Laura Marks
@ljmarksnyc.bsky.social
Rare disease advocate; nonprofit leader; tuberous sclerosis complex mom; SYNGAP1 sister. Committed to advancing human rights, trans rights, social justice, equity/belonging. Views mine
Reposted by Laura Marks
I've pitched versions of this idea to a number of NIH scientists, as well as university researchers over the last six weeks or so. So I decided to put it together into a post.
A Path Forward to Save American Bio-Medical Research talkingpointsmemo.com/edblog/a-pat...
A Path Forward to Save American Bio-Medical Research
Over the past four months, I’ve spoken to dozens of biomedical researchers...
talkingpointsmemo.com
May 17, 2025 at 9:13 PM
I've pitched versions of this idea to a number of NIH scientists, as well as university researchers over the last six weeks or so. So I decided to put it together into a post.
Reposted by Laura Marks
I guess I'm mad as hell and I'm not going to take it anymore. Fuck decorum. danieldrezner.substack.com/p/american-f...
American Foreign Policy Is Being Run by the Dumbest Motherfuckers Alive
The fuckwittery on display right now by Trump's foreign policy team boggles the mind.
danieldrezner.substack.com
March 24, 2025 at 10:09 PM
I guess I'm mad as hell and I'm not going to take it anymore. Fuck decorum. danieldrezner.substack.com/p/american-f...
Reposted by Laura Marks
Columbia University has failed to defend academic freedom & freedom of speech & allowed a great institution to be bullied & extorted into submission by an administration hellbent on contorting higher education to their will.
The AAUP condemns this capitulation. We can & must fight back.
The AAUP condemns this capitulation. We can & must fight back.
Columbia Concedes to Trump’s Demands After Federal Funds Are Stripped
The administration has moved to cut $400 million in federal funding to the university without changes to its policies and rules.
www.nytimes.com
March 22, 2025 at 2:32 AM
Columbia University has failed to defend academic freedom & freedom of speech & allowed a great institution to be bullied & extorted into submission by an administration hellbent on contorting higher education to their will.
The AAUP condemns this capitulation. We can & must fight back.
The AAUP condemns this capitulation. We can & must fight back.
Reposted by Laura Marks
Trump and the GOP understand many Americans are fed up with the status quo. The problem with many Dem leaders is that they are addicted to it. Progress requires change...which requires not just courage but imagination and the willingness to ask hard questions. open.substack.com/pub/davidrot...
There is No Progress Without Sacrilege
The problem with the leaders of the Democratic Party is not what you think it is
open.substack.com
March 15, 2025 at 3:03 AM
Trump and the GOP understand many Americans are fed up with the status quo. The problem with many Dem leaders is that they are addicted to it. Progress requires change...which requires not just courage but imagination and the willingness to ask hard questions. open.substack.com/pub/davidrot...
Reposted by Laura Marks
“Somebody must have been telling lies about K, because one morning, without having done anything wrong, he woke up to find himself under arrest.”
- Kafka, The Trial
- Kafka, The Trial
March 10, 2025 at 3:12 AM
“Somebody must have been telling lies about K, because one morning, without having done anything wrong, he woke up to find himself under arrest.”
- Kafka, The Trial
- Kafka, The Trial
Reposted by Laura Marks
EXCLUSIVE: A federal worker at the EPA sent an incredible email to Administrator Lee Zeldin. He's refused to stay silent, and has asked me to share the email - and his name - with the public. My latest: www.muellershewrote.com/p/exclusive-...
EXCLUSIVE: Email from a Federal Worker at EPA to Lee Zeldin
I have obtained a copy of - and permission to publish - an email sent from Jason Poe to the EPA Administrator Lee Zeldin. Jason has asked me to share this email, along with his name, with the public.
www.muellershewrote.com
February 20, 2025 at 6:56 PM
EXCLUSIVE: A federal worker at the EPA sent an incredible email to Administrator Lee Zeldin. He's refused to stay silent, and has asked me to share the email - and his name - with the public. My latest: www.muellershewrote.com/p/exclusive-...
