Karen Denmark
@kmdenmark.bsky.social
Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS
Pinned
Karen Denmark
@kmdenmark.bsky.social
· Nov 20
Finished toddler sweater with hand spun and dyed alpaca yarn from Peru. Never worked with alpaca yarn before and found it worked up nicely, though a bit differently than wool.
Reposted by Karen Denmark
Reposted by Karen Denmark
It's really okay to watch a stupid movie, read a book, or shut down whatever social media app and do work that means something to you.
January 20, 2025 at 6:49 PM
It's really okay to watch a stupid movie, read a book, or shut down whatever social media app and do work that means something to you.
Reposted by Karen Denmark
Science Alert: 'Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals'
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals
Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS).
www.sciencealert.com
January 21, 2025 at 2:21 PM
Science Alert: 'Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals'
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)'
www.sciencealert.com/chronic-fati...
Reposted by Karen Denmark
Discriminating ME/CFS and other medical problems using data from the UK Biobank
Short summary from ME Research UK:
www.meresearch.org.uk/discriminati...
#MEcfs #CFS
@meresearchuk.bsky.social
Short summary from ME Research UK:
www.meresearch.org.uk/discriminati...
#MEcfs #CFS
@meresearchuk.bsky.social
Discriminating ME/CFS and other medical problems using data from the UK Biobank
www.meresearch.org.uk
January 20, 2025 at 6:56 PM
Discriminating ME/CFS and other medical problems using data from the UK Biobank
Short summary from ME Research UK:
www.meresearch.org.uk/discriminati...
#MEcfs #CFS
@meresearchuk.bsky.social
Short summary from ME Research UK:
www.meresearch.org.uk/discriminati...
#MEcfs #CFS
@meresearchuk.bsky.social
Reposted by Karen Denmark
The Coventry Evening Telegraph, England. 20th January 1989. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 20, 2025 at 12:15 AM
The Coventry Evening Telegraph, England. 20th January 1989. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
Reposted by Karen Denmark
1/2/25, Johns Hopkins: 'Taking a Shot at POTS'
'In the U.S., there are few physicians and clinicians who treat POTS..'
'Madeline Brown..I’m a doctor..there was something wrong with me. I went from being completely healthy to basically being bedridden..'
www.hopkinsmedicine.org/news/article...
'In the U.S., there are few physicians and clinicians who treat POTS..'
'Madeline Brown..I’m a doctor..there was something wrong with me. I went from being completely healthy to basically being bedridden..'
www.hopkinsmedicine.org/news/article...
Taking a Shot at POTS
In the U.S., there are few physicians and clinicians who treat postural tachycardia syndrome, also known as POTS. Johns Hopkins’ program is unique in including a rheumatologist on its comprehensive te...
www.hopkinsmedicine.org
January 19, 2025 at 6:04 PM
1/2/25, Johns Hopkins: 'Taking a Shot at POTS'
'In the U.S., there are few physicians and clinicians who treat POTS..'
'Madeline Brown..I’m a doctor..there was something wrong with me. I went from being completely healthy to basically being bedridden..'
www.hopkinsmedicine.org/news/article...
'In the U.S., there are few physicians and clinicians who treat POTS..'
'Madeline Brown..I’m a doctor..there was something wrong with me. I went from being completely healthy to basically being bedridden..'
www.hopkinsmedicine.org/news/article...
Reposted by Karen Denmark
I was nominated for the former Chronic Fatigue Syndrome Advisory Committee but Trump let it sunset before I could serve. Advising an administration that will be hostile to science and denies Covid will be a challenge. Sending wishes for strength to those working in advisory roles with HHS and NIH.
January 10, 2025 at 2:29 PM
I was nominated for the former Chronic Fatigue Syndrome Advisory Committee but Trump let it sunset before I could serve. Advising an administration that will be hostile to science and denies Covid will be a challenge. Sending wishes for strength to those working in advisory roles with HHS and NIH.
Reposted by Karen Denmark
67 Million people have #MECFS worldwide
#MECFS has double the disease burden of HIV with no treatments.
A diagnostic blood test would transform medicine for #MECFS patients.
Please #Donate to the largest #MECFS biomarker study
#SocialGood #Change
www.omf.ngo/me-cfs-new-b...
