Andrea Fighting for #MECFS Diagnostic Biomarkers
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mecfsnanoneedle.bsky.social
Andrea Fighting for #MECFS Diagnostic Biomarkers
@mecfsnanoneedle.bsky.social
430 followers 610 following 60 posts
Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSDiagnosticBiomarkers

Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials.

https://mecfsdiagnosticbiomarkers.substack.com/
Posts Replies Media Videos
mecfsnanoneedle.bsky.social
10 minute out of 65 minute interview with CEO Linda Tannenbaum on the Make Visible Podcast transcribed .

#MECFS biomarkers and the OMF BioQuest Project to find a ME/CFS Biomarker Signature/Subsets is discussed.

mecfsdiagnosticbiomarkers.substack.com/p/make-visib...
Make Visible Podcast: July 14, 2025 Emily Kate Stephens interviews Linda Tannenbaum about OMF's BioQuest Large scale ME/CFS biomarker study CEO and Founder of Open Medicine Foundation. Leading Research. Delivering Hope. MECFSDIAGNOSTICBIOMARKERS.SUBSTACK.COM
July 14, 2025 at 11:43 PM
mecfsnanoneedle.bsky.social
mecfsdiagnosticbiomarkers.substack.com/p/replicated...

Replicated blood biomarkers for ME/CFS?
ME/CFS needs well-defined, quality cases stored in Biobanks

#MECFS #pwME #MillionsMissing #Biomarkers
Replicated Blood Biomarkers for ME/CFS? ME/CFS need well-defined, quality cases stored in Biobanks.
June 26, 2025 at 12:29 PM
mecfsnanoneedle.bsky.social
Today is Blue Sunday for #MECFS
Support #MECFS Biomarker projects directly.
Please donate to the largest ME/CFS Biomarker study
Help make a ME/CFS diagnostic test a reality
tinyurl.com/BlueOMFBioQu...
#pwME #MillionsMissing #BlueSunday
This Blue Sunday for ME/CFS Support ME/CFS Biomarker Projects Picture of blue and white teapot and cup and saucer Donate OMF BioQuest 1200 Samples (600 ME/CFS Samples) Analyzing 10,000 Proteins and Metabolites https://tinyurl.com/BlueOMFBioQuest
May 18, 2025 at 8:23 AM
mecfsnanoneedle.bsky.social
I have #SevereMECFS. I am bedridden. I can no longer speak.
I know that each day I am here because #Science ignores the biological and immunological underpinnings of disease in women.
Right now, I am watching a lecture series in Undergraduate Immunology by @bioprofbarker.bsky.social line by line.
"Every cell in a woman's body produces Xist," Chang said. "But for several decades, we've used a male cell line as the standard of reference. That male cell line produced no Xist and no Xist/protein/DNA complexes, nor have other cells used since for the test. So, all of a female patient's anti-Xist-complex antibodies - a huge source of women's autoimmune susceptibility - go unseen." Dr. Howard Chang, PhD, MD, Professor of Dermatology and of Genetics and a Howard Hughes Medical Institute investigator. https://med.stanford.edu/news/all-news/2024/02/women-autoimmune.html
February 28, 2025 at 1:32 AM
mecfsnanoneedle.bsky.social
The largest #MECFS Biomarker study - BioQuest
Patient selection will be based on the Canadian Consensus Criteria (CCC) and patients will be clinically diagnosed by physicians at Harvard and Uppsala.
Read More and Donate to BioQuest #Fundraising
mecfsdiagnosticbiomarkers.substack.com
OMF BioQuest #MECFS Patient Selection “The patients will be accessed using the Canadian Consensus Criteria and will have been diagnosed by physicians at Harvard Medical School and Uppsala University.” CEO of Open Medicine Foundation Linda Tannenbaum MECFSDIAGNOSTICBIOMARKERS.SUBSTACK.COM
February 4, 2025 at 4:45 PM
mecfsnanoneedle.bsky.social
Open Medicine Foundation BioQuest update.
OMF has raised $950,000 of the $2.4 Million dollars needed to analyze 1200 samples in the largest scale #MECFS Biomarker study
They have raised 40% of their goal.
mecfsdiagnosticbiomarkers.substack.com/p/omf-bioque...
Open Medicine Foundation announced it has raised $950,000 towards its $2.4 Million goal to fund the largest scale ME/CFS Biomarker Study BioQuest Screenshot of BioQuest funding: With two generous grants and additional funds from the OMF community, we secured $950,000- 40. per cent of our goal- to launch a large scale ME/CFS biomarker study BioQuest Meter with 40 per cent Aquamarine filled out Donate to BioQuest Interview with Linda Tannenbaum about BioQuest Link in Bio MECFSDIAGNOSTICBIOMARKERS.SUBSTACK.COM
January 30, 2025 at 8:58 PM
mecfsnanoneedle.bsky.social
mecfsdiagnosticbiomarkers.substack.com/p/omf-bioque...

