Lindsay Baran
lindsaybaran.bsky.social
Lindsay Baran
@lindsaybaran.bsky.social
Disability & healthcare activist/ policy nerd/ researcher on indefinite pause
Chronically ill (EDS &co, ME/LC) & HoH
Chicago
She/her
Reposted by Lindsay Baran
Andrew Cuomo being cheered at the finish line by Trump, Musk, and Stephen Miller says it all, and he will have the Election Day that New Yorkers find appropriate for such a man.
November 4, 2025 at 4:26 AM
Reposted by Lindsay Baran
It's publication day for Read This When Things Fall Apart! So grateful to our contributors and to @akpress.org for making this book a reality. This is a strange time to be promoting a book, but I believe it's a text that has the potential to help us right now. Please get yourself a copy. ❤️
Read This When Things Fall Apart: Letters to Activists in Crisis
Letters to Activists in Crisis
bookshop.org
November 4, 2025 at 2:43 PM
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Rest in Power, Miss Major.💔

On solidarity: “We can’t go it alone… I mean, you can try, and get knocked down and get up and try again, and get knocked down and get up and try again. But that’s how it’ll be, until somebody helps you up and says, let me stand with you.”
truthout.org/articles/a-m...
A Mother’s Day Chat With Revolutionary Trans Activist Miss Major Griffin-Gracy
Janet Mock has called Miss Major, who has nurtured generations of queer and trans youth, “the mother we all deserve.”…
truthout.org
October 14, 2025 at 1:14 AM
Reposted by Lindsay Baran
Please, PLEASE… if you can, help Britt. Imagine being forced into this life as an able-bodied person, then realize that Britt has the HORRIFIC energy-limiting disease #MECFS
Idk what to boost or how to boost anymore. I’m fried, I’m exhausted, and at a loss of what to say. There is nothing left to say; please help us right now. We need help today. 😭😭😭

Help: bit.ly/40vIt7S

#MutualAid #HelpSky
#KeepFolksAlive
#BIPOCMA 💸💕 #
#MutualAidVoid #MutualAidRequest
October 14, 2025 at 12:05 AM
Reposted by Lindsay Baran
The e book is available link.springer.com/book/10.1007...
September 27, 2025 at 11:32 AM
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If you’d like to unpack all the lies being told to the public right now, here’s your fact valet —

Acetaminophen doesn’t cause autism&pregnant people w/fever or pain need it.

Leucovorin isn’t an autism treatment& the reason they’re trying to sell you that is explained in the attached thread& posts
Hellloooooo, journalists! Covering the Mon announcement abt #autism? CHECK OUT the last 3 @thinkingautism.com newsletters for background on the loooong trail of grift in mitochondria-autism industry, starting w/a man who co-authored entire study abt his own daughter w/o disclosing the relationship.🧵
September 22, 2025 at 9:10 PM
Reposted by Lindsay Baran
I have taken
the Tylenol
that was in
the medicine cabinet

and which
they think probably
is the reason
you like trains

forgive me
but that’s bullshit
you got autism
from your dad
September 23, 2025 at 12:02 AM
Reposted by Lindsay Baran
Legacy media and cable news reduced Trump's aggression against Chicago to a question of whether troops would be sent immediately. When he said he was taking his fascist military spectacle elsewhere, those media players declared the situation over—while waves of federal agents attack our neighbors.
September 15, 2025 at 12:28 AM
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Friends with ME/CFS!

The incomparable Lenny Jason is working to develop consensus on a research definition and severity scales to use in studying ME. He needs your opinion!

Takes ~15 mins but you can save and come back if you need a break.

If you could also share this, that would be a huge help!
Can we reach consensus on an ME research case definition?
redcap.is.depaul.edu
September 13, 2025 at 6:15 PM
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Political violence is abhorrent. I have not celebrated Kirk's death.

