Julie is a REAL BIRD
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joolie.bsky.social
Julie is a REAL BIRD
@joolie.bsky.social
I'm @jmatwood on Twitter. Featuring: Immature/informative/TMI posts about: birds, plants, bees, disability, chronic illness, silliness, my own health, etc 🦜🌱🐝♿😷🪿🏥
#pwME
NO TERFS, NO UNSOLICITED ADVICE
User pic is from Effin Birds (used w/permission)
I'm certain I can't fully update in 300 characters, but I did want to boop everyone. I have been wishing, quite frequently, that I had the ability to get back into this. But I'm still working through so many things. I'm tired of the "healing isn't linear" mantra, but it's excessively true.

Flower:
July 28, 2025 at 9:48 PM
Maggie and Niko getting cuddles:
July 28, 2025 at 8:40 PM
I tried reading here, but part of my recovery is managing all the things that will make me feel even more hopeless and helpless.

As I subject myself to some of the most invasive, painful, and traumatizing treatments, I have to tell myself it will all be worth it when I'm done.
May 10, 2025 at 10:26 PM
Reposted by Julie is a REAL BIRD
🪶 Happy Big Migratory Bird Day!! Today, if you can, spend some time making spaces around you more bird-friendly, and reporting birds you see & hear so scientists can know how bird populations are changing and migrating.
Here’s how to do this!! 🧵 1/n
May 10, 2025 at 4:56 PM
Trying to break the ice I've accidentally covered my account in. I'm not sure I am ready for social media yet.

It's been a very rough seven months. I am told the total recovery time is more like 18 months.

(And I'll likely need another surgery, so I'll have to reset the timer again!)

Eh.

Bird:
May 10, 2025 at 6:06 PM
Reposted by Julie is a REAL BIRD
So, I really love acorn woodpeckers. 🪶
November 11, 2024 at 5:07 AM
@sophygurl.bsky.social OH HELLO! ❤️
November 10, 2024 at 9:17 PM
I'm home now and it's weird. I've had so many ups and downs. The trip home was really painful for me. I don't think I was ready to go.

I'm sure I'm not ready to be here, where there are so many things to do that I feel I must, but still can't (yet).

I gather I missed a lot while I was gone, huh?
October 28, 2024 at 4:17 AM
Welp my skull is now officially attached to my C2 vertebra so we'll see how that goes.
October 6, 2024 at 9:48 PM
Also, a bit of joy. This is from much earlier this year of course, in spring. While I was out of state having my procedure, my aunties came over and planted some flowers where I would see them from my window. These purple pansies looked so cheerful.
July 18, 2024 at 8:31 PM
Normally I post a nice photo anytime I post some kind of despairing sentiment but I was really not able to then. So here's something today: a bumble bee on a dandelion. Mask wearing benefit #53,247: you can get VERY close to a bumble bee without breathing on it (they don't like our breath).
July 18, 2024 at 7:59 PM
I'm not entirely sure how to be here, or be anywhere really. And I mean anywhere, anywhere. I always thought that a sliver of hope for my health would tether me but boy am I not okay. Which of course makes me feel like I'll sound ungrateful or a bummer so shhhh, me.

So. I dunno how to be. Still. 🤷‍♀️
July 17, 2024 at 6:48 AM
I. Love. My. Nextdoor. Neighbors.

Seriously, getting an email titled, "There is a duck in my neighbor's yard." made my evening.

She was genuinely worried she'd need to drive the duck back to the lake. I love these people so much.
April 26, 2024 at 3:19 AM
Box box box box box box box box box
April 10, 2024 at 1:43 AM
Reposted by Julie is a REAL BIRD
UPDATE: COVID wastewater levels are low in most US states.

If you've been holding off on healthcare or other activities, now is one of the best times of the year to go.

Note that even in low periods you are still at risk of COVID exposure, so it makes sense to take precautions.
April 8, 2024 at 12:10 AM
I'm ok with having seen one solar eclipse. Not totality of course but I got a few 'eh' photos and then started taking pictures of birds instead of the sun anyway. The photo of the bird is WAY more interesting.
April 8, 2024 at 12:55 AM
Reposted by Julie is a REAL BIRD
#FlowerReport Oakland, CA
April 7, 2024 at 10:48 PM
Reposted by Julie is a REAL BIRD
This is an initiative with real, measurable outcomes & could be a true inflection point for ME/CFS care.

Hope you'll join the fight with us, and thank you for all you do every day to further the work!

✨https://meaction.net/donate✨

#TeachMETreatME #MillionsMissing /fin
Donate - #MEAction Network
meaction.net
April 5, 2024 at 7:46 PM
Reposted by Julie is a REAL BIRD
But we can't press on without you!

If this work is important to you, I hope you'll consider making a donation and/or quote-tweeting this thread with why this work matters to you + a donation link.

We know you can't always donate, but sharing matters too! (5/6) #TeachMETreatME #MillionsMissing
April 5, 2024 at 7:45 PM
Reposted by Julie is a REAL BIRD
The #TeachMETreatME campaign is turning out to be an incredibly successful campaign for #MillionsMissing this year! Local and state groups are doing in-person #MedEd events; #MEAction is also engaging in longer-term partnerships to create products to transform #MECFS care. (1/6)
April 5, 2024 at 7:40 PM
I'M GOING TO GO LIVE UNDER A ROCK NOW AND JUST GIVE UP ON ALL THIS DIFFICULT BULLSHIT AAAAAaaaaa

How the fuck is anyone supposed to try to get better when all the doctors are quitting

HOW

every day I think about all the patients who have already given up and I just... salute them, I guess.
April 6, 2024 at 3:54 AM
My complex disease specialist is dropping me (and most of the rest of his patients) so I am feeling sad and betrayed today.

This makes things so much more difficult to face. I don't know what I'll do. I'm racing to try to find someone but he was The One, I thought. :(
April 2, 2024 at 3:14 AM
Reposted by Julie is a REAL BIRD
The Razz flower opened more today. 🌱

#Pinguicula #CarnivorousPlants
April 1, 2024 at 4:16 PM
Reposted by Julie is a REAL BIRD
Masks also prevent flu transmission.

We had a whole lineage of flu disappear when everyone was masking.
Breaking news: A person in Texas is being treated for bird flu, the second human case of an illness caused by a highly virulent virus that has rampaged through sickened dairy cows in five states in recent weeks, federal and state officials said Monday.
Bird flu detected in person who had contact with infected dairy cattle in Texas
This is the second case of a human sickened by this highly virulent strain of bird flu in the United States, raising questions about whether this pathogen is now more easily transmitted among mammals.
www.washingtonpost.com
April 1, 2024 at 6:44 PM
Reposted by Julie is a REAL BIRD
April 1, 2024 at 6:59 PM