Karen Hargrave
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
First of all our POV from @thereforme.bsky.social👇
People with ME have been waiting for the Final Delivery Plan for more than three years. This has been a very long time coming.
(2/)
People with ME have been waiting for the Final Delivery Plan for more than three years. This has been a very long time coming.
(2/)
July 22, 2025 at 11:37 AM
First of all our POV from @thereforme.bsky.social👇
People with ME have been waiting for the Final Delivery Plan for more than three years. This has been a very long time coming.
(2/)
People with ME have been waiting for the Final Delivery Plan for more than three years. This has been a very long time coming.
(2/)
It was such a pleasure to work with @nickbenton.bsky.social on this piece for our @thereforme.bsky.social blog - out today.
Nick writes so eloquently about what it was like to live with very severe ME, the lack of appropriate NHS care and his recent improvement.
www.thereforme.uk/p/stuck-at-t...
Nick writes so eloquently about what it was like to live with very severe ME, the lack of appropriate NHS care and his recent improvement.
www.thereforme.uk/p/stuck-at-t...
March 4, 2025 at 1:32 PM
It was such a pleasure to work with @nickbenton.bsky.social on this piece for our @thereforme.bsky.social blog - out today.
Nick writes so eloquently about what it was like to live with very severe ME, the lack of appropriate NHS care and his recent improvement.
www.thereforme.uk/p/stuck-at-t...
Nick writes so eloquently about what it was like to live with very severe ME, the lack of appropriate NHS care and his recent improvement.
www.thereforme.uk/p/stuck-at-t...
Dear @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social
I’m a carer to my husband James who has very severe ME.
He used to be a civil servant. Now he can’t get out of bed or have a conversation.
The Delivery Plan for ME is an opportunity to invest in our future.
#FundThePlan
I’m a carer to my husband James who has very severe ME.
He used to be a civil servant. Now he can’t get out of bed or have a conversation.
The Delivery Plan for ME is an opportunity to invest in our future.
#FundThePlan
February 21, 2025 at 9:24 AM
Dear @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social
I’m a carer to my husband James who has very severe ME.
He used to be a civil servant. Now he can’t get out of bed or have a conversation.
The Delivery Plan for ME is an opportunity to invest in our future.
#FundThePlan
I’m a carer to my husband James who has very severe ME.
He used to be a civil servant. Now he can’t get out of bed or have a conversation.
The Delivery Plan for ME is an opportunity to invest in our future.
#FundThePlan
Responding to another Q - Funding for #IACCs is available but no plans to establish a centre of excellence for care and research.
Feels like a missed opportunity given the ongoing Covid pandemic and question of preparedness for the next one 🤔
Feels like a missed opportunity given the ongoing Covid pandemic and question of preparedness for the next one 🤔
February 17, 2025 at 6:03 PM
Responding to another Q - Funding for #IACCs is available but no plans to establish a centre of excellence for care and research.
Feels like a missed opportunity given the ongoing Covid pandemic and question of preparedness for the next one 🤔
Feels like a missed opportunity given the ongoing Covid pandemic and question of preparedness for the next one 🤔
🔍 Some questions asked by @joplatt.bsky.social in Parliament today received a response from the new minister.
“There are currently no plans to allocate additional funding to the ME/CFS final delivery plan.”
Not good enough.
“There are currently no plans to allocate additional funding to the ME/CFS final delivery plan.”
Not good enough.
February 17, 2025 at 6:02 PM
🔍 Some questions asked by @joplatt.bsky.social in Parliament today received a response from the new minister.
“There are currently no plans to allocate additional funding to the ME/CFS final delivery plan.”
Not good enough.
“There are currently no plans to allocate additional funding to the ME/CFS final delivery plan.”
Not good enough.
Also confirmation that the ongoing NHS England ME and Long Covid stocktakes are one and the same.
January 31, 2025 at 9:34 AM
Also confirmation that the ongoing NHS England ME and Long Covid stocktakes are one and the same.
Response from @gwynnemp.bsky.social m references the upcoming delivery plan, Task and Finish Group process.
E-learnings also mentioned, with note that Medical Schools Council will promote them to medical schools.
+ conf that @gmcuk.bsky.social has included ME/CFS in new national exam content map
E-learnings also mentioned, with note that Medical Schools Council will promote them to medical schools.
+ conf that @gmcuk.bsky.social has included ME/CFS in new national exam content map
January 31, 2025 at 9:33 AM
Response from @gwynnemp.bsky.social m references the upcoming delivery plan, Task and Finish Group process.
