Mamgu With M.E
@mamguwithme.bsky.social
Mild M.E 2010-15; Severe M.E 2015-date.
🏴From Bed, Beddingham
🎄🎅🎁Christmas lover. Advocado hater🥑 Coeliac & PCOS.
⏳️Patiently waiting for a cure or treatment for M.E⌛️
🏴From Bed, Beddingham
🎄🎅🎁Christmas lover. Advocado hater🥑 Coeliac & PCOS.
⏳️Patiently waiting for a cure or treatment for M.E⌛️
But according to the Simon Wessley et al, it's all in the mind! Tell me how infants & toddlers can think themselves ill, I'm waiting⏳️
“The study found that 14% of infected infants and toddlers and 15% of infected preschoolers had probable long COVID, similar to rates in teens and school-aged children.”
Apparently toddlers aren’t 🦄. Who knew?
Apparently toddlers aren’t 🦄. Who knew?
June 30, 2025 at 2:17 PM
But according to the Simon Wessley et al, it's all in the mind! Tell me how infants & toddlers can think themselves ill, I'm waiting⏳️
Struggling to post but want to for #MEAwarenessDay I'm dizzy, cant lift my heavy head, Ive full body pain & weakness but not 'fatigued', which is always used to describe #MyalgicEncephalomyelitis
This is my daily life with #SevereME
#Researchers & #Pharmaceuticals please help
#MEAwarenessMonth
This is my daily life with #SevereME
#Researchers & #Pharmaceuticals please help
#MEAwarenessMonth
May 12, 2025 at 10:10 AM
Struggling to post but want to for #MEAwarenessDay I'm dizzy, cant lift my heavy head, Ive full body pain & weakness but not 'fatigued', which is always used to describe #MyalgicEncephalomyelitis
This is my daily life with #SevereME
#Researchers & #Pharmaceuticals please help
#MEAwarenessMonth
This is my daily life with #SevereME
#Researchers & #Pharmaceuticals please help
#MEAwarenessMonth
Get up in the morning & I fight, all day long, fight, then go to bed & the hours that I dont sleep, fight. A mental fight to survive SevereME, some days are harder than others & today's a hard day but I'll get through it, as I have all the other bad days #pwME
#MyalgicEncephalomyelitis #MEcfs #pwLC
#MyalgicEncephalomyelitis #MEcfs #pwLC
April 8, 2025 at 8:35 AM
Get up in the morning & I fight, all day long, fight, then go to bed & the hours that I dont sleep, fight. A mental fight to survive SevereME, some days are harder than others & today's a hard day but I'll get through it, as I have all the other bad days #pwME
#MyalgicEncephalomyelitis #MEcfs #pwLC
#MyalgicEncephalomyelitis #MEcfs #pwLC
After my M.E diagnosis it would always affect me when new #pwME came online, not wanting them to have the hellscape life I have. Then came Covid & #pwLC It broke my heart,so many people, #LongCovid should never have happened.
#pwLC we see you, we hear you, we understand✊️🫶 #LongCovidAwarenessDay
#pwLC we see you, we hear you, we understand✊️🫶 #LongCovidAwarenessDay
March 15, 2025 at 2:26 PM
After my M.E diagnosis it would always affect me when new #pwME came online, not wanting them to have the hellscape life I have. Then came Covid & #pwLC It broke my heart,so many people, #LongCovid should never have happened.
#pwLC we see you, we hear you, we understand✊️🫶 #LongCovidAwarenessDay
#pwLC we see you, we hear you, we understand✊️🫶 #LongCovidAwarenessDay
Please hear our voices🙏
#MyalgicEncephalomyelitis #mecfs #pwME #pwLC #chronicIllness #ChronicPain #MillionsMissing #NHS @teamlabouruk.bsky.social @libdems.org.uk #FundThePlan #SevereME #MEAwareness #Research
#MyalgicEncephalomyelitis #mecfs #pwME #pwLC #chronicIllness #ChronicPain #MillionsMissing #NHS @teamlabouruk.bsky.social @libdems.org.uk #FundThePlan #SevereME #MEAwareness #Research
We’ve been so moved seeing the #FundThePlan videos over the past few weeks.
