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meactionscotland.bsky.social
#MEAction Scotland
@meactionscotland.bsky.social
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meactionscotland.bsky.social
Our response to the DHSC’s ME/CFS Delivery Plan - a plan without money, mandates or deadlines is not a plan - it is a wish‑list -@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social

ow.ly/1anc50WwzAM

#MyalgicEncephalomyelitis #VerySevereME #pwME #pwLC #ChronicIllnessUK #DisabilityAdvocacy
On a teal coloured background with the Royal crest in white text saying Department of Health & Social Care to top right with MEAction UK’s response to the DHSC’s ME/CFS Delivery Plan at the bottom centre. All text in white.
July 29, 2025 at 10:53 AM
meactionscotland.bsky.social
We have a limited amount of #MEAction Millions Missing t-shirts left for sale!

They're £15 and come in S (35-37"), M (38-40"), L (41-43") and XL (44-46").
Fabric is cotton with Lycra in the collar.

To buy, email scotland@meaction.net with your name, address and size, and we'll send a payment link.
A woman wearing a red Millions Missing t-shirt. On the left side of the image, she is facing the camera. On the right side, she has her back to the camera. There is a yellow stripe across the picture with the words MEAction T-shirts written on it in black. Beneath this is a red and yellow splash graphic with the words Order Now! written on it in white.
June 5, 2025 at 2:12 PM
meactionscotland.bsky.social
Success for #MEAction Scotland Campaign!!

The @scottishgov.bsky.social withdraws outdated guideline and endorses NICE. The Scottish Government has withdrawn the Scottish Good Practice Statement on ME/CFS.

Thanks to @jennimintomsp.bsky.social for her support.
Scottish flag, white diagonal cross on blue background flying on flagpole against a blue sky. Text headline: Success for #MEAction Scotland Campaign. Scottish Government withdraws outdated guideline and endorses NICE.
May 30, 2025 at 2:38 PM
meactionscotland.bsky.social
And last, but definitely not least, a huge thanks to the attendees, speakers and contributors from within the ME community - we understand the sacrifices you make to be part of these events ❤️ #pwME #MillionsMissing

@therealmecfs.bsky.social @maryeilmicdom.bsky.social @inclusivenew.bsky.social
A photo of ME Action Scotland volunteer Jo Bruce speaks to the crowd at Millions Missing outside the Scottish Parliament. Jo is wearing a red tracksuit and holding a microphone and a piece of paper, sitting in a wheelchair. Next to her is a sign that says ME is a living death. A photo of Sally Witcher, founder of Inclusive New Normal, speaking to the crowd at Millions Missing outside the Scottish Parliament. Sally is in a wheelchair and wearing a mask. An ME Action Scotland volunteer is holding a microphone for Sally. Next to them is two people in red ME Action t shirts sitting behind a table with a red tablecloth. A photo of Stuart Murdoch speaking to the crowd at Millions Missing outside the Scottish Parliament. Stuart is sat down, holding a microphone and a clipboard. In the background a group of people, standing and sitting, are listening to him. A close up of a volunteer at the Millions Missing demonstration outside the Scottish Parliament. They are looking at an ME Action badge pinned on their jacket.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @tesswhitemsp.bsky.social and Alexander Stewart MSP for joining us during #MEAwarenessWeek at #MillionsMissing Scotland 2025 and supporting our call for the urgent development of specialist support for people with ME.
A photo of Tess White MSP standing with an ME Action Scotland volunteer outside the Scottish Parliament. They are standing next to an ME Action Scotland banner and Tess White is holding a red board that says 'Red Alert for ME, specialist support is needed now' and wearing a red ME Action t shirt. A photo of Alexander Stewart MSP standing with an ME Action Scotland volunteer outside the Scottish Parliament. They are holding a Millions Missing sign and standing next to an ME Action Scotland banner.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @colinsmythmsp.bsky.social and @paulsweeney.bsky.social for joining us during #MEAwarenessWeek at #MillionsMissing Scotland 2025 and supporting our call for the urgent development of specialist support for people with ME. Paul Sweeney was the first MSP to speak to the crowd.
A photo of MSPs Paul Sweeney and Colin Smyth standing with an ME Action Scotland volunteer outside the Scottish Parliament around a bed that says ME is a physiological condition. The volunteer is holding a red board that says 'Red Alert for ME, specialist support is needed now' and the MSPs are holding a Millions Missing sign. A photo of Paul Sweeney MSP speaking to the crowd at Millions Missing outside the Scottish Parliament. He is holding a microphone and a piece of paper.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @suewebbermsp.bsky.social and Oliver Mundell for joining us during #MEAwarenessWeek at #MillionsMissing Scotland 2025 and supporting our call for the urgent development of specialist support for people with ME. Sue Webber also spoke to the crowd.
A photo of MSPs Sue Webber and Oliver Mundell standing with an ME Action Scotland volunteer outside the Scottish Parliament around a bed that says ME is a physiological condition. Sue is holding a red board that says 'Red Alert for ME, specialist support is needed now' and the volunteer is holding a Millions Missing sign and standing next to an ME Action Scotland banner. A photo of Sue Webber MSP speaking to the crowd at Millions Missing outside the Scottish Parliament. She is holding a microphone and standing next to a sign that says 'ME is life without sound and light.'
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @michaeljmarra.bsky.social for joining us during #MEAwarenessWeek at #MillionsMissing Scotland 2025 and supporting our call for the urgent development of specialist support for people with ME.
A photo of Michael Marra MSP standing with an ME Action Scotland volunteer outside the Scottish Parliament. They are holding a red board that says 'Red Alert for ME, specialist support is needed now' and standing next to an ME Action Scotland banner.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @benmacpherson.bsky.social for joining #MillionsMissing Scotland 2025 and supporting our call for the development of specialist support for people with ME.

