The final part is an explicit call to MPs, highlighting how people are being put into medical retirement, to fund research to gain some ability to provide meaningful care and therapies.

"We can't turn back time, but we can change the future". 🎯. Thank you @binitakane.bsky.social

Dr Kane calls for investment, but also easier use of off-label therapies on the NHS.

This would be a new policy for some ME organistions, and could be a really wellcome change. Should we wait for RCTs for every drug when there are people in such desperate circumstances?

I really appreciate how Dr Kane points out the harm that the psychological narratives have done.

Drawing parallels with other diseases is so valuable. we can learn so much from what others have done, and how those diseases are being overcome.

Excellent presentation made by Dr @binitakane.bsky.social
to the APPGs on ME and #LongCovid.

We are fortunate to have a Doctor who understands the problems, sees the need for change and can communicate so well.

Also some strong new thinking for #pwME.
(1 of 4 short vids)

Part 2 of Prof Chris Ponting's presentation to the UK APPGs on ME and Long Covid regarding the failure to fund research into ME and Long Covid, two devastating diseases affecting over 400,000 people in the UK.

Great presentation made by Prof Chris Ponting (@cgatist.bsky.social) to the UK APPGs on ME & Long Covid about the ongoing failure to fund research into ME.

UKRI is failing #pwME and #LongCovid
Time for Wes Streeting to step in: @tessamunt.bsky.social

Please share.

Pt2 in next post.