Lobular Breast Cancer UK
@lobularbcuk.bsky.social
We are a patient-led charity collaborating to improve patient support, research knowledge and policy change to improve outcomes for anyone diagnosed with Lobular Breast Cancer. Lobularbreastcancer.org.uk
Happy 4th birthday to us! 🎈 🎉
Read all about what we have done over the last 12 months, thanks to the support of our fundraisers, volunteers and supporters: lobularbreastcancer.org.uk/lobular-brea...
Read all about what we have done over the last 12 months, thanks to the support of our fundraisers, volunteers and supporters: lobularbreastcancer.org.uk/lobular-brea...
Lobular Breast Cancer UK turns 4! - Lobular Breast Cancer UK
On 22 September 2025 we're celebrating our 4th birthday and everything we've achieved as a small, mostly volunteer-led charity.
lobularbreastcancer.org.uk
September 22, 2025 at 2:08 PM
Happy 4th birthday to us! 🎈 🎉
Read all about what we have done over the last 12 months, thanks to the support of our fundraisers, volunteers and supporters: lobularbreastcancer.org.uk/lobular-brea...
Read all about what we have done over the last 12 months, thanks to the support of our fundraisers, volunteers and supporters: lobularbreastcancer.org.uk/lobular-brea...
Yesterday we were proud to join 60 cancer charities to speak as #OneCancerVoice. Together, we are calling on the government to deliver a fully-funded National Cancer Plan for England. In order to make real change happen for people living with cancer, the Plan must meet six essential tests.
August 28, 2025 at 1:24 PM
Yesterday we were proud to join 60 cancer charities to speak as #OneCancerVoice. Together, we are calling on the government to deliver a fully-funded National Cancer Plan for England. In order to make real change happen for people living with cancer, the Plan must meet six essential tests.
This month, our CEO, Claire Turner, was in San Diego attending the @nbccstopbc.bsky.social's Project Lead - the world leading 6-day patient advocacy science training programme.
August 11, 2025 at 10:02 AM
This month, our CEO, Claire Turner, was in San Diego attending the @nbccstopbc.bsky.social's Project Lead - the world leading 6-day patient advocacy science training programme.
Due to its unique growth pattern, Lobular Breast Cancer rarely forms a lump, making it hard to detect on scans.
Remember - you know your body best, so always be aware of any changes or differences that you see and feel.
The signs & symptoms of Lobular: lobularbreastcancer.org.uk/signs-and-sy...
Remember - you know your body best, so always be aware of any changes or differences that you see and feel.
The signs & symptoms of Lobular: lobularbreastcancer.org.uk/signs-and-sy...
July 15, 2025 at 10:03 AM
Due to its unique growth pattern, Lobular Breast Cancer rarely forms a lump, making it hard to detect on scans.
Remember - you know your body best, so always be aware of any changes or differences that you see and feel.
The signs & symptoms of Lobular: lobularbreastcancer.org.uk/signs-and-sy...
Remember - you know your body best, so always be aware of any changes or differences that you see and feel.
The signs & symptoms of Lobular: lobularbreastcancer.org.uk/signs-and-sy...
Just a reminder that the deadline to apply to become a LBCUK Trustee is Wednesday 11 June.
We're recruiting for Trustees who can help us to continue improving our work, challenging how we do things, and who want to make positive change in the lives of everyone affected by Lobular. Read more & download our Trustee Recruitment pack: lobularbreastcancer.org.uk/could-you-be...
June 8, 2025 at 10:53 AM
Just a reminder that the deadline to apply to become a LBCUK Trustee is Wednesday 11 June.
Are you a woman with Lobular Breast Cancer? Got 15 -20 mins to spare?
In partnership with University of Aberdeen, we're conducting research to understand the emotional & informational needs of women with Lobular & how these needs can be supported through online resources.
In partnership with University of Aberdeen, we're conducting research to understand the emotional & informational needs of women with Lobular & how these needs can be supported through online resources.
June 5, 2025 at 12:29 PM
Are you a woman with Lobular Breast Cancer? Got 15 -20 mins to spare?
In partnership with University of Aberdeen, we're conducting research to understand the emotional & informational needs of women with Lobular & how these needs can be supported through online resources.
In partnership with University of Aberdeen, we're conducting research to understand the emotional & informational needs of women with Lobular & how these needs can be supported through online resources.
This #VolunteersWeek we’d like to say a huge ‘Thank You’ to all our amazing Trustees. We couldn’t do what we do without you 🧡
And we’re recruiting for new Trustees to join our small but mighty charity! Could this be you? ⬇️
And we’re recruiting for new Trustees to join our small but mighty charity! Could this be you? ⬇️
We're recruiting for Trustees who can help us to continue improving our work, challenging how we do things, and who want to make positive change in the lives of everyone affected by Lobular. Read more & download our Trustee Recruitment pack: lobularbreastcancer.org.uk/could-you-be...