Open Medicine Foundation's BioQuest: Welcome to the Future

Interview with OMF's CEO Linda Tannenbaum about the largest #MECFS Biomarker Study

#MECFS #pwME #MillionsMissing #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Blue background. In the middle pictured is Open Medicine Foundation's Linda Tannenbaum. She has light brown hair. A kind smiling face. She is wearing glasses. OMF BioQuest: Welcome to the Future Email Interview with OMF's CEO Linda Tannenbaum about the largest #MECFS Biomarker Study MECFSDIAGNOSTICBIOMARKERS.SUBSTACK.COM
January 27, 2025 at 4:57 PM
mecfsnanoneedle.bsky.social
We started 2024 with 3 #MECFS diagnostic blood tests in development and we end 2024 with 7 diagnostic blood tests in various stages of development.
The most notable thing to happen is Open Medicine Foundation's BioQuest project www.omf.ngo/me-cfs-new-b.... @openmedf.bsky.social
#MECFS #pwME
Current ME/CFS diagnostic blood tests in development 2024: 1. tinyurl.com/OMFBioQuest 2. MicroRNAs (University of Montreal) 3. Electrophyisological properties of white cells (University of Surrey) 4. Red Cell Deformability (UC Davis) 5. Electrical Signature (LeHigh University) 6. Raman Spectroscopy (Oxford) 7. Molecular and Cellular Signature of ME/CFS (LaTrobe University)
December 24, 2024 at 10:02 PM
mecfsnanoneedle.bsky.social
What's interesting is that #MECFS blood is banned in 5 countries. The psychologization of #MECFS has deep origins in the UK - yet the NHS has taken care to ban blood donation from "every single name of ME/CFS in use". But isn't funding a blood screen to screen the blood supply.
November 27, 2024 at 6:52 AM
mecfsnanoneedle.bsky.social
Renaming #MECFS either through new viral or bacterial outbreaks or because of regulatory capture has been a long tradition. Before it was M.E. It was Icelandic disease. It's Tapanui flu in New Zealand. Now it's LongCovid.
Divide the patients with new name and definitions.
Hide the dataset.
November 27, 2024 at 6:45 AM
mecfsnanoneedle.bsky.social
Are your donor dollars supporting #MECFS orgs that prioritize your priorities?
CEO Linda Tannenbaum started
Open Medicine Foundation in order to find a diagnostic blood test for ME/CFS so that patients could be diagnosed earlier and with accuracy.
www.omf.ngo?form=TGN2024
#MECFS #MillionsMissing
Are your donor dollars supporting ME/CFS orgs that prioritize your priorities? Did you know? CEO Linda Tannenbaum started Open Medicine Foundation in order to find a diagnostic blood test for ME/CFS so that patients could be diagnosed earlier and with accuracy. In 2012, the FDA denied Ampligen’s application as a treatment for ME/CFS because there is “no diagnostic blood test for ME/CFS.” My priority is a diagnostic test for ME/CFS because I know it is the path to a FDA approved Treatment. Make sure your donor dollars are prioritizing your ME/CFS priorities this Triple Giving November Season https://www.omf.ngo/?form=TGN2024
November 18, 2024 at 4:34 AM
mecfsnanoneedle.bsky.social
#MECFS Self-care
Setting up scheduled e-cards to myself on particularly bad grief anniversaries with positive messaging
(ie. last time I saw my Dad in person, remembrances for family members we've lost that I never got to grieve properly, last time I was outside, last time I took a shower)
Purple background, White text. Blue Forget me not at the top. #MECFS Self-care Setting up scheduled e-cards to myself on particularly bad grief anniversaries with positive messaging (ie. last time I saw my Dad in person, remembrances for family members we've lost that I never got to grieve properly, last time I was outside, last time I took a shower, last time I ate food at a table. @MECFSNanoneedle
November 12, 2024 at 11:40 AM
mecfsnanoneedle.bsky.social
My cause is an #MECFS diagnostic blood test:

cen.acs.org/pharmaceutic...

Join me in supporting the scientists, researchers, universities, and ME/CFS organizations funding and fighting with the same goal.

#pwME #MillionsMissing #MECFSIsInTheBlood
My cause is an #MECFS diagnostic blood test so that : No ME/CFS patient will be sectioned or starved again So friends and family, doctors and hospitals will believe us The FDA will vote yes to treatments Medical education will improve ME/CFS research funding will increase We will gain allies NIH will study ME/CFS from an ImmunoBiological basis If we focus on funding and finding a ME/CFS diagnostic test so many issues will be solved! https://cen.acs.org/pharmaceuticals/Reactions-Long-COVID-RD/102/i33
October 27, 2024 at 11:02 AM
mecfsnanoneedle.bsky.social
tinyurl.com/PleaseInterv...

"Right now, on the heels of the Maeve Boothby O'Neill Inquest, Karen Gordon and Carla Naoum are being psychologized and mistreated in UK hospitals because of prejudice against #MECFS and prejudice against women in medicine. "
#SaveCarlasLife #SaveKarenGordon #pwME
October 23, 2024 at 12:02 PM