Adriana P. Long Covid Canada
@longcovid-adri.bsky.social
Lead of Long Covid Canada Collaborative grp. ANIMAL LOVER. Former int. Competitive swimmer. Disabled by LC since Xmas 2020. #Covid #LongCovid #MECFS science-based advocate w several orgs. #FBLC We must #Unite2Fight strong together in this chaos! 🖤🤘
Pinned
Guide PEM
The PEM Guide Created by: Adriana Patino, Lead of Long Covid Canada group **DISCLAIMER** This document is NOT intended as medical advice. It consists of notes I am sharing from my own personal ex...
docs.google.com
I've written a #PEM Guide from my own experience as a patient & learnings from my specialists. My goal is that even if you’re familiar with some of the concepts that u learn something new; that "AHA!" that helps you tie it all together and practice it better. feedback welcome & share if useful🖤🤘
*CANADIANS!! Please see very generous offer from this fantastic lady. If you know a family with a kid living with LC and are in need/low income please reach out!!
Let make this holiday season a reason to spread generosity, especially for kids who would need it most. 🖤🤘
Let make this holiday season a reason to spread generosity, especially for kids who would need it most. 🖤🤘
2/ Alongside, we wanted to offer something small, personal. As many of you know, my teen daughter has been living with LC for 5 yrs. She has been using Warm Buddies (www.warmbuddy.com) - comfort items to help her through cold intolerance, PEM, sensory overwhelm, and pain.
Heat Wraps - Warm Up Animals - Heat Therapy Products
High quality heat wraps, heat packs and heat therapy products for natural relief of aches, pain and stress. The Original warm up plush animals.
www.warmbuddy.com
December 9, 2025 at 1:43 AM
*CANADIANS!! Please see very generous offer from this fantastic lady. If you know a family with a kid living with LC and are in need/low income please reach out!!
Let make this holiday season a reason to spread generosity, especially for kids who would need it most. 🖤🤘
Let make this holiday season a reason to spread generosity, especially for kids who would need it most. 🖤🤘
Reposted by Adriana P. Long Covid Canada
Germany just did the thing everyone else keeps pretending is "impossible" or "does not exist". @cmadocs.bsky.social @markcarneyforpm.bsky.social
www.nature.com/articles/d41...
www.nature.com/articles/d41...
December 9, 2025 at 12:54 AM
Germany just did the thing everyone else keeps pretending is "impossible" or "does not exist". @cmadocs.bsky.social @markcarneyforpm.bsky.social
www.nature.com/articles/d41...
www.nature.com/articles/d41...
Reposted by Adriana P. Long Covid Canada
Completely reasonable that your doctor or healthcare worker can give you COVID while your under their care at a hospital, right? The idea it’s just a cold sure is one expensive delusion.
Very cool of my coworker to show up with COVID because the HOSPITAL I work for doesn't have any restrictions for employees with COVID anymore. And even cooler than my other coworker thinks her bee pollen hand spray will do the trick 👉👉
December 3, 2025 at 2:11 AM
Completely reasonable that your doctor or healthcare worker can give you COVID while your under their care at a hospital, right? The idea it’s just a cold sure is one expensive delusion.
This beautiful girl 🥰🥰 #Gypsy #LoveAllAnimals
December 2, 2025 at 4:04 AM
This beautiful girl 🥰🥰 #Gypsy #LoveAllAnimals
Reposted by Adriana P. Long Covid Canada
Heard from another educator who is finally fed up with always getting sick. They said they plan on wearing a respirator at work every day moving forward.
A good decision that will help prevent airborne pathogen spread👍
You don't have to get sick to learn that its a bad idea.
#N95
#PreventCOVID
A good decision that will help prevent airborne pathogen spread👍
You don't have to get sick to learn that its a bad idea.
#N95
#PreventCOVID
November 28, 2025 at 3:56 PM
Heard from another educator who is finally fed up with always getting sick. They said they plan on wearing a respirator at work every day moving forward.
A good decision that will help prevent airborne pathogen spread👍
You don't have to get sick to learn that its a bad idea.
#N95
#PreventCOVID
A good decision that will help prevent airborne pathogen spread👍
You don't have to get sick to learn that its a bad idea.
#N95
#PreventCOVID
Reposted by Adriana P. Long Covid Canada
<<Canada enters chat >>
Yes, MAHA gang is hugely to blame. And yes, 🍁has its own M-CHA gang (god help us).
And, PRO-infxn public health msg'ing since COVID (Hybrid Immunity ™️, get infected or accrue Immunity Debt™️, 'only the vulnerable') accelerated this mess.
Can't be PRO-infection AND pro-vax 🤷
Yes, MAHA gang is hugely to blame. And yes, 🍁has its own M-CHA gang (god help us).
