Kate -- Ignorance Was Bliss
@iwbpodcast.bsky.social
I'm a story-collector. My podcast is about how we become who we are. are you sure you really want to know?
https://linktr.ee/iwbpodcast
https://linktr.ee/iwbpodcast
IGNORANCE WAS BLISS
Ep498: Uncompromising
This is kind of a hybrid. The first 30 minutes are Willem and me trying to describe what my life is like right now; then the last hour is a conversation with Leela Sinha about why maybe everything doesn't suck.
iwbpodcast.com/2024/01/27/4...
Ep498: Uncompromising
This is kind of a hybrid. The first 30 minutes are Willem and me trying to describe what my life is like right now; then the last hour is a conversation with Leela Sinha about why maybe everything doesn't suck.
iwbpodcast.com/2024/01/27/4...
January 27, 2024 at 10:25 PM
IGNORANCE WAS BLISS
Ep498: Uncompromising
This is kind of a hybrid. The first 30 minutes are Willem and me trying to describe what my life is like right now; then the last hour is a conversation with Leela Sinha about why maybe everything doesn't suck.
iwbpodcast.com/2024/01/27/4...
Ep498: Uncompromising
This is kind of a hybrid. The first 30 minutes are Willem and me trying to describe what my life is like right now; then the last hour is a conversation with Leela Sinha about why maybe everything doesn't suck.
iwbpodcast.com/2024/01/27/4...
I was going to touch up my hair color for annual family photos.
Instead, another hospital selfie. This time what I thought was cough/fatigue from the COVID booster is actually a pulmonary embolism.
I was *kidding* when I talked about full coverage on the medical Bingo board.
Instead, another hospital selfie. This time what I thought was cough/fatigue from the COVID booster is actually a pulmonary embolism.
I was *kidding* when I talked about full coverage on the medical Bingo board.
December 5, 2023 at 4:05 PM
I was going to touch up my hair color for annual family photos.
Instead, another hospital selfie. This time what I thought was cough/fatigue from the COVID booster is actually a pulmonary embolism.
I was *kidding* when I talked about full coverage on the medical Bingo board.
Instead, another hospital selfie. This time what I thought was cough/fatigue from the COVID booster is actually a pulmonary embolism.
I was *kidding* when I talked about full coverage on the medical Bingo board.
I got my hair did.
Exhausted now but exhausted with good hair.
(It's ridiculous how much effort things take after a hospitalization. I'm trying hard to let myself feel comparably proud of the accomplishment.)
Exhausted now but exhausted with good hair.
(It's ridiculous how much effort things take after a hospitalization. I'm trying hard to let myself feel comparably proud of the accomplishment.)
November 17, 2023 at 7:00 PM
I got my hair did.
Exhausted now but exhausted with good hair.
(It's ridiculous how much effort things take after a hospitalization. I'm trying hard to let myself feel comparably proud of the accomplishment.)
Exhausted now but exhausted with good hair.
(It's ridiculous how much effort things take after a hospitalization. I'm trying hard to let myself feel comparably proud of the accomplishment.)
I'm escaping the hospital (I had a clot on my PICC line).
I'm deaf and I *hate* jump-scares. People are constantly just appearing. The only way to avoid the startle is to stay awake.
So, a nap at home soon. And my own TPN; hospital food has a bad rep, and even the IV nutrition is sub-par.
I'm deaf and I *hate* jump-scares. People are constantly just appearing. The only way to avoid the startle is to stay awake.
So, a nap at home soon. And my own TPN; hospital food has a bad rep, and even the IV nutrition is sub-par.
November 15, 2023 at 5:35 PM
I'm escaping the hospital (I had a clot on my PICC line).
I'm deaf and I *hate* jump-scares. People are constantly just appearing. The only way to avoid the startle is to stay awake.
So, a nap at home soon. And my own TPN; hospital food has a bad rep, and even the IV nutrition is sub-par.
I'm deaf and I *hate* jump-scares. People are constantly just appearing. The only way to avoid the startle is to stay awake.