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
March 12, 2025 at 9:50 AM
Hi all #pwME I'm struggling mentally, I'll have been bedbound/housebound for 10 years, next Xmas and its really affecting me. Usually, the Sickaversary passes me by with no effect, but 10 years, is such a long time to be missing out on life and no sign of a cure or treatment in the near future. 1/4
March 4, 2025 at 12:15 PM
Hi all #pwME I'm struggling mentally, I'll have been bedbound/housebound for 10 years, next Xmas and its really affecting me. Usually, the Sickaversary passes me by with no effect, but 10 years, is such a long time to be missing out on life and no sign of a cure or treatment in the near future. 1/4
So, #mecfs has decided that my body can't digest lettuce🤢 Thanks #MyalgicEncephalomyelitis you're such an unwanted gift
an elderly woman is sitting on a couch holding a gift and the words worst gift ever are above her
Alt: an elderly woman is sitting on a couch holding a gift and the words worst gift ever are above her
media.tenor.com
January 27, 2025 at 11:07 AM
So, #mecfs has decided that my body can't digest lettuce🤢 Thanks #MyalgicEncephalomyelitis you're such an unwanted gift
Please sign and share widely 🙏
Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed.
bit.ly/linepetition
bit.ly/linepetition
January 20, 2025 at 2:56 PM
Today's main symptom is extreme nausea, yet still feel hungry, #mecfs really messes with the body
#pwME #pwLC #MyalgicEncephalomyelitis
#pwME #pwLC #MyalgicEncephalomyelitis
January 20, 2025 at 12:12 PM
Today's main symptom is extreme nausea, yet still feel hungry, #mecfs really messes with the body
#pwME #pwLC #MyalgicEncephalomyelitis
#pwME #pwLC #MyalgicEncephalomyelitis
Having a 'heart tired' #MyalgicEncephalomyelitis day, its where my heart feels like it's not got the strength for me to get out for bed, not even for the loo, it's a struggle but a day where I definitely listen to my body #scary #ListenToYourHeart #mecfs #pwME #pwLC
January 16, 2025 at 12:40 PM
Having a 'heart tired' #MyalgicEncephalomyelitis day, its where my heart feels like it's not got the strength for me to get out for bed, not even for the loo, it's a struggle but a day where I definitely listen to my body #scary #ListenToYourHeart #mecfs #pwME #pwLC
🎅Happy Christmas to all #PwME and #pwLC Hope your day goes as well as it can with a #ChronicIllness🤶
December 24, 2024 at 5:38 PM
🎅Happy Christmas to all #PwME and #pwLC Hope your day goes as well as it can with a #ChronicIllness🤶
A WARNING for #pwME and #pwLC in Wales, mobile phone Emergency alerts have gone off this evening. As the storm crosses the country, the alerts may go off on your phones, I don't want anyone's illness getting worse from a shock or disturbed sleep. Batten down the hatches and take care all x
December 6, 2024 at 7:51 PM
November 28, 2024 at 8:05 PM
Im managing to be on here a little & the reason is that Im not having to scroll passed endless amounts of vile tirades,like on ❎️ using energy I dont have. Im so happy to be back on Social Media and am looking forward to start chatting with fellow #pwME See you all when my energy allows😃
November 28, 2024 at 5:40 PM
Im managing to be on here a little & the reason is that Im not having to scroll passed endless amounts of vile tirades,like on ❎️ using energy I dont have. Im so happy to be back on Social Media and am looking forward to start chatting with fellow #pwME See you all when my energy allows😃
November 21, 2024 at 3:13 AM
Gremlin's migraine is hitting hard today, no bright lights🙈
November 14, 2024 at 12:22 PM
Gremlin's migraine is hitting hard today, no bright lights🙈
Reposted by Mamgu With M.E
What life can become for the millions of people living with the medical condition myalgic encephalomyelitis (ME/CFS). When even the most basic everyday activities are out of reach. #pwME #MillionsMissing
November 14, 2024 at 6:59 AM
What life can become for the millions of people living with the medical condition myalgic encephalomyelitis (ME/CFS). When even the most basic everyday activities are out of reach. #pwME #MillionsMissing
Severe M.E., surely, has to be the loneliest place on the planet ##MyalgicEncephalomyelitis #mecfs #chronicillness #SevereME #SeverePain #isolation
November 13, 2024 at 12:08 PM
Severe M.E., surely, has to be the loneliest place on the planet ##MyalgicEncephalomyelitis #mecfs #chronicillness #SevereME #SeverePain #isolation
