FTD researchers like to use creepy cut outs of people’s faces with out even hair to gauge how people rate the emotion the person in the image is feeling. I always felt as a human you evaluate things in context like this sign says from the Exploratorium in SF.

Glad to be here at #morethanoirstories als advocacy meeting in DC. Powerful statements from ALS patients especially.

It’s a wild time at Montreal with the amazing crowd at #alsmndsymp sharing the building with comic-con! For those in attendance check out End the Legacy’s poster tonight at CW-07!

So many amazing women testifying on this fda panel for early trialing of gene therapies in adult presymptomatic populations!

Our save the date photo from 2015! Only a hazy memory of my Grandmother dying of ALS 25 years prior , and my then healthy mom’s constant worry about it which seemed abstract to me then.

Here’s just the kids one year in the mid 80s ! Everyone in this photo lost their grandmother to ALS in 1990 at age 67. 7 of the children have since lost their mothers to ALS and have a 50% chance of inheriting the #c9orf72 mutation. 3/5

Trying to make a difference at the #alsmndsymp in Basel!

We appreciated the warm welcome and collaborative environment of the #NINDS and #NIA #ADRD Research Roundtable. Our team of those impacted by genetic #ALS and #FTD (including #c9orf72 , #grn, and #mapt) shared bravely from our stories and raised important concerns.

#nealsmtg just some genetic carriers and Ally’s !