KStenhouse🇨🇦
@klstenhouse.bsky.social
🍁🇨🇦🍁 #MS, MS rehab, neuroplasticity #EBV, #postviral, #PASC, personalized medicine@ genetics, Covid cautious, play detective, ex-research chemist and #biochemicalpathway 🤓. #TheMSGym. Opinions are mine. Also native gardening, knitting, more. she/her
I agree that this is a strategic move. I also suspect it’s not permanently shelved - it can remain a strategic tool.
June 30, 2025 at 2:36 PM
I agree that this is a strategic move. I also suspect it’s not permanently shelved - it can remain a strategic tool.
My theory is that he was leaving it as a bargaining chip. He wasn’t a fan either - it was from previous admin. Plus being shelved doesn’t suggest permanency.
June 30, 2025 at 2:35 PM
My theory is that he was leaving it as a bargaining chip. He wasn’t a fan either - it was from previous admin. Plus being shelved doesn’t suggest permanency.
We had more white crowned sparrows pass through than we’ve ever seen before. It’s was crazy!
May 12, 2025 at 6:40 PM
We had more white crowned sparrows pass through than we’ve ever seen before. It’s was crazy!
That’s very cool! I wonder how they were introduced …
May 12, 2025 at 6:37 PM
That’s very cool! I wonder how they were introduced …
Plus EBV is implicated in at least 6-7 other autoimmune diseases now, not to mention various head and neck cancers. Yes to a vaccine. Which I think could even help someone in my situation.
May 10, 2025 at 6:05 PM
Plus EBV is implicated in at least 6-7 other autoimmune diseases now, not to mention various head and neck cancers. Yes to a vaccine. Which I think could even help someone in my situation.
Doing better than I have since 2018. I’ve thrown everything at it (if scientifically factual!). Having been a research chemist, I have the background to deep dive. symptoms of MS are often caused by other things and too often, symptoms get swept under the MS rug when they are treatable/manageable.
May 10, 2025 at 5:24 PM
Doing better than I have since 2018. I’ve thrown everything at it (if scientifically factual!). Having been a research chemist, I have the background to deep dive. symptoms of MS are often caused by other things and too often, symptoms get swept under the MS rug when they are treatable/manageable.
Looks like the adolescent risk is higher than childhood infection, but the risk is significantly increased for both. Mono (from EBV) as a young adult shows an insignificant increase.
So childhood exposure still not the best plan. I ended up with MS despite that. 🤷♀️
So childhood exposure still not the best plan. I ended up with MS despite that. 🤷♀️
![Printed version for both photos:
Infectious mononucleosis in childhood (hazard ratio [HR], 1.98; 95% CI, 1.21-3.23) and adolescence (HR, 3.00; 95% CI, 2.48-3.63) was associated with an increased risk of an MS diagnosis that remained significant after controlling for shared familial factors in stratified Cox proportional hazards regression (HRs, 2.87 [95% CI, 1.44-5.74] and 3.19 [95% CI, 2.29-4.46], respectively). Infectious mononucleosis in early adulthood was also associated with risk of a subsequent MS diagnosis (HR, 1.89; 95% CI, 1.18-3.05), but this risk was attenuated and was not significant after controlling for shared familial factors (HR, 1.51; 95% CI, 0.82-2.76).
Conclusions and Relevance
These findings suggest that IM in childhood and particularly adolescence is a risk factor associated with a diagnosis of MS, independent of shared familial factors.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:z43z5wywtauev75dmzlaz5bc/bafkreihi6odnabydg3r5tjda62uyqad5vzmopemoggttzu6ewhdfs2nlgq@jpeg)
May 10, 2025 at 11:46 AM
Looks like the adolescent risk is higher than childhood infection, but the risk is significantly increased for both. Mono (from EBV) as a young adult shows an insignificant increase.
So childhood exposure still not the best plan. I ended up with MS despite that. 🤷♀️
So childhood exposure still not the best plan. I ended up with MS despite that. 🤷♀️
I had early exposure. But I also had a career that caused solvent bioaccumulation so perhaps the triggers add up. Every Covid infection triggered an EBV reactivation except for my last - given remdesivir. I just got better from Covid for the first time.
Without prophylactic VCV, MS progresses. 🙃
Without prophylactic VCV, MS progresses. 🙃
May 10, 2025 at 11:40 AM
I had early exposure. But I also had a career that caused solvent bioaccumulation so perhaps the triggers add up. Every Covid infection triggered an EBV reactivation except for my last - given remdesivir. I just got better from Covid for the first time.