Ben is a long-standing supporter of our work. He spoke to the crowd and spent time chatting with people from the community.
A photo of Ben Macpherson MSP standing with three ME Action Scotland volunteers outside the Scottish Parliament. He is holding a red board that says 'Red Alert for ME, specialist support is needed now' and behind them is an ME Action Scotland banner and a bed with a red duvet. A photo of Ben Macpherson MSP speaking to the crowd at Millions Missing outside the Scottish Parliament. He is holding a microphone and there are people listening in the background, mostly in red ME Action t shirts.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @cgrahamemsp.bsky.social for joining us during #MEAwarenessWeek at #MillionsMissing Scotland 2025 and supporting our call for the urgent development of specialist support for people with ME.
A photo of Christine Grahame MSP standing with an ME Action Scotland supporter outside the Scottish Parliament. They are holding a red board that says 'Red Alert for ME, specialist support is needed now' and standing next to an ME Action Scotland banner.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @alex.scotlibdems.org.uk for joining us during #MEAwarenessWeek at #MillionsMissing Scotland 2025, speaking to the crowd and supporting our call for the urgent development of specialist support for people with ME. Alex also spoke to the crowd.
A photo of Alex Cole-Hamilton MSP shaking hands with an ME Action Scotland volunteer outside the Scottish Parliament at the Millions Missing Scotland demonstration. Another ME Action Scotland volunteer and another man who is mostly obscured are standing with them. A photo of Alex Cole-Hamilton MSP speaking to the crowd at Millions Missing outside the Scottish Parliament. He is holding a microphone and a piece of paper and standing next to two people in red ME Action t shirts sitting behind a table with a red tablecloth. A man in an ME Association hoody is standing behind them.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @katysclark.bsky.social for joining us during #MEAwarenessWeek at #MillionsMissing Scotland 2025 and supporting our call for the urgent development of specialist support for people with ME.
A photo of Katy Clark MSP talking to two ME Action Scotland volunteers outside the Scottish Parliament at the Millions Missing Scotland demonstration. They are all smiling.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @foysolchoudhury.bsky.social @monicalennon.bsky.social and Brian Whittle MSP for joining us during #MEAwarenessWeek at #MillionsMissing Scotland 2025 and supporting our call for the urgent development of specialist support for people with ME. Brian Whittle also spoke to the crowd.
A photo of MSPs Brian Whittle, Foysol Choudhury and Monica Lennon standing with an ME Action Scotland volunteer outside the Scottish Parliament. They are holding a red board that says 'Red Alert for ME, specialist support is needed now' and standing next to an ME Action Scotland banner. A photo of Brian Whittle MSP speaking to the crowd at Millions Missing outside the Scottish Parliament. He is holding a microphone and a piece of paper and standing next to two people in red ME Action t shirts sitting behind a table with a red tablecloth.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to Alexander Burnett MSP, Rachael Hamilton MSP, Alex Rowley MSP and Murdo Fraser MSP for joining us during #MEAwarenessWeek at #MillionsMissing Scotland 2025 and supporting our call for the urgent development of specialist support for people with ME.
A photo of Alexander Burnett MSP standing with an ME Action Scotland volunteer outside the Scottish Parliament. They are holding a red board that says 'Red Alert for ME, specialist support is needed now' and standing next to an ME Action Scotland banner. A photo of Murdo Fraser MSP standing with an ME Action Scotland volunteer outside the Scottish Parliament. They are holding a red board that says 'Red Alert for ME, specialist support is needed now.' A photo of Rachael Hamilton MSP standing with two ME Action Scotland volunteers outside the Scottish Parliament. She is holding a red board that says 'Red Alert for ME, specialist support is needed now' and standing next to an ME Action Scotland banner. A photo of Alex Rowley MSP standing with an ME Action Scotland volunteer outside the Scottish Parliament. They are holding a red board that says 'Red Alert for ME, specialist support is needed now.'
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
Thanks to @jennimintomsp.bsky.social for joining us this #MEAwarenessWeek at #MillionsMissing Scotland & speaking to the crowd.