So, a nap at home soon. And my own TPN; hospital food has a bad rep, and even the IV nutrition is sub-par.
Two hours in the hospital feels like eight.
This is a bad thing when you're waiting on a procedure or pain meds or that sort of thing, but it's fabulous when you sleep for a bit.
This is a bad thing when you're waiting on a procedure or pain meds or that sort of thing, but it's fabulous when you sleep for a bit.
November 14, 2023 at 12:46 PM
Two hours in the hospital feels like eight.
This is a bad thing when you're waiting on a procedure or pain meds or that sort of thing, but it's fabulous when you sleep for a bit.
This is a bad thing when you're waiting on a procedure or pain meds or that sort of thing, but it's fabulous when you sleep for a bit.
@catsofyore.bsky.social
Some things bear repeating.
This site is a better place because of you.
The other site is a cesspool and I hate that it hurt you.
Some things bear repeating.
This site is a better place because of you.
The other site is a cesspool and I hate that it hurt you.
November 14, 2023 at 9:12 AM
@catsofyore.bsky.social
Some things bear repeating.
This site is a better place because of you.
The other site is a cesspool and I hate that it hurt you.
Some things bear repeating.
This site is a better place because of you.
The other site is a cesspool and I hate that it hurt you.
I just spent a week in Beverly Hospital recovering from the infection I got from the other place (yeah, "I went to Salem Hospital and all I got was this stupid sepsis").
By "recovering" I mean "moping and swearing a lot."
Don't get sepsis, kids. It's not as fun or sexy as I make it look.
By "recovering" I mean "moping and swearing a lot."
Don't get sepsis, kids. It's not as fun or sexy as I make it look.
November 1, 2023 at 7:17 PM
I just spent a week in Beverly Hospital recovering from the infection I got from the other place (yeah, "I went to Salem Hospital and all I got was this stupid sepsis").
By "recovering" I mean "moping and swearing a lot."
Don't get sepsis, kids. It's not as fun or sexy as I make it look.
By "recovering" I mean "moping and swearing a lot."
Don't get sepsis, kids. It's not as fun or sexy as I make it look.
Twenty-three years today.
It's not the celebration we imagined -- he's taking a nap, I'm just home from the hospital -- but there's nobody I'd rather change plans with.
It's not the celebration we imagined -- he's taking a nap, I'm just home from the hospital -- but there's nobody I'd rather change plans with.
October 14, 2023 at 7:33 PM
Twenty-three years today.
It's not the celebration we imagined -- he's taking a nap, I'm just home from the hospital -- but there's nobody I'd rather change plans with.
It's not the celebration we imagined -- he's taking a nap, I'm just home from the hospital -- but there's nobody I'd rather change plans with.
Silly me, I'd almost thought I could stop constantly posting about #gastroparesis last month. Things really seemed to be improving.
Instead I got sent to the ER for fluids and IV meds, and they've decided to admit me. I have no idea what caused it (no surgery, no diabetes).
So frustrating.
Instead I got sent to the ER for fluids and IV meds, and they've decided to admit me. I have no idea what caused it (no surgery, no diabetes).
So frustrating.
October 10, 2023 at 11:26 PM
Silly me, I'd almost thought I could stop constantly posting about #gastroparesis last month. Things really seemed to be improving.
Instead I got sent to the ER for fluids and IV meds, and they've decided to admit me. I have no idea what caused it (no surgery, no diabetes).
So frustrating.
Instead I got sent to the ER for fluids and IV meds, and they've decided to admit me. I have no idea what caused it (no surgery, no diabetes).
So frustrating.
The great thing about living in a tourist town during a gastroparesis flare-up (Olympian-level vomiting, dehydration) is that the on-call nurse said to start TPN early rather than going to the ER for however long it would take.
Move to Salem, they said. It'll be fun, they said.
Move to Salem, they said. It'll be fun, they said.
October 10, 2023 at 12:16 AM
The great thing about living in a tourist town during a gastroparesis flare-up (Olympian-level vomiting, dehydration) is that the on-call nurse said to start TPN early rather than going to the ER for however long it would take.