June 2, 2025 at 3:52 PM
This #VolunteersWeek we’d like to say a huge ‘Thank You’ to all our amazing Trustees. We couldn’t do what we do without you 🧡
And we’re recruiting for new Trustees to join our small but mighty charity! Could this be you? ⬇️
And we’re recruiting for new Trustees to join our small but mighty charity! Could this be you? ⬇️
Thank you Ellie for a great article and for featuring us!
New from me for @glamouruk.bsky.social: Lobular breast cancer is the second-most common form of breast cancer, so why have so few women heard of it?
www.glamourmagazine.co.uk/article/lobu...
@lobularbcuk.bsky.social
www.glamourmagazine.co.uk/article/lobu...
@lobularbcuk.bsky.social
May 29, 2025 at 10:50 AM
Thank you Ellie for a great article and for featuring us!
We're recruiting for Trustees who can help us to continue improving our work, challenging how we do things, and who want to make positive change in the lives of everyone affected by Lobular. Read more & download our Trustee Recruitment pack: lobularbreastcancer.org.uk/could-you-be...
May 28, 2025 at 9:49 AM
We're recruiting for Trustees who can help us to continue improving our work, challenging how we do things, and who want to make positive change in the lives of everyone affected by Lobular. Read more & download our Trustee Recruitment pack: lobularbreastcancer.org.uk/could-you-be...
Due to the growth of LBCUK’s activities and our expanding role in advocacy and research across the UK and internationally, we’re delighted to announce that Claire Turner has been appointed as Interim part time Chief Executive for the charity.
May 6, 2025 at 1:30 PM
Due to the growth of LBCUK’s activities and our expanding role in advocacy and research across the UK and internationally, we’re delighted to announce that Claire Turner has been appointed as Interim part time Chief Executive for the charity.
Meet Sankari Nagarajan, a Breast Cancer Research Scientist at Cancer Research UK Cambridge Institute, Deputy Director at the @mcr-breastcentre.bsky.social and lecturer in Chromatin Biology.
April 29, 2025 at 10:07 AM
Meet Sankari Nagarajan, a Breast Cancer Research Scientist at Cancer Research UK Cambridge Institute, Deputy Director at the @mcr-breastcentre.bsky.social and lecturer in Chromatin Biology.
What are the challenges in diagnosing Lobular and what new methods of testing are available?
BBC News presenter Jane Hill interviews Professor Elinor Sawyer to find out. Watch the interview on our YouTube channel. www.youtube.com/watch?v=H6D6...
BBC News presenter Jane Hill interviews Professor Elinor Sawyer to find out. Watch the interview on our YouTube channel. www.youtube.com/watch?v=H6D6...
Jane Hill in conversation with Oncologist Elinor Sawyer
YouTube video by Lobular Breast Cancer UK
www.youtube.com
April 17, 2025 at 8:56 AM
What are the challenges in diagnosing Lobular and what new methods of testing are available?
BBC News presenter Jane Hill interviews Professor Elinor Sawyer to find out. Watch the interview on our YouTube channel. www.youtube.com/watch?v=H6D6...
BBC News presenter Jane Hill interviews Professor Elinor Sawyer to find out. Watch the interview on our YouTube channel. www.youtube.com/watch?v=H6D6...
We welcome the news that capivasertib with fulvestrant will be offered on the NHS to women with metastatic breast cancer in England and Wales.
April 15, 2025 at 1:54 PM
We welcome the news that capivasertib with fulvestrant will be offered on the NHS to women with metastatic breast cancer in England and Wales.
Meet Renée, a Postdoctoral Research Scientist at The Institute of Cancer Research in London.
Renée's work explores the therapeutic potential of targeting extracellular matrix (ECM) remodelling in Invasive Lobular Carcinoma (ILC). 1/2
#LobularBreastCancer #WomenInScience #CancerResearch
Renée's work explores the therapeutic potential of targeting extracellular matrix (ECM) remodelling in Invasive Lobular Carcinoma (ILC). 1/2
#LobularBreastCancer #WomenInScience #CancerResearch
April 9, 2025 at 8:15 AM
Meet Renée, a Postdoctoral Research Scientist at The Institute of Cancer Research in London.
Renée's work explores the therapeutic potential of targeting extracellular matrix (ECM) remodelling in Invasive Lobular Carcinoma (ILC). 1/2
#LobularBreastCancer #WomenInScience #CancerResearch
Renée's work explores the therapeutic potential of targeting extracellular matrix (ECM) remodelling in Invasive Lobular Carcinoma (ILC). 1/2
#LobularBreastCancer #WomenInScience #CancerResearch
Ollie is running the #BrightonMarathon on Sunday for LBCUK! It's his first ever marathon and he's running in support of his mum, Angela 💜
Drop a 🙌 to wish him luck!