#MECFS has double the disease burden of HIV with no treatments.
A diagnostic blood test would transform medicine for #MECFS patients.
Please #Donate to the largest #MECFS biomarker study
#SocialGood #Change
www.omf.ngo/me-cfs-new-b...
Announcement!!! A New Large-Scale ME/CFS Biomarker Study (BioQuest)! - Open Medicine Foundation
Learn about BioQuest, OMF's new ME/CFS biomarker study to identify a biomarker for ME/CFS that can be evaluated through a blood test.
www.omf.ngo
January 9, 2025 at 3:17 PM
67 Million people have #MECFS worldwide
#MECFS has double the disease burden of HIV with no treatments.
A diagnostic blood test would transform medicine for #MECFS patients.
Please #Donate to the largest #MECFS biomarker study
#SocialGood #Change
www.omf.ngo/me-cfs-new-b...
#MECFS has double the disease burden of HIV with no treatments.
A diagnostic blood test would transform medicine for #MECFS patients.
Please #Donate to the largest #MECFS biomarker study
#SocialGood #Change
www.omf.ngo/me-cfs-new-b...
Reposted by Karen Denmark
Welcome to OMF Science Wednesdays! 🧬
Every Wednesday (based on United States time zones), tune in here to read a little bit about pieces of science, research, and technology that connect to #MECFS and #OMF research projects.
To kick things off, let’s talk about #mitochondria.
Every Wednesday (based on United States time zones), tune in here to read a little bit about pieces of science, research, and technology that connect to #MECFS and #OMF research projects.
To kick things off, let’s talk about #mitochondria.
January 1, 2025 at 4:48 PM
Welcome to OMF Science Wednesdays! 🧬
Every Wednesday (based on United States time zones), tune in here to read a little bit about pieces of science, research, and technology that connect to #MECFS and #OMF research projects.
To kick things off, let’s talk about #mitochondria.
Every Wednesday (based on United States time zones), tune in here to read a little bit about pieces of science, research, and technology that connect to #MECFS and #OMF research projects.
To kick things off, let’s talk about #mitochondria.
Reposted by Karen Denmark
Cochrane tells ME/CFS patients that they can go fuck themselves: virology.ws/2024/12/17/t...
Trial By Error: Cochrane Tells ME/CFS Patients to Go F--k Themselves | Virology Blog
By David Tuller, DrPH Cochrane has just given the finger to the international ME/CFS community. After jerking everyone around and promising for five years t ...
virology.ws
December 18, 2024 at 2:48 AM
Cochrane tells ME/CFS patients that they can go fuck themselves: virology.ws/2024/12/17/t...
Reposted by Karen Denmark
'The Power of Championing For Your Own Health'
Klimas: "For the longest time we've been saying to the NIH you know if you put set aside money - they will come & they said no - there's money there, just apply you'll get it - and it's just not been true.."
www.youtube.com/watch?v=pjGW...
Klimas: "For the longest time we've been saying to the NIH you know if you put set aside money - they will come & they said no - there's money there, just apply you'll get it - and it's just not been true.."
www.youtube.com/watch?v=pjGW...
The Power of Championing For Your Own Health with Cort Johnson and Dr. Nancy Klimas
YouTube video by Haylie Pomroy
www.youtube.com
December 17, 2024 at 6:52 PM
'The Power of Championing For Your Own Health'
Klimas: "For the longest time we've been saying to the NIH you know if you put set aside money - they will come & they said no - there's money there, just apply you'll get it - and it's just not been true.."
www.youtube.com/watch?v=pjGW...
Klimas: "For the longest time we've been saying to the NIH you know if you put set aside money - they will come & they said no - there's money there, just apply you'll get it - and it's just not been true.."
www.youtube.com/watch?v=pjGW...
Reposted by Karen Denmark
So cool! #crochet 🧶 for the win here 🤩
Six meter high Christmas tree, Trivento, Italy, made with 1,300 donated crochet squares #WomensArt
@womensart1
@womensart1
December 14, 2024 at 1:05 PM
So cool! #crochet 🧶 for the win here 🤩
Reposted by Karen Denmark
Sadly, it’s a good time to once again share this amazing infographic that we ran at @science.org more than 7 years ago
🧪 #IDsky
www.science.org/content/arti...