The Minister confirmed that the government is discussing with Health Boards how the allocated funding could be spent & highlighting that NICE guidance should be followed.
A photo of a crowd of people listening to Jenni Minto, Minister for Public Health and Women's Health, at the Millions Missing demonstration outside the Scottish Parliament. Jenni is speaking into a microphone and holding a phone and lanyards. People are standing and sitting to listen, they include ME Action volunteers, members of the public and MSPs. An ME Action Scotland banner can also be seen in the background. A photo of an ME Action Scotland volunteer standing with the Minister for Public Health and Women's Health, Jenni Minto, next to an ME Action Scotland banner outside the Scottish Parliament.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
This year, #MillionsMissing Scotland raised a red alert for ME 🚨

Our @parliament.scot rally put pressure on the Scottish Government to set out how they'll make pledged funding for ME specialist support a reality.

19 MSPs joined us & 6 addressed the crowd. Listed in thread ⬇️

📸 credit: Noel Fenech
A photo of a group of twelve people standing outside the Scottish Parliament at the Millions Missing Scotland 2025 demonstration. It includes ME Action Scotland volunteers, Stuart Murdoch and other people affected by ME, Ben Macpherson MSP, the Founder of Inclusive New Normal and a Trustee of the ME Association. A photo of the Millions Missing Scotland rally outside the Scottish Parliament. It's a sunny day and a crowd of people are listening to Stuart Murdoch speak and clapping. Some are standing, some are in wheelchairs and some are sitting in camping chairs. Lots of people are wearing red ME Action t shirts. A photo of a crowd of people listening to ME Action Scotland volunteer Jo Bruce speak at the Millions Missing demonstration outside the Scottish Parliament. Jo is in a wheelchair holding a piece of paper and a microphone. People are standing and sitting to listen, they include ME Action volunteers, members of the public and MSPs. An ME Action Scotland banner can also be seen in the background. A photo of an ME Action Scotland volunteer from behind listening to another who is sat down speaking into a microphone and holding a clipboard. The person speaking in the background is in soft focus and the volunteer listening in the foreground is in focus, picking out the ME Action logo on the back of their t shirt.
May 16, 2025 at 12:48 PM
meactionscotland.bsky.social
The rally was covered across multiple news outlets. Big thanks go to Stuart Murdoch of the band Belle and Sebastian, for supporting with this 🙂
Article: www.thenational.scot/news/nationa...