And, PRO-infxn public health msg'ing since COVID (Hybrid Immunity ™️, get infected or accrue Immunity Debt™️, 'only the vulnerable') accelerated this mess.
Can't be PRO-infection AND pro-vax 🤷
November 28, 2025 at 5:06 PM
<<Canada enters chat >>
Yes, MAHA gang is hugely to blame. And yes, 🍁has its own M-CHA gang (god help us).
And, PRO-infxn public health msg'ing since COVID (Hybrid Immunity ™️, get infected or accrue Immunity Debt™️, 'only the vulnerable') accelerated this mess.
Can't be PRO-infection AND pro-vax 🤷
Yes, MAHA gang is hugely to blame. And yes, 🍁has its own M-CHA gang (god help us).
And, PRO-infxn public health msg'ing since COVID (Hybrid Immunity ™️, get infected or accrue Immunity Debt™️, 'only the vulnerable') accelerated this mess.
Can't be PRO-infection AND pro-vax 🤷
Reposted by Adriana P. Long Covid Canada
Investigadores de Nueva Zelanda y Japón descubren la estructura de un virus milenario «cazador de bacterias» que podría ser la clave para destruir superbacterias.
ecoinventos.com/investigador...
ecoinventos.com/investigador...
Investigadores de Nueva Zelanda y Japón descubren la estructura de un virus milenario "cazador de bacterias" que podría ser la clave para destruir superbacterias
Los bacteriófagos son virus que infectan bacterias, no a humanos ni animales. Se consideran una alternativa prometedora frente a la creciente resistencia antimicrobiana. Actúan con gran precisión: cad...
ecoinventos.com
November 27, 2025 at 9:09 PM
Investigadores de Nueva Zelanda y Japón descubren la estructura de un virus milenario «cazador de bacterias» que podría ser la clave para destruir superbacterias.
ecoinventos.com/investigador...
ecoinventos.com/investigador...
Reposted by Adriana P. Long Covid Canada
“If it’s that bad, you would have help!”
Help doesn’t magically arrive when you become disabled.
You’re not assigned a caregiver or given more money based on severity.
Many need more help than they’re getting.
If you’re struggling tonight, know you’re not alone.
Many of us are with you.
Help doesn’t magically arrive when you become disabled.
You’re not assigned a caregiver or given more money based on severity.
Many need more help than they’re getting.
If you’re struggling tonight, know you’re not alone.
Many of us are with you.
November 23, 2025 at 10:18 AM
“If it’s that bad, you would have help!”
Help doesn’t magically arrive when you become disabled.
You’re not assigned a caregiver or given more money based on severity.
Many need more help than they’re getting.
If you’re struggling tonight, know you’re not alone.
Many of us are with you.
Help doesn’t magically arrive when you become disabled.
You’re not assigned a caregiver or given more money based on severity.
Many need more help than they’re getting.
If you’re struggling tonight, know you’re not alone.
Many of us are with you.
Reposted by Adriana P. Long Covid Canada
Medscape: 'Can Long COVID Be Decoded?'
'For Ziyad Al-Aly, MD, senior clinical epidemiologist at Washington University in St. Louis, this is a critical time for long COVID research in the United States.'
www.youtube.com/watch?v=WLcq...
'For Ziyad Al-Aly, MD, senior clinical epidemiologist at Washington University in St. Louis, this is a critical time for long COVID research in the United States.'
www.youtube.com/watch?v=WLcq...
Can Long COVID Be Decoded? | Medscape
YouTube video by Medscape
www.youtube.com
November 23, 2025 at 3:16 PM
Medscape: 'Can Long COVID Be Decoded?'
'For Ziyad Al-Aly, MD, senior clinical epidemiologist at Washington University in St. Louis, this is a critical time for long COVID research in the United States.'
www.youtube.com/watch?v=WLcq...
'For Ziyad Al-Aly, MD, senior clinical epidemiologist at Washington University in St. Louis, this is a critical time for long COVID research in the United States.'
www.youtube.com/watch?v=WLcq...
Reposted by Adriana P. Long Covid Canada
Everything wrong with the last almost 6 years right there.
November 23, 2025 at 12:39 AM
Everything wrong with the last almost 6 years right there.
Reposted by Adriana P. Long Covid Canada
Everyone must have access to safe vaccination.
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Sign the Petition
Demand Access to NovaVax for All Canadians
www.change.org
November 22, 2025 at 10:09 PM
Everyone must have access to safe vaccination.
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Reposted by Adriana P. Long Covid Canada
Pregnant women need to be informed about and protected from SARS-CoV-2 infections.