🧪 #IDsky
www.science.org/content/arti...
Here's the visual proof of why vaccines do more good than harm
See year by year how vaccines beat back nine dangerous infectious diseases
www.science.org
December 14, 2024 at 9:10 PM
Sadly, it’s a good time to once again share this amazing infographic that we ran at @science.org more than 7 years ago
🧪 #IDsky
www.science.org/content/arti...
🧪 #IDsky
www.science.org/content/arti...
What’s up? Puff stitches.
Rows and rows of puff stitches again and again. #Mezzo_Cardigan by Make & Do Crew
Rows and rows of puff stitches again and again. #Mezzo_Cardigan by Make & Do Crew
December 9, 2024 at 9:34 PM
What’s up? Puff stitches.
Rows and rows of puff stitches again and again. #Mezzo_Cardigan by Make & Do Crew
Rows and rows of puff stitches again and again. #Mezzo_Cardigan by Make & Do Crew
Reposted by Karen Denmark
Health Rising: 'An ME/CFS Sleep Study Goes Where No Sleep Study Has Gone Before'
'This is the first study to assess orexin-A – a wide-ranging neuropeptide that affects nighttime and daytime sleepiness – in the cerebral spinal fluid'
www.healthrising.org/blog/2024/12...
'This is the first study to assess orexin-A – a wide-ranging neuropeptide that affects nighttime and daytime sleepiness – in the cerebral spinal fluid'
www.healthrising.org/blog/2024/12...
An ME/CFS Sleep Study Goes Where No Sleep Study Has Gone Before - Health Rising
A chronic fatigue syndrome (ME/CFS) sleep study explores factors that have never been examined before.
www.healthrising.org
December 6, 2024 at 3:26 PM
Health Rising: 'An ME/CFS Sleep Study Goes Where No Sleep Study Has Gone Before'
'This is the first study to assess orexin-A – a wide-ranging neuropeptide that affects nighttime and daytime sleepiness – in the cerebral spinal fluid'
www.healthrising.org/blog/2024/12...
'This is the first study to assess orexin-A – a wide-ranging neuropeptide that affects nighttime and daytime sleepiness – in the cerebral spinal fluid'
www.healthrising.org/blog/2024/12...
Reposted by Karen Denmark
This doctor’s letter to United Heathcare for denying nausea medication to a child on chemotherapy.
December 5, 2024 at 6:22 PM
This doctor’s letter to United Heathcare for denying nausea medication to a child on chemotherapy.
Reposted by Karen Denmark
Apart from reducing Neuroinflammation, there are a number of other ways in which Minocycline might be acting to reduce the symptoms of M.E and Long-Covid in Dr. Miwa's pilot study.
I'm particularly interested in its protective effects on Mitochondria & inhibition of MMPs.
chatgpt.com/share/6751ec...
I'm particularly interested in its protective effects on Mitochondria & inhibition of MMPs.
chatgpt.com/share/6751ec...
ChatGPT - Minocycline in ME Long-Covid
Shared via ChatGPT
chatgpt.com
December 5, 2024 at 6:56 PM
Apart from reducing Neuroinflammation, there are a number of other ways in which Minocycline might be acting to reduce the symptoms of M.E and Long-Covid in Dr. Miwa's pilot study.
I'm particularly interested in its protective effects on Mitochondria & inhibition of MMPs.
chatgpt.com/share/6751ec...
I'm particularly interested in its protective effects on Mitochondria & inhibition of MMPs.
chatgpt.com/share/6751ec...
Reposted by Karen Denmark
Today @thesicktimes.bsky.social: I spoke with long-time disability lawyer Barbara Comerford, who specializes in disability benefits cases for people with ME and now Long COVID. She offered advice for readers who may be applying. thesicktimes.org/2024/12/03/w...
We talked to a veteran lawyer about applying for disability insurance with Long COVID and ME - The Sick Times
To learn more about the disability insurance system, Betsy Ladyzhets spoke to Barbara Comerford, a long-time disability lawyer based in New Jersey who specializes in these cases. Comerford has represe...
thesicktimes.org
December 3, 2024 at 10:14 PM
Today @thesicktimes.bsky.social: I spoke with long-time disability lawyer Barbara Comerford, who specializes in disability benefits cases for people with ME and now Long COVID. She offered advice for readers who may be applying. thesicktimes.org/2024/12/03/w...