(We will share the full list of MSPs that attended ASAP - we're still regrouping and working it out!)
May 14, 2025 at 9:13 PM
meactionscotland.bsky.social
It was a busy, successful day outside @parliament.scot for #MillionsMissing Scotland 👏

Lots of MSPs, including @jennimintomsp.bsky.social, came out to speak to us and hear from #pwME. Many MSPs told us they came out because their constituents got in touch, so well done to everyone who emailed. 🧵
A photo of ME Action Scotland volunteers standing with a Long Covid Scotland Trustee, the Founder of Inclusive New Normal, and Ben Macpherson MSP around an ME Action Scotland banner outside the Scottish Parliament. A photo of ME campaigners lying on the floor in front of the Scottish Parliament. Many are wearing red ME Action Scotland t shirts. A person in a wheelchair is filming on a phone. A photo of two ME Action Scotland volunteers standing with the Minister for Public Health and Women's Health, Jenni Minto, around an ME Action Scotland banner outside the Scottish Parliament.
May 14, 2025 at 9:13 PM
meactionscotland.bsky.social
#MillionsMissing t-shirts for sale! Limited numbers!
£15 each
Sizes:
Medium (chest 38-40")
Large (chest 41-43")
X-Large (chest 44-46")

Let us know if you would like one and we'll be in touch. Unsold t-shirts will be available to buy on 14th May (cash only)
A woman wearing a red Millions Missing t-shirt. On the left side of the image, she is facing the camera. On the right side, she has her back to the camera.
May 9, 2025 at 3:14 PM
meactionscotland.bsky.social
For #MillionsMissing 2025 in #Scotland, we're raising a red alert 🚨 Spread the word!
The Scottish Budget pledged £4.5m for ME specialist support - the clock is ticking to spend it.

Email your MSPs & join us @parliament.scot or support online.
Info & template email: www.meaction.net/2025/04/27/m...
A red graphic with black writing that says 'Red Alert for ME. Spend the money now! Wednesday 14th May: Join ME Action Scotland in person and online. #MillionsMissing' There is an illustration of a bell ringing and the ME Action Scotland logo.
May 4, 2025 at 10:36 AM
meactionscotland.bsky.social
It was good to meet Prof Jack Lambert of @lymeresourcecentre.bsky.social today at the final day of the #RCPCH25 @rcpch.bsky.social conference.

#MyalgicEncephalomyelitis #pwME #pwLC #LongCovid #disabilityawareness #LymeDisease
MEAction volunteers, Janet and Ann, stand either side of Prof Jack Lambert of Lyme Resource Centre outside the MEAction UK stand.
March 28, 2025 at 1:09 PM
meactionscotland.bsky.social
Our volunteers are working hard at #RCPCH25 talking to delegates and meeting other charities. Yesterday, Helen was delighted to meet Vicky from @panspandasuk.bsky.social .

Come to see us at Stand D6 @rcpch.bsky.social to learn more about ME.

#MyalgicEncephalomyelitis #pwME #pwLC #LongCovid
March 28, 2025 at 9:36 AM
meactionscotland.bsky.social
We have had a busy start to the day at @rcpch.bsky.social conference in Glasgow. Interest from both medical students and paediatricians, particularly in NICE key symptoms.

Visit us at #RCPCH25 Stand D6 to learn more.

#MyalgicEncephalomyelitis #pwME #LongCovid
MEAction volunteers talks to two attendees at the RCPCH conference in Glasgow.
March 27, 2025 at 11:32 AM
meactionscotland.bsky.social
Delighted to have Nigel Speight at the @meactionuk.bsky.social stand at the #RCPCH25 conference for @rcpch.bsky.social talking to other paediatricians & explaining how they can help children and young people with ME. Visit us at Stand D6 to learn more.

#MyalgicEncephalomyelitis #pwME #LongCovid
Nigel Speight, a white man with glasses wearing dark top and shirt with lanyard, talks to a woman with long dark hair and purple top at MEAction UK stand with posters lining stand behind.
March 26, 2025 at 11:51 AM
meactionscotland.bsky.social
Preparations are underway for the MEAction UK stand at
@rcpch.bsky.social conference in Glasgow. Great work by Susan Cole of @meactionuk.bsky.social and Helen Brownlie - 25% ME Group.

If you are attending the conference come and say hello. We are at stand D6.

#RCPCH25 #MyalgicEncephalomyelitis
Volunteers setting up stand at the RCPCH conference. Two white women, one sitting at the side of a table covered in red tablecloth with documents on and one standing behind. Walls covered in #MEAction UK posters.
March 25, 2025 at 6:03 PM