Autopsies of 18 foetuses showed that "SARS-CoV-2 can be widely distributed in fetal organs through vertical transmission". In addition immune and DNA damage were found in the infected organs
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Presence of SARS-CoV-2 in fetal organs via intraamniotic infection - Nature Communications
Infection with SARS-CoV-2 during pregnancy may result in maternal and fetal complications. Here, the authors analyze 18 fetuses following maternal SARS-CoV-2 infection and identify distribution in fet...
www.nature.com
November 22, 2025 at 9:04 PM
Pregnant women need to be informed about and protected from SARS-CoV-2 infections.
Reposted by Adriana P. Long Covid Canada
The Sick Times: 'Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise'
Written by
By Simon Spichak
'Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say'
thesicktimes.org/2025/11/21/l...
Written by
By Simon Spichak
'Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say'
thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 2:15 PM
The Sick Times: 'Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise'
Written by
By Simon Spichak
'Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say'
thesicktimes.org/2025/11/21/l...
Written by
By Simon Spichak
'Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say'
thesicktimes.org/2025/11/21/l...
One of the brightest light in my life, commander of all the little souls and my heart. Look at how gorgeous señorita Miau is!! 🥰🥰
November 21, 2025 at 11:26 PM
One of the brightest light in my life, commander of all the little souls and my heart. Look at how gorgeous señorita Miau is!! 🥰🥰
Reposted by Adriana P. Long Covid Canada
Excellent public health messaging from New York City!!
Be the happy peace sign waving emoji instead of the sick and sniffling emoji.
How can you do that?
Wear a mask! Ideally a respirator like an N95.
It’ll help keep you and your community safe.
Be the happy peace sign waving emoji instead of the sick and sniffling emoji.
How can you do that?
Wear a mask! Ideally a respirator like an N95.
It’ll help keep you and your community safe.
November 19, 2025 at 9:14 AM
Excellent public health messaging from New York City!!
Be the happy peace sign waving emoji instead of the sick and sniffling emoji.
How can you do that?
Wear a mask! Ideally a respirator like an N95.
It’ll help keep you and your community safe.
Be the happy peace sign waving emoji instead of the sick and sniffling emoji.
How can you do that?
Wear a mask! Ideally a respirator like an N95.
It’ll help keep you and your community safe.
Reposted by Adriana P. Long Covid Canada
RIP my little beautiful boy. You were such a gentleman, always asking for treats politely haha I love your snuggles, shenanigans, and especially I love you because you always knew when I needed you - I'll love you always.
Go play with your brothers beautiful Wayne. I'll see you boys soon🖤
Go play with your brothers beautiful Wayne. I'll see you boys soon🖤
November 13, 2025 at 11:20 PM
RIP my little beautiful boy. You were such a gentleman, always asking for treats politely haha I love your snuggles, shenanigans, and especially I love you because you always knew when I needed you - I'll love you always.
Go play with your brothers beautiful Wayne. I'll see you boys soon🖤
Go play with your brothers beautiful Wayne. I'll see you boys soon🖤
Reposted by Adriana P. Long Covid Canada
Good morning to all those people who wasted the last decade saying, "there's no point tackling climate change in the UK, because China."
www.theguardian.com/world/2025/n...
www.theguardian.com/world/2025/n...
China’s CO2 emissions have been flat or falling for past 18 months, analysis finds
World’s biggest polluter on track to hit peak emissions target early but miss goal for cutting carbon intensity
www.theguardian.com
November 11, 2025 at 7:08 AM
Good morning to all those people who wasted the last decade saying, "there's no point tackling climate change in the UK, because China."
www.theguardian.com/world/2025/n...
www.theguardian.com/world/2025/n...
Reposted by Adriana P. Long Covid Canada
Cell Reports Medicine: 'Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS'
www.cell.com/cell-reports...
www.cell.com/cell-reports...
Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS
Shahbaz et al. find that female long COVID patients with ME/CFS exhibit heightened
inflammation, altered hematopoiesis, disrupted hormone levels, and neuroinflammatory
gene signatures. In parallel, ou...
www.cell.com
November 7, 2025 at 10:33 PM
Cell Reports Medicine: 'Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS'
www.cell.com/cell-reports...
www.cell.com/cell-reports...
Reposted by Adriana P. Long Covid Canada
@spichaksimon.bsky.social thank you for holding @ianhanomansing.bsky.social CBC accountable on this. They have a lot to answer on this.
It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.
It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.
In a statement, CBC told me:
"After reviewing the interview, we concluded that it needed to be re-edited and re-posted to include further context and questions around the procedure and treatment Deacon experienced. That has now been done."
Will update the story with this soon.
"After reviewing the interview, we concluded that it needed to be re-edited and re-posted to include further context and questions around the procedure and treatment Deacon experienced. That has now been done."
Will update the story with this soon.