Reposted by Karen Denmark
Have you seen HowToGetOn? It’s a tremendous resource created by a pwME
The Sleepy Girl Guide to Social Security Disability
A self-advocacy guide to Social Security Disability. This guide is designed for anyone who is homebound and for Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Lyme Disease, POTS, EDS, MCAS, M…
howtogeton.wordpress.com
December 4, 2024 at 1:56 AM
Have you seen HowToGetOn? It’s a tremendous resource created by a pwME
My daughter’s tree! I crocheted the Buffalo plaid Xmas tree skirt with free pattern from Whistle and Ivy Super easy. www.whistleandivy.com/crochet-plai...
December 3, 2024 at 4:50 PM
My daughter’s tree! I crocheted the Buffalo plaid Xmas tree skirt with free pattern from Whistle and Ivy Super easy. www.whistleandivy.com/crochet-plai...
Reposted by Karen Denmark
Friends don't let friends do graded exercise therapy 💁
3/
"Patient-Reported Outcomes of Treatments in ME/CFS and Long COVID"
#LongCovid #PASC #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS
"Patient-Reported Outcomes of Treatments in ME/CFS and Long COVID"
#LongCovid #PASC #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS
December 1, 2024 at 8:05 PM
Friends don't let friends do graded exercise therapy 💁
Reposted by Karen Denmark
New pre-print:
Patient-Reported Treatment Outcomes in ME/CFS and Long COVID
www.medrxiv.org/content/10.1...
#LongCovid #PASC #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS
1/
Patient-Reported Treatment Outcomes in ME/CFS and Long COVID
www.medrxiv.org/content/10.1...
#LongCovid #PASC #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS
1/
December 1, 2024 at 2:12 PM
New pre-print:
Patient-Reported Treatment Outcomes in ME/CFS and Long COVID
www.medrxiv.org/content/10.1...
#LongCovid #PASC #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS
1/
Patient-Reported Treatment Outcomes in ME/CFS and Long COVID
www.medrxiv.org/content/10.1...
#LongCovid #PASC #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS
1/
Reposted by Karen Denmark
I spoke earlier today with @karenlhargrave.bsky.social about the #ThereForME campaign to bring awareness to lack of care and treatment for patients with ME and Long Covid.
virology.ws/2024/11/21/t...
virology.ws/2024/11/21/t...
Trial By Error: Interview with Karen Hargrave, Co-Founder of #ThereForME | Virology Blog
By David Tuller, DrPH Karen Hargrave is co-founder of an advocacy campaign called #ThereForME, which was launched this past summer to draw public awareness ...
virology.ws
November 22, 2024 at 3:29 AM
I spoke earlier today with @karenlhargrave.bsky.social about the #ThereForME campaign to bring awareness to lack of care and treatment for patients with ME and Long Covid.
virology.ws/2024/11/21/t...
virology.ws/2024/11/21/t...
Reposted by Karen Denmark
Living w/ ME: Sadly, the longer it takes to get a diagnosis, the worse the condition can get, and before you know it, you’ve lost your job and your quality of life has taken a nosedive. The stigma surrounding ME is a massive barrier to getting the help we need. wellcomecollection.org/stories/livi...
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
wellcomecollection.org
November 28, 2024 at 5:29 PM
Living w/ ME: Sadly, the longer it takes to get a diagnosis, the worse the condition can get, and before you know it, you’ve lost your job and your quality of life has taken a nosedive. The stigma surrounding ME is a massive barrier to getting the help we need. wellcomecollection.org/stories/livi...
Reposted by Karen Denmark
The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample: link.springer.com/article/10.1... L. Jason et al. (2020) #MECFS #YPwME
The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample - Child & Youth Care Forum
Background Most pediatric prevalence studies of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been based upon data from tertiary care centers, a process known for systematic biases ...
link.springer.com
November 26, 2024 at 5:36 PM
The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample: link.springer.com/article/10.1... L. Jason et al. (2020) #MECFS #YPwME