ME/CFS News
mecfsnews.bsky.social
ME/CFS News
@mecfsnews.bsky.social
News, interesting information and commentary on ME/CFS.
May 12 is ME/CFS Awareness Day. Speak with other people about ME/CFS today. Reject invisibility and stigma, build awarenesss and support.
May 12, 2024 at 9:23 AM
PrecisionLife, Action for ME, and the MRC Human Genetics Unit have been awarded an Advancing Precision Medicine grant by Innovate UK to improve diagnosis & treatment of ME/CFS and Long Covid. precisionlife.com/news-and-eve...
December 15, 2023 at 4:33 PM
DecodeME study needs more participants with ME/CFS in the UK. The more, the better. The recruitment will end in two weeks.

If you have been sent a spit kit but did not return it, please return it now.

Sign up here www.decodeme.org.uk/portal/
November 1, 2023 at 9:36 AM
Tomorrow the next ME/CFS Research Roadmap webinar will take place. The topic is metabolism in ME/CFS.

It's open to the public and attendees can participate in Q&A sessions. Register here event.roseliassociates.com/me-cfs-resea...
October 25, 2023 at 4:27 PM
Today the PolyBio research foundation will host a webinar on infection-associated chronic diseases. ME/CFS and Long Covid will be discussed.

It's open to the public. Join here polybio.org/polybio-fall...
October 20, 2023 at 7:11 AM
People With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Exhibit Similarly Impaired Vascular Function

www.amjmed.com/article/S000...
October 12, 2023 at 10:58 AM
The next ME/CFS Research Roadmap webinar will take place on October 19, 2023. This webinar will be about the immune system. Attendees can participate in Q&A sessions.

More details here event.roseliassociates.com/me-cfs-resea...

The previous webinar of the series was great.
September 30, 2023 at 6:24 AM
ME Action Network has created a website for the MillionsMissing.org movement.

There have been 16 MillionsMissing demonstrations since 2016, in hundreds of cities across the world. It is a global movement calling for justice for people with ME/CFS.
September 27, 2023 at 5:58 AM
Important: if you live in the UK are have been diagnosed with ME/CFS, then please participate in the DecodeME study.

More participants are needed to increase the confidence we can have in the findings.

www.decodeme.org.uk/portal/
September 19, 2023 at 1:15 PM
The German government is investing 15 million euros in ME/CFS research for the next three years. They emphasize the importance of research into ME/CFS since this is also the most debilitating and complex form of Long Covid.

x.com/BMBF_Bund/st...
September 12, 2023 at 11:43 AM