To learn more about #OneCancerVoice and our specific calls for Lobular, visit our website: lobularbreastcancer.org.uk/lbcuk-joins-...

- For better screening programmes and imaging as a priority, as Lobular can be difficult to be seen on mammograms for some patients
- For more clinical trials and for Lobular patients to be proportionately represented and their data to be reported on

As Lobular Breast Cancer is still under-studied and rarely recognised as the distinct disease that it is, we are specifically calling for:
- Lobular Breast Cancer to be recognised as a distinct disease and for appropriate Treatment Guidelines

A huge thank you to Laurie Burgess Hutcheson and @lobularbca.bsky.social for sponsoring Claire’s place.

One of our goals is to support people to become their own best advocate & get involved as patient advocates in research & campaigning. The learning that Claire will be bringing back will strengthen our current strategy & collaboration with researchers, clinicians & other breast cancer charities.

“I've already learnt so much about the basic biology of breast cancer and know I'm going to come back with a much clearer strategy, evidence base and knowledge.
I'm aiming to think better, challenge bolder, and be a transformative advocate for research and policy change in breast cancer.”

Hi there, apologies but the survey has now closed.

The survey will take about 15 – 20 minutes to complete and the deadline is 30 June 2025. Please only take part if you're a woman diagnosed with Lobular Breast Cancer.

iahs.qualtrics.com/jfe/form/SV_...

We need to be really clear that it’s of benefit for the patient and of real use. This study is not simply academic research. We will be using the findings to improve the support we provide at LBCUK for patients online. And we'll share the findings afterwards.

At LBCUK, we are receiving requests to develop more opportunities to gain support and to meet up in online settings. To meet this need, we want to ensure that we are providing services that will be of most benefit to you and what you want.

Read more about Claire's experience and her appointment on our website: lobularbreastcancer.org.uk/lbcuk-welcom...

Sankari also sits on our Scientific & Medical Advisory Group, providing us with advice, guidance, information and support. Thank you Sankari for all you're doing to for everyone affected by Lobular 🧡

She is currently interested in developing Lobular specific gene biomarkers and targeted therapies for patients who lose important chromatin-associated proteins.

For the past 14 years, Sankari has worked on hormonal positive breast cancers in the context of ductal cancers and has now developed her group towards exploring the non-genetic mechanisms of cancer progression in Lobular cancers.