Earlier this week, the CBC broadcast an interview with Gill Deacon, discussing her Long COVID recovery using brain retraining.
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
November 8, 2025 at 12:44 AM
@spichaksimon.bsky.social thank you for holding @ianhanomansing.bsky.social CBC accountable on this. They have a lot to answer on this.
It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.
It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.
Reposted by Adriana P. Long Covid Canada
International Business Times: 'Ignoring Long COVID and Neurodivergence Is an Economic Disaster'
'As a scientist, systems thinker, and someone living with both autism and Long COVID, inefficiency infuriates me'
www.ibtimes.com/ignoring-lon...
'As a scientist, systems thinker, and someone living with both autism and Long COVID, inefficiency infuriates me'
www.ibtimes.com/ignoring-lon...
Ignoring Long COVID and Neurodivergence Is an Economic Disaster
We are no longer living in the shadow of a mass fatality event. COVID-19 has now ushered in a widespread era of chronic illness. Among individuals with a confirmed COVID-19 diagnosis, 36% are estimate...
www.ibtimes.com
November 4, 2025 at 8:48 PM
International Business Times: 'Ignoring Long COVID and Neurodivergence Is an Economic Disaster'
'As a scientist, systems thinker, and someone living with both autism and Long COVID, inefficiency infuriates me'
www.ibtimes.com/ignoring-lon...
'As a scientist, systems thinker, and someone living with both autism and Long COVID, inefficiency infuriates me'
www.ibtimes.com/ignoring-lon...
Reposted by Adriana P. Long Covid Canada
Excellent article from @juliamwright.bsky.social @mark-ungrin.bsky.social @dickzoutman.bsky.social @ryantennant.ca discussing the draft CSA Z94.4 standard.
theconversation.com/the-csas-rev...
theconversation.com/the-csas-rev...
The CSA’s revised standard on respirators should help us all breathe easier
New draft standards for respirator use recognize the importance of protecting workers and patients in health-care settings, where there is a higher risk of pathogen exposure
theconversation.com
November 3, 2025 at 6:00 PM
Excellent article from @juliamwright.bsky.social @mark-ungrin.bsky.social @dickzoutman.bsky.social @ryantennant.ca discussing the draft CSA Z94.4 standard.
theconversation.com/the-csas-rev...
theconversation.com/the-csas-rev...
Reposted by Adriana P. Long Covid Canada
“Right now, we’re in the thick of COVID-19. We know that COVID-19 is actively circulating in our province…it’s been increasing since late summer”
No kidding. It's gross NS Health didn't warn people sooner. And, hand-washing doesn't prevent airborne spread. Please wear a mask & get vaccinated.
No kidding. It's gross NS Health didn't warn people sooner. And, hand-washing doesn't prevent airborne spread. Please wear a mask & get vaccinated.
November 4, 2025 at 12:42 AM
“Right now, we’re in the thick of COVID-19. We know that COVID-19 is actively circulating in our province…it’s been increasing since late summer”
No kidding. It's gross NS Health didn't warn people sooner. And, hand-washing doesn't prevent airborne spread. Please wear a mask & get vaccinated.
No kidding. It's gross NS Health didn't warn people sooner. And, hand-washing doesn't prevent airborne spread. Please wear a mask & get vaccinated.
Gypsy says "it's Monday, don't bother me" 🥰🥰 my little souls heal my everything, I'd ve lost without them.
#Cats #PEMsucks #LongCovid #CovidIsNotOver
#Cats #PEMsucks #LongCovid #CovidIsNotOver
November 3, 2025 at 10:10 PM
Gypsy says "it's Monday, don't bother me" 🥰🥰 my little souls heal my everything, I'd ve lost without them.
#Cats #PEMsucks #LongCovid #CovidIsNotOver
#Cats #PEMsucks #LongCovid #CovidIsNotOver
Reposted by Adriana P. Long Covid Canada
Part of the problem is that most people (unfortunately including many "Covid cautious" people) do not fully grasp how desperate our collective situation will inevitably become if united action to stop the uncontrolled spread of Covid-19 is not taken without delay.
bsky.app/profile/mcol...
bsky.app/profile/mcol...
As conditions resulting from the ongoing pandemic of Covid-19 continue to worsen, it seems that only a small number of people truly comprehend what is happening now and what is likely to happen in the years ahead if tough, uncompromising action is not taken to bring Covid-19 under control.
#COVID19
#COVID19
November 3, 2025 at 7:15 PM
Part of the problem is that most people (unfortunately including many "Covid cautious" people) do not fully grasp how desperate our collective situation will inevitably become if united action to stop the uncontrolled spread of Covid-19 is not taken without delay.
bsky.app/profile/mcol...
bsky.app/profile/mcol...