Update from Isla’s mother @swiftsandswallows.bsky.social , “We are very grateful for the overwhelming support from the ME community, it honestly means such a lot. For now though we need time to digest what's happened, to regroup and to catch up on sleep.”

"We propose that skeletal muscle tissue in ME/CFS and Long COVID-19 progresses through a hypermetabolic state, leading to severe muscular and mitochondrial deterioration. This is the first study to suggest such transient metabolic adaptation." #mecfs #LongCovid

iopscience.iop.org/article/10.1...

One week ago to August 8, #SEVEREMEDAY

I have a Pinterest board with 699 pins on #severeMECFS here ie.pinterest.com/tomkindlon/m... that could be shared around. It mainly contains images but also links to videos & articles

You don't need to be on Pinterest

#SevereME #MEcfs #PwME

Anyone have good reference books to have on hand to replace internet searching?

I'll start!

✏️ My ME/CFS Blog:
www.whitneydafoe.com/mecfs
❓What is ME/CFS?
www.whitneydafoe.com/mecfs/whatis...
👤 My Story:
www.whitneydafoe.com/mecfs/mystory
📄 ME/CFS Resources:
www.whitneydafoe.com/mecfs/resour...
🙏 Donate to ME/CFS Research:
www.whitneydafoe.com/donate

Well done to Mark Vink on getting another piece published: this one has the provocative title, "CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that"

www.frontiersin.org/journals/hum...

#MEcfs #CFS #PwME

The Guardian: “Share your experience of long Covid”

‘We’d like to hear from people who have long Covid and how it has affected their lives’

www.theguardian.com/society/2025...

If you can, please donate to my son’s birthday fundraiser, where 100% of your donation goes directly to my research.

spot.fund/FindACureFor...

- Ronald W, Davis, PhD.

From Ronald W, Davis, PhD.
- HOPE FOR 2025 -
I am very optimistic that soon the major mechanisms that initiate the disease will be found. This will allow a concerted effort to reverse the process and find a cure….

New post on my blog:
www.whitneydafoe.com/mecfs/?post=...

#MECFS #LongCovid

Another thing that scares me is that among the 11,785 infected participants, 4692 (39.8%) were “ME/CFS-like, w/ at least one ME/CFS symptom.” My friends & I talk often about how we were “ME/CFS-like” for years before we got sick enough to actually meet the criteria

📣 This study in Argentinian healthcare workers showed an 80% reduction in Covid infections using an iota-carrageenan nasal spray 4 times a day. Nasal sprays may be a useful tool in the armoury to prevent Covid, and therefore #LongCovid.

Link: pmc.ncbi.nlm.nih.gov/articles/PMC...

#CovidIsNotOver

Coming up to 15 yrs with #mecfs, I can tell you: with under-funded research, abject medical ignorance & baseless public stigma, we're plunging headlong into a chronic disease & productivity crisis @markbutlermp.bsky.social @mon4kooyong.bsky.social @zoedaniel.bsky.social

www.nih.gov/news-events/...