If you'd like to support Ollie, you can donate to his JustGiving page here: www.justgiving.com/page/oliver-...
Drop a 🙌 to wish him luck!
If you'd like to support Ollie, you can donate to his JustGiving page here: www.justgiving.com/page/oliver-...
April 4, 2025 at 8:18 AM
Ollie is running the #BrightonMarathon on Sunday for LBCUK! It's his first ever marathon and he's running in support of his mum, Angela 💜
Drop a 🙌 to wish him luck!
If you'd like to support Ollie, you can donate to his JustGiving page here: www.justgiving.com/page/oliver-...
Drop a 🙌 to wish him luck!
If you'd like to support Ollie, you can donate to his JustGiving page here: www.justgiving.com/page/oliver-...
The Government is writing a new national cancer plan. Share your opinions & help inform them of the wider needs of Lobular patients – how it’s a distinct disease that needs better understanding, more research and more effective treatment guidelines.
consultations.dhsc.gov.uk/shaping-the-...
consultations.dhsc.gov.uk/shaping-the-...
April 3, 2025 at 7:13 AM
The Government is writing a new national cancer plan. Share your opinions & help inform them of the wider needs of Lobular patients – how it’s a distinct disease that needs better understanding, more research and more effective treatment guidelines.
consultations.dhsc.gov.uk/shaping-the-...
consultations.dhsc.gov.uk/shaping-the-...
Have you had a Metastatic Lobular diagnosis? Could you help Lobular Breast Cancer researchers at the Lee-Oesterreich Lab at UPMC Hillman Cancer Center and the University of Pittsburgh School of Medicine in the US with their research?
March 24, 2025 at 7:15 PM
Have you had a Metastatic Lobular diagnosis? Could you help Lobular Breast Cancer researchers at the Lee-Oesterreich Lab at UPMC Hillman Cancer Center and the University of Pittsburgh School of Medicine in the US with their research?
This time last week we were with the clinicians at St Bartholemew’s Hospital to participate in their annual Barts Health NHS Trust Breast Cancer meeting.
Our Chair, Claire Turner, and Trustee, Emma Amos, did a presentation about the impact of a Lobular diagnosis on patients.
Our Chair, Claire Turner, and Trustee, Emma Amos, did a presentation about the impact of a Lobular diagnosis on patients.
March 21, 2025 at 1:03 PM
This time last week we were with the clinicians at St Bartholemew’s Hospital to participate in their annual Barts Health NHS Trust Breast Cancer meeting.
Our Chair, Claire Turner, and Trustee, Emma Amos, did a presentation about the impact of a Lobular diagnosis on patients.
Our Chair, Claire Turner, and Trustee, Emma Amos, did a presentation about the impact of a Lobular diagnosis on patients.
Do you know what one of the simplest things you can do to raise awareness of Lobular Breast Cancer is? Call it by its name. Most people have never heard of Lobular Breast Cancer so the more we name it and talk about it, the more awareness we will raise.
March 20, 2025 at 4:38 PM
Do you know what one of the simplest things you can do to raise awareness of Lobular Breast Cancer is? Call it by its name. Most people have never heard of Lobular Breast Cancer so the more we name it and talk about it, the more awareness we will raise.
Reposted by Lobular Breast Cancer UK
We have overhauled www.elbcc.org and ask all existing and future participants to register and indicate their preferred working groups. Check the site, current members, and spread the word! @christinedesmedt.bsky.social @pwbderksen.bsky.social @lobularbcuk.bsky.social @lobularbca.bsky.social
February 27, 2025 at 2:44 PM
We have overhauled www.elbcc.org and ask all existing and future participants to register and indicate their preferred working groups. Check the site, current members, and spread the word! @christinedesmedt.bsky.social @pwbderksen.bsky.social @lobularbcuk.bsky.social @lobularbca.bsky.social
Great footage from 2024’s Invasive Lobular Breast Carcinoma (ILC) Symposium. Thank you for sharing European Lobular Breast Cancer Consortium and looking forward to working with you to continue driving change for Lobular patients in 2025.
ELBCC has joined the blue space! First post concerns the footage of the #ILCSymposium 2024, now on our YouTube channel youtube.com/@elbcc.europ...
ELBCC. European Lobular Breast Cancer Consortium
This is the channel of the European Lobular Breast Cancer Consortium (ELBCC).
We started this consortium in November 2018 with the intention to develop a platform to bring together discovery scientis...
youtube.com
January 15, 2025 at 7:18 AM
Great footage from 2024’s Invasive Lobular Breast Carcinoma (ILC) Symposium. Thank you for sharing European Lobular Breast Cancer Consortium and looking forward to working with you to continue driving change for Lobular patients in 2025.