But Newsom calling for his followers to "continue Charlie Kirk's work," someone who praised stoning gay people as "god's perfect law," who called for men to "take care of" trans people like they did in the 50s and 60s, is not it.
September 11, 2025 at 12:25 AM
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"They are stopping anyone who isn’t white to ask for ID and proof of residency. They are setting up ID checkpoints. They are harassing people sitting on their front porches. They are targeting and kidnapping migrant neighbors doing food deliveries."
-Shannon Clark @remorahousedc.bsky.social#FreeDC
Here's my weekly must-reads list, a frontline dispatch from a D.C. organizer, and my final thoughts for the week. One thing I took away from my exchange with Shannon Clark, a mutual aid organizer in D.C., is that "having great networks already in place" has been crucial. Let's all take note.
Must-Reads and What D.C. Organizers Need You to Know
"D.C. was able to respond to defend our neighbors quickly," says D.C. organizer Shannon Clark.
organizingmythoughts.org
August 16, 2025 at 3:57 PM
Reposted by Lindsay Baran
Today is Severe ME Awareness Day, and we’re sharing our explainer about Severe ME.

Highlights in thread, and check out the full resource at longcovidjustice.org/severe-me

This is part of the Long COVID Essentials series by @longcovidjustice.org + @thesicktimes.bsky.social
August 8, 2025 at 6:24 PM
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In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2025! www.meartistsproject.com/severe-me-ar...

Over 100 of you submitted photos, drawings, writing, music and videos of your work for our 5th Severe ME Artists Project!

#SevereME #UnitedForME #pwME
August 8, 2025 at 4:01 PM
Reposted by Lindsay Baran
I say it all of the time but I need to repeat this. Talk to elders who were activists and organizers in previous eras because they will share how much in the minority they were.
August 6, 2025 at 7:04 PM
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Low income people of color are more likely to get Long Covid. Yet, it's mostly white people w/ Long Covid whose accounts tend to blow up more.
American College of Physicians: "Study finds economically disadvantaged patients at greater risk for long COVID"

'Researchers from Brigham and Women's Hospital, Harvard Medical School, and colleagues studied data from 3,787 adults enrolled in the RECOVER study...'

medicalxpress.com/news/2025-07...
Study finds economically disadvantaged patients at greater risk for long COVID
A prospective observational cohort study determined the associations between social determinants of health (SDoH) at the time of SARS-CoV-2 infection and subsequent risk for long COVID. The study foun...
medicalxpress.com
July 28, 2025 at 9:45 PM
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Every single story you are hearing from the Everglades Concentration Camp has been and is already taking place in hundreds of prisons and jails in the U.S. That's what PIC abolitionists have been trying to get the public to understand for decades.
July 14, 2025 at 1:54 PM
Reposted by Lindsay Baran
Republicans may lie about what's in their budget bill but the numbers sure don't.
June 29, 2025 at 12:15 AM
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Institutional care isn't optional under Medicaid. Home and community based services care is optional. Cutting Medicaid will lead to more people losing HCBS and be forced into nursing homes, as I wrote for @motherjones.com in January. www.motherjones.com/politics/202...
Trump's war on Medicaid will institutionalize millions of people
The GOP wants to fund billionaire tax cuts—and let disabled Americans pay the price.
www.motherjones.com
June 28, 2025 at 5:45 PM
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Disabled kids like mine rely on Medicaid to survive; this bill cuts Medicaid.

I don't know how else to say that medically complex disabled children will die as a result of this bill.
June 29, 2025 at 4:23 AM
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True story.
June 29, 2025 at 7:53 PM
Reposted by Lindsay Baran
The system is designed for capitalism to do whatever it needs, including wars, colonialism, authoritarianism, and the impediment of democracy.

If you want something different it is going to have to change and we’re going to have to change it.
June 22, 2025 at 11:19 PM
Reposted by Lindsay Baran
Gilead has announced that lenacapavir, the game-changing HIV prevention drug just approved by the FDA will cost $28,218 USD per person per year.

Researchers say a generic version could be made for just $25 per person a year.

Capitalism kills.
June 18, 2025 at 10:17 PM
Reposted by Lindsay Baran
Reposted by Lindsay Baran
Today @thesicktimes.bsky.social: Lauren May argues that emergency departments are woefully unprepared to handle Long COVID, even though many people with the disease -- including her -- must go to EDs for care. thesicktimes.org/2025/06/02/e...
Emergency departments aren’t trained for Long COVID — and patients are paying the price - The Sick Times
What do you call a system that doesn’t believe you’re sick until you’re dying? While emergency clinicians are trained to handle acute medical situations, many lack even a basic understanding of Long C...
thesicktimes.org
June 2, 2025 at 7:35 PM