA (AP) — Judge says he'll toss the racketeering case against 61 people tied to protests over a training center called “Cop City.”
September 9, 2025 at 5:25 PM
Need this to get national attention, this is such a massive victory for people in Atlanta.
Reposted by meg’s malaise
Living with severe #MECFS often means being bedbound. One community member shares practical tips, like bedside setups & sensory relief, to make daily life more manageable. 💙 Read more: buff.ly/nkcCa5r
August 30, 2025 at 5:15 PM
Living with severe #MECFS often means being bedbound. One community member shares practical tips, like bedside setups & sensory relief, to make daily life more manageable. 💙 Read more: buff.ly/nkcCa5r
Reposted by meg’s malaise
It's hard to feel hopeful about us defeating fascism when a bunch of liberals with large accounts on this site waste time punching down on disabled folks, minimizing Covid & chronic illness.
Fascism starts with normalizing eugenics
Fascism starts with normalizing eugenics
September 6, 2025 at 4:56 AM
It's hard to feel hopeful about us defeating fascism when a bunch of liberals with large accounts on this site waste time punching down on disabled folks, minimizing Covid & chronic illness.
Fascism starts with normalizing eugenics
Fascism starts with normalizing eugenics
Reposted by meg’s malaise
Working on a story for @thesicktimes.org about the quality, utility, and risks of exercise trials in Long COVID (and how often they mention/measure PEM). Looking to speak with anyone that's participated in these trials and experienced PEM/other negative side effects as a result.
September 5, 2025 at 7:26 PM
Working on a story for @thesicktimes.org about the quality, utility, and risks of exercise trials in Long COVID (and how often they mention/measure PEM). Looking to speak with anyone that's participated in these trials and experienced PEM/other negative side effects as a result.
Reposted by meg’s malaise
One of the most annoying things about having Long Covid is that people who see me infrequently ALWAYS ask if I’m better when they do see me.
And like… No 😀 I am chronically ill 😀 chronic means it doesn’t go away 😀 there is no treatment or cure 😀 I’m tired of doing this 😀
And like… No 😀 I am chronically ill 😀 chronic means it doesn’t go away 😀 there is no treatment or cure 😀 I’m tired of doing this 😀
September 4, 2025 at 11:00 PM
One of the most annoying things about having Long Covid is that people who see me infrequently ALWAYS ask if I’m better when they do see me.
And like… No 😀 I am chronically ill 😀 chronic means it doesn’t go away 😀 there is no treatment or cure 😀 I’m tired of doing this 😀
And like… No 😀 I am chronically ill 😀 chronic means it doesn’t go away 😀 there is no treatment or cure 😀 I’m tired of doing this 😀
Reposted by meg’s malaise
My perspective on Covid-19 vaccination as an “OG Long-Hauler” in the Long Covid community:
1) It was not a silver bullet, & other protective measures were dropped or ignored to the detriment of many ppl who continued to die from or become disabled by covid…
1) It was not a silver bullet, & other protective measures were dropped or ignored to the detriment of many ppl who continued to die from or become disabled by covid…
September 4, 2025 at 6:17 PM
My perspective on Covid-19 vaccination as an “OG Long-Hauler” in the Long Covid community:
1) It was not a silver bullet, & other protective measures were dropped or ignored to the detriment of many ppl who continued to die from or become disabled by covid…
1) It was not a silver bullet, & other protective measures were dropped or ignored to the detriment of many ppl who continued to die from or become disabled by covid…
Reposted by meg’s malaise
I wake up with long covid every day. Decisions about my leisure or work are now guided by disability. When I see doctors, I have to manage their level of ignorance about the illness. In public, I am ostracized, sometimes confronted for wearing a mask. None of this has anything to do with anxiety.
I think it's important that people who are this fanatical about how we are currently phrasing COVID discussion quit conflating their anxiety with reality.
My husband nearly died in March 2020 - 11 days in the hospital. It put a lot into perspective - and word choice policing isn't part of that.
My husband nearly died in March 2020 - 11 days in the hospital. It put a lot into perspective - and word choice policing isn't part of that.
September 4, 2025 at 5:21 PM
I wake up with long covid every day. Decisions about my leisure or work are now guided by disability. When I see doctors, I have to manage their level of ignorance about the illness. In public, I am ostracized, sometimes confronted for wearing a mask. None of this has anything to do with anxiety.
Reposted by meg’s malaise
Are acute Covid deaths down? Absolutely, and huzzah.
Are infections down? No.
Is long covid dropping? No.
Is it rising? Yes.
Is it curable? No.
Are excess deaths normal? No.
Are healthcare resources still strained? Yes.
Is vaccine uptake high? No.
Are waves still unpredictable? Yes.
Are infections down? No.
Is long covid dropping? No.
Is it rising? Yes.
Is it curable? No.
Are excess deaths normal? No.
Are healthcare resources still strained? Yes.
Is vaccine uptake high? No.
Are waves still unpredictable? Yes.
September 4, 2025 at 4:53 AM
Are acute Covid deaths down? Absolutely, and huzzah.
Are infections down? No.
Is long covid dropping? No.
Is it rising? Yes.
Is it curable? No.
Are excess deaths normal? No.
Are healthcare resources still strained? Yes.
Is vaccine uptake high? No.
Are waves still unpredictable? Yes.
Are infections down? No.
Is long covid dropping? No.
Is it rising? Yes.
Is it curable? No.
Are excess deaths normal? No.
Are healthcare resources still strained? Yes.
Is vaccine uptake high? No.
Are waves still unpredictable? Yes.