Hyperemesis Ireland
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hyperemesisie.bsky.social
Hyperemesis Ireland
@hyperemesisie.bsky.social
200 followers 300 following 36 posts
All-volunteer registered charity offering support, information, and training in 🇮🇪 for Hyperemesis Gravidarum (HG; severe pregnancy sickness and its complications). Hyperemesis.ie
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hyperemesisie.bsky.social
We still hear these too often - from family, friends, even healthcare providers!

#hyperemesisgravidarum
#pregnancysickness
#womenshealth
Propaganda we're not falling for: HG is just bad morning sickness HG will get better by 12w Ginger treats HG Medications to treat HG are too risky Cariban is the only medication for HG If you tried harder you'd feel better HG never affects the baby HG only affects you in pregnancy
May 27, 2025 at 5:29 AM
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3 - for everyone: sign up to our e-news!

www.hyperemesis.ie/get-involved...
The more people we can reach, the better the impact on HG patients all over Ireland
May 15, 2025 at 7:58 AM
hyperemesisie.bsky.social
2 - if you're a patient or know someone who is, share this link.

www.hyperemesis.ie/get-help/
Share a link to our website with friends and family, or on your social media. If you'd like to share your HG story with us, please DM or email support@hyperemesis.ie
May 15, 2025 at 7:56 AM
hyperemesisie.bsky.social
Today 15th May is International HG Awareness Day. This year's theme is HG Progress.

Here are 3 simple actions you can take today:

www.hyperemesis.ie/healthcare-p...

#hyperemesisgravidarum
1 - if you're a healthcare professional: Share the latest on HG treatment guidelines with a colleague! You'll find the latest RCOG guidelines (2024) as well as the current HSE ones (2018, but being updated) on our website.
May 15, 2025 at 7:54 AM
hyperemesisie.bsky.social
The amazing Sinéad speaking about how she survived life-threatening hyperemesis and how it has affected her, her babies, and her partner long-term.
Sinéad has long dark hair and wears a maroon print dress. She holds a microphone. Sinéad is one of four women seated on a platform.
March 11, 2025 at 12:57 PM
hyperemesisie.bsky.social
Passed some time checking out the posters... interested to see "persistent vomiting" in 17% of women in the Growing Up In Ireland study...!
Closeup of Methods section listing complications of pregnancy as reported by the mother 9m pp. "Persistent vomiting" is listed as the top complication reported at 17.4%
March 11, 2025 at 9:35 AM
hyperemesisie.bsky.social
At @rcsi.bsky.social @rcsipophealth.bsky.social today! Supporting the amazing Sinéad who will be speaking on her experience of life-threatening #hyperemesisgravidarum on the patient panel. Please do say hi 👋
Photo of lanyard for the event Advancing Women's Health Research in Ireland
March 11, 2025 at 9:06 AM
hyperemesisie.bsky.social
Our #WorldBookDay2025 recommendations 👇 Which have you read or others you would add? For kids, patients, carers, or healthcare providers.
Mama has hyperemesis gravidarum (but only for a while) by Ashli McCall illustrated by Anna-Maria Crum How to be an HG Hero: Helping Children Understand Hyperemesis Gravidarum by Caitlin Dean illustrations by Paul Colledge Hyperemesis Gravidarum- The Definitive Guide by Caitlin Dean and Amanda Shortman High Risk: a doctor's notes on pregnancy, birth, and the unexpected by Chavi Eve Karkowsky MD
March 7, 2025 