Without prophylactic VCV, MS progresses. 🙃
Without prophylactic VCV, MS progresses. 🙃
Supposedly it’s having an EBV-caused infection in childhood or adolescence vs older. I never *had* mono but had older siblings so likely had it under age 6 when it was simply a random childhood fever illness. 2018 testing showed both historical and current ab.
pmc.ncbi.nlm.nih.gov/articles/PMC...
pmc.ncbi.nlm.nih.gov/articles/PMC...
Association of Infectious Mononucleosis in Childhood and Adolescence With Risk for a Subsequent Multiple Sclerosis Diagnosis Among Siblings
Is diagnosis of infectious mononucleosis (IM) in childhood or adolescence associated with subsequent development of multiple sclerosis (MS)? In this population–based cohort study of 2 492 980 individu...
pmc.ncbi.nlm.nih.gov
May 10, 2025 at 11:06 AM
Supposedly it’s having an EBV-caused infection in childhood or adolescence vs older. I never *had* mono but had older siblings so likely had it under age 6 when it was simply a random childhood fever illness. 2018 testing showed both historical and current ab.
pmc.ncbi.nlm.nih.gov/articles/PMC...
pmc.ncbi.nlm.nih.gov/articles/PMC...
My goodness it was so good! I’ve searched old recipe book archives, googled until my eyes bled. Because she called it Busy Day Dessert, couldn’t ever find it. That’s a jello thing lol.
Now, I would probably find it way to sweet now - but I’m gong to try to adapt it. Glad someone else remembers!
Now, I would probably find it way to sweet now - but I’m gong to try to adapt it. Glad someone else remembers!
May 10, 2025 at 10:10 AM
My goodness it was so good! I’ve searched old recipe book archives, googled until my eyes bled. Because she called it Busy Day Dessert, couldn’t ever find it. That’s a jello thing lol.
Now, I would probably find it way to sweet now - but I’m gong to try to adapt it. Glad someone else remembers!
Now, I would probably find it way to sweet now - but I’m gong to try to adapt it. Glad someone else remembers!
Look at the research for seasonal relapse.
The thought is that it involves circadian rhythms.
Back before DMTs I pretty consistently relapsed spring and August.
The thought is that it involves circadian rhythms.
Back before DMTs I pretty consistently relapsed spring and August.
May 7, 2025 at 6:45 PM
Look at the research for seasonal relapse.
The thought is that it involves circadian rhythms.
Back before DMTs I pretty consistently relapsed spring and August.
The thought is that it involves circadian rhythms.
Back before DMTs I pretty consistently relapsed spring and August.
I would love to hear the strategies. Anything coming from doctors or government would not affect the folks I know. 🤷♀️ are there websites?
May 5, 2025 at 10:05 AM
I would love to hear the strategies. Anything coming from doctors or government would not affect the folks I know. 🤷♀️ are there websites?
There is no effective way to fight the a anti-vax narrative. I know many folks. Public health training would do nothing. They should all watch the Pitt. Which wouldn’t really help all of them if the parents respond like the pair in Texas.
May 5, 2025 at 10:00 AM
There is no effective way to fight the a anti-vax narrative. I know many folks. Public health training would do nothing. They should all watch the Pitt. Which wouldn’t really help all of them if the parents respond like the pair in Texas.
Hair loss? Could happen with Mavenclad as well. I didn’t lose hair with either but have lost due to B vitamin deficiency and thyroid issues. So keep an eye on thyroid and a good methylated B complex is your friend. Make sure you join the Mavenclad group!
May 2, 2025 at 8:53 PM
Hair loss? Could happen with Mavenclad as well. I didn’t lose hair with either but have lost due to B vitamin deficiency and thyroid issues. So keep an eye on thyroid and a good methylated B complex is your friend. Make sure you join the Mavenclad group!
What @italoromeno.bsky.social said lol.
I can’t say outright it treats MS. It treats the thing I don’t know I had when progressing without lesions in 2018. I showed an immune system actively responding to EBV - zero EBV symptoms, all MS progression (supposedly). Valayclovir turned me around.
I can’t say outright it treats MS. It treats the thing I don’t know I had when progressing without lesions in 2018. I showed an immune system actively responding to EBV - zero EBV symptoms, all MS progression (supposedly). Valayclovir turned me around.
May 2, 2025 at 8:51 PM
What @italoromeno.bsky.social said lol.
I can’t say outright it treats MS. It treats the thing I don’t know I had when progressing without lesions in 2018. I showed an immune system actively responding to EBV - zero EBV symptoms, all MS progression (supposedly). Valayclovir turned me around.
I can’t say outright it treats MS. It treats the thing I don’t know I had when progressing without lesions in 2018. I showed an immune system actively responding to EBV - zero EBV symptoms, all MS progression (supposedly). Valayclovir turned me around.