I feel very much adrift on here. My posts rarely get answered. l know I dont always have the capacity to reply but trying to make the effort to help create a community so we can all feel ready to leave the other place for good

Here feels heavy on people getting follows & not following back

#FBLC

I feel very much adrift on here. My posts rarely get answered. l know I dont always have the capacity to reply but trying to make the effort to help create a community so we can all feel ready to leave the other place for good

Here feels heavy on people getting follows & not following back

#FBLC

@longcovidsupport.bsky.social

Trying to get some options/ ideas before I get fobbed off. I know surgery is risky but Im 69 with a life on hold, a family I support with childcare and am not ready to become a prisoner within 4 walls. I dont know how to search for people here🤷‍♀️
@binitakane.bsky.social
@drclairetaylor.bsky.social

Advice anyone what would conservative treatment look like
What would surgery look like
Already experienced insertion of stent, hope this has improved in 15yrs
@longcovidphysio.bsky.social
@sunsopeningband.bsky.social
@nas-vascular.bsky.social
#vascularsurgery

For background
gofund.me/e06a24b4

Had a severe housefire in October which meant I had to pack up what had survived, find somewhere to live, set up a new house all with minimal help. The only thing that slowed me down was not having oxygen on demand to my right leg not deconditioning, although that's starting now bc of my leg not #LC

Merci! @apresj20.bsky.social and @millionsmissingfr.bsky.social were already included in my starter-pack for the patient community. Added the other three (split up between the researchers pack and the patients pack).

go.bsky.app/LciucLP

Ive stopped tagging mine now because everything I do causes huge peaks in heart rate. The worst being bending down to change cat litter, that has been the highest heart rate since 2020. Not as bad as it was though, now 120bpm instead of 160. I cant walk outdoors to check that atm 😢