Reposted by Laura Marks
If you wanted to cut waste, fraud, and abuse, you would empower the inspectors general.
If you wanted more waste, fraud, and abuse, you would fire them.
If you wanted more waste, fraud, and abuse, you would fire them.
February 17, 2025 at 2:17 PM
If you wanted to cut waste, fraud, and abuse, you would empower the inspectors general.
If you wanted more waste, fraud, and abuse, you would fire them.
If you wanted more waste, fraud, and abuse, you would fire them.
Reposted by Laura Marks
i am going to put a finer point on this: executive orders are not laws. and they certainly are not royal decrees. they are interpretations of existing law for the purposes of enforcement. the fact that so many people are treating them as laws is actually driving me a bit insane.
i mean, the president's executive order isn't a goddamn law! as far as this doctor is concerned, who cares what the president says!
A New York City doctor said he will continue providing gender-affirming treatments to his patients younger than 19 despite President Donald Trump’s executive order aiming to ban such care.
February 12, 2025 at 2:48 AM
i am going to put a finer point on this: executive orders are not laws. and they certainly are not royal decrees. they are interpretations of existing law for the purposes of enforcement. the fact that so many people are treating them as laws is actually driving me a bit insane.
Reposted by Laura Marks
Musk killed these people.
February 12, 2025 at 2:38 AM
Musk killed these people.
Reposted by Laura Marks
On the end of USAID. danieldrezner.substack.com/p/the-trump-...
The Trump Administration's Humpty Dumpty Foreign Policy
On begging for forgiveness versus asking for permission.
danieldrezner.substack.com
February 7, 2025 at 12:17 PM
On the end of USAID. danieldrezner.substack.com/p/the-trump-...
Reposted by Laura Marks
i don’t even know if crime is the right word for the illegal destruction of USAID. it is an autocratic power grab and a direct attack on the sovereignty of the american people
February 5, 2025 at 3:16 AM
i don’t even know if crime is the right word for the illegal destruction of USAID. it is an autocratic power grab and a direct attack on the sovereignty of the american people
Reposted by Laura Marks
the canada-USA bilat is getting pretty wild
(can we elect angus?)
(can we elect angus?)
Canadian MP Charlie Angus: Our beloved Canada is under threat.
The threat comes from the president of the US—a convicted felon and known predator. But the threat is also being driven by the hate algorithms of oligarchs like Elon Musk….
The threat comes from the president of the US—a convicted felon and known predator. But the threat is also being driven by the hate algorithms of oligarchs like Elon Musk….
February 1, 2025 at 2:56 AM
the canada-USA bilat is getting pretty wild
(can we elect angus?)
(can we elect angus?)
Reposted by Laura Marks
And for as cynical as many have become about #SCOTUS, if *I* were trying to get the constitutionality of the Impoundment Control Act before this Supreme Court, the absolute *last* way I would do it is through an across-the-board, wholesale freeze accomplished via a thinly reasoned 2-page memorandum.
January 28, 2025 at 3:02 AM
And for as cynical as many have become about #SCOTUS, if *I* were trying to get the constitutionality of the Impoundment Control Act before this Supreme Court, the absolute *last* way I would do it is through an across-the-board, wholesale freeze accomplished via a thinly reasoned 2-page memorandum.
Kudos to the team!
New paper about CHD2-RD in adults, led by Marlene Rong, Dr. Danielle Andrade's lab at UToronto, describing 14 adult CHD2 pts with seizures, behavioral challenges, gait issues, and other comorbidities impacting their sleep, eating and pain responsiveness. Congrats! www.neurology.org/doi/10.1212/...
Adult Phenotype of CHD2-Associated Disorders | Neurology Genetics
Background and ObjectivesPathogenic CHD2 variants are associated with neurodevelopmental disorders and developmental and epileptic
encephalopathy. While pediatric CHD2 phenotypes have been readily exp...
www.neurology.org
December 2, 2024 at 4:13 AM
Kudos to the team!