E-learnings also mentioned, with note that Medical Schools Council will promote them to medical schools.
+ conf that @gmcuk.bsky.social has included ME/CFS in new national exam content map
E-learnings also mentioned, with note that Medical Schools Council will promote them to medical schools.
+ conf that @gmcuk.bsky.social has included ME/CFS in new national exam content map
🔍 Spotted in parliament - Q from @alisonebennett.bsky.social on Prevention of Future Deaths report and steps that has been taken to make sure #ME care and training is adequate.
January 31, 2025 at 9:31 AM
🔍 Spotted in parliament - Q from @alisonebennett.bsky.social on Prevention of Future Deaths report and steps that has been taken to make sure #ME care and training is adequate.
I’ve been enjoying some (much needed!) time off over Christmas to catch up on reading.
This from @physiosforme.bsky.social is next on my list! Thank you @claguenjc36.bsky.social 🙏
This from @physiosforme.bsky.social is next on my list! Thank you @claguenjc36.bsky.social 🙏
January 2, 2025 at 9:35 AM
I’ve been enjoying some (much needed!) time off over Christmas to catch up on reading.
This from @physiosforme.bsky.social is next on my list! Thank you @claguenjc36.bsky.social 🙏
This from @physiosforme.bsky.social is next on my list! Thank you @claguenjc36.bsky.social 🙏
Lighting candles for all of the PwME lying in dark rooms today - including my James 💙🕯️
Please know that you’re not alone x
Please know that you’re not alone x
December 25, 2024 at 7:01 PM
Lighting candles for all of the PwME lying in dark rooms today - including my James 💙🕯️
Please know that you’re not alone x
Please know that you’re not alone x
Just spotted this Q from Green co-leader Adrian Ramsay about Long Covid research 👏👏👏
🧐 Response mentions the recent research roundtable - more details than I remember seeing before, including links to other post-viral conditions and intervention studies for new/repurposed treatments.
🧐 Response mentions the recent research roundtable - more details than I remember seeing before, including links to other post-viral conditions and intervention studies for new/repurposed treatments.
November 29, 2024 at 2:00 PM
Just spotted this Q from Green co-leader Adrian Ramsay about Long Covid research 👏👏👏
🧐 Response mentions the recent research roundtable - more details than I remember seeing before, including links to other post-viral conditions and intervention studies for new/repurposed treatments.
🧐 Response mentions the recent research roundtable - more details than I remember seeing before, including links to other post-viral conditions and intervention studies for new/repurposed treatments.
Such an absolute delight to spend the weekend with these two @emmagl.bsky.social @oonaghcousins.bsky.social
#ThereForME planning day + Christmas jumpers 👌
#ThereForME planning day + Christmas jumpers 👌
November 24, 2024 at 11:49 AM
Such an absolute delight to spend the weekend with these two @emmagl.bsky.social @oonaghcousins.bsky.social
#ThereForME planning day + Christmas jumpers 👌
#ThereForME planning day + Christmas jumpers 👌
Incredible stuff from @jacobcolliermp.bsky.social!
Thanks for standing up so powerfully for your constituent and all those whose lives have been fundamentally changed by ME/Long Covid 🫡
#ThereForME
Thanks for standing up so powerfully for your constituent and all those whose lives have been fundamentally changed by ME/Long Covid 🫡
#ThereForME
November 19, 2024 at 1:16 PM
Incredible stuff from @jacobcolliermp.bsky.social!
Thanks for standing up so powerfully for your constituent and all those whose lives have been fundamentally changed by ME/Long Covid 🫡
#ThereForME
Thanks for standing up so powerfully for your constituent and all those whose lives have been fundamentally changed by ME/Long Covid 🫡
#ThereForME
We are sad to announce that #ThereForME has suspended our collaboration with the ME Association.
We feel that concerns from the community must be heard. The door remains open to continue our collaboration once action is taken and concerns addressed.
More here 👇
We feel that concerns from the community must be heard. The door remains open to continue our collaboration once action is taken and concerns addressed.
More here 👇
November 18, 2024 at 8:43 PM
We are sad to announce that #ThereForME has suspended our collaboration with the ME Association.
We feel that concerns from the community must be heard. The door remains open to continue our collaboration once action is taken and concerns addressed.
More here 👇
We feel that concerns from the community must be heard. The door remains open to continue our collaboration once action is taken and concerns addressed.
More here 👇