Move to Salem, they said. It'll be fun, they said.
Move to Salem, they said. It'll be fun, they said.
I feel like I need to share the success of the fact that I FOUND AN EASILY ESCAPABLE PARKING SPOT FROM SALEM COMMON ON PARADE DAY.
Also hey tourists, we have to have our Halloween parade on the 5th. Thanks.
Still. Gloating about parking.
Also hey tourists, we have to have our Halloween parade on the 5th. Thanks.
Still. Gloating about parking.
October 5, 2023 at 9:34 PM
I feel like I need to share the success of the fact that I FOUND AN EASILY ESCAPABLE PARKING SPOT FROM SALEM COMMON ON PARADE DAY.
Also hey tourists, we have to have our Halloween parade on the 5th. Thanks.
Still. Gloating about parking.
Also hey tourists, we have to have our Halloween parade on the 5th. Thanks.
Still. Gloating about parking.
Because #gastroparesis isn't fun enough at baseline, the PICC line can malfunction such that I'm at heightened risk for cardiac problems.
The first nurse they sent to try and fix my PICC line asked me how to fix it because she'd never been trained, so now I'm waiting for Nurse #2.
Today is stupid.
The first nurse they sent to try and fix my PICC line asked me how to fix it because she'd never been trained, so now I'm waiting for Nurse #2.
Today is stupid.
October 4, 2023 at 5:18 PM
Because #gastroparesis isn't fun enough at baseline, the PICC line can malfunction such that I'm at heightened risk for cardiac problems.
The first nurse they sent to try and fix my PICC line asked me how to fix it because she'd never been trained, so now I'm waiting for Nurse #2.
Today is stupid.
The first nurse they sent to try and fix my PICC line asked me how to fix it because she'd never been trained, so now I'm waiting for Nurse #2.
Today is stupid.
Finally felt well enough to make a mail run! How cool is that??
@midnightpals.bsky.social @bitterkarella.bsky.social
@midnightpals.bsky.social @bitterkarella.bsky.social
October 3, 2023 at 7:12 PM
Finally felt well enough to make a mail run! How cool is that??
@midnightpals.bsky.social @bitterkarella.bsky.social
@midnightpals.bsky.social @bitterkarella.bsky.social
Dealing with a flare-up of #gastroparesis.
0 stars. Do Not Recommend.
They're increasing my TPN (IV nutrition) and other meds, which are sedating so either I'll feel less nauseous or I'll sleep it off. I've reached a point where this seems reasonable.
Nurse Cat is on duty.
0 stars. Do Not Recommend.
They're increasing my TPN (IV nutrition) and other meds, which are sedating so either I'll feel less nauseous or I'll sleep it off. I've reached a point where this seems reasonable.
Nurse Cat is on duty.
October 2, 2023 at 6:14 PM
Dealing with a flare-up of #gastroparesis.
0 stars. Do Not Recommend.
They're increasing my TPN (IV nutrition) and other meds, which are sedating so either I'll feel less nauseous or I'll sleep it off. I've reached a point where this seems reasonable.
Nurse Cat is on duty.
0 stars. Do Not Recommend.
They're increasing my TPN (IV nutrition) and other meds, which are sedating so either I'll feel less nauseous or I'll sleep it off. I've reached a point where this seems reasonable.
Nurse Cat is on duty.
...you don't say?
September 30, 2023 at 3:11 PM
...you don't say?
Measure my IQ without numbers.
September 29, 2023 at 9:37 PM
Measure my IQ without numbers.
Malnutrition include fatigue, chills, vomiting, lack of appetite (because WHY NOT) and brain fog... the last of which made it difficult for me to notice the other symptoms.
I'm a little better today. Not 100% but a start.
Get #gastroparesis, they said. It'll be fun, they said.
I'm a little better today. Not 100% but a start.
Get #gastroparesis, they said. It'll be fun, they said.
September 23, 2023 at 6:03 PM
Malnutrition include fatigue, chills, vomiting, lack of appetite (because WHY NOT) and brain fog... the last of which made it difficult for me to notice the other symptoms.
I'm a little better today. Not 100% but a start.
Get #gastroparesis, they said. It'll be fun, they said.
I'm a little better today. Not 100% but a start.
Get #gastroparesis, they said. It'll be fun, they said.
Since then, my labwork has declared civil war and I've lost about 5% of my body weight. I'm clinically malnourished again.
The good news is, I have a solid medical team who worked with me to get TPN reinstated. In just over 24 hours, the necessary supplies were delivered.
🧵
The good news is, I have a solid medical team who worked with me to get TPN reinstated. In just over 24 hours, the necessary supplies were delivered.
🧵
September 23, 2023 at 6:01 PM
Since then, my labwork has declared civil war and I've lost about 5% of my body weight. I'm clinically malnourished again.
The good news is, I have a solid medical team who worked with me to get TPN reinstated. In just over 24 hours, the necessary supplies were delivered.
🧵
The good news is, I have a solid medical team who worked with me to get TPN reinstated. In just over 24 hours, the necessary supplies were delivered.
🧵
Welp.
I tried to wean off TPN (IV nutrition), from 2L/day to 1L/day, to 1L 3 days/week & saline the other 4 days. About two weeks ago, I dropped to saline-only, thinking that as long as I could stay hydrated, I could manage adequate calories by mouth.
That's a funny joke.
🧵
I tried to wean off TPN (IV nutrition), from 2L/day to 1L/day, to 1L 3 days/week & saline the other 4 days. About two weeks ago, I dropped to saline-only, thinking that as long as I could stay hydrated, I could manage adequate calories by mouth.
That's a funny joke.
🧵
September 23, 2023 at 6:00 PM
Welp.
I tried to wean off TPN (IV nutrition), from 2L/day to 1L/day, to 1L 3 days/week & saline the other 4 days. About two weeks ago, I dropped to saline-only, thinking that as long as I could stay hydrated, I could manage adequate calories by mouth.
That's a funny joke.
🧵
I tried to wean off TPN (IV nutrition), from 2L/day to 1L/day, to 1L 3 days/week & saline the other 4 days. About two weeks ago, I dropped to saline-only, thinking that as long as I could stay hydrated, I could manage adequate calories by mouth.
That's a funny joke.
🧵
My Nurse Cat seems to have been incorrectly assembled.
September 9, 2023 at 9:29 PM
My Nurse Cat seems to have been incorrectly assembled.
Having one's nurse say, "Oops," in the middle of a PICC line dressing change is not ideal.
Having her tell me she only dislodged the line about 1cm, but reading that it was 7cm and she pushed 6cm back before remembering that's not protocol is even less ideal.
Back to the hospital.
#gastroparesis
Having her tell me she only dislodged the line about 1cm, but reading that it was 7cm and she pushed 6cm back before remembering that's not protocol is even less ideal.
Back to the hospital.
#gastroparesis
September 7, 2023 at 8:17 PM
Having one's nurse say, "Oops," in the middle of a PICC line dressing change is not ideal.
Having her tell me she only dislodged the line about 1cm, but reading that it was 7cm and she pushed 6cm back before remembering that's not protocol is even less ideal.
Back to the hospital.
#gastroparesis
Having her tell me she only dislodged the line about 1cm, but reading that it was 7cm and she pushed 6cm back before remembering that's not protocol is even less ideal.
Back to the hospital.
#gastroparesis
Lunchtime
September 5, 2023 at 9:36 PM
Lunchtime
Willem treated me to a concert, and so I'm out in public with PICC line in full view. Which is hard. I forget I have it at home but I catch the side-eyes from strangers. Whatever, screw 'em. I'm really excited for this show (Sum 41 / Simple Plan / The Offspring).
#gastroparesis
#gastroparesis
September 3, 2023 at 11:03 PM
Willem treated me to a concert, and so I'm out in public with PICC line in full view. Which is hard. I forget I have it at home but I catch the side-eyes from strangers. Whatever, screw 'em. I'm really excited for this show (Sum 41 / Simple Plan / The Offspring).
#gastroparesis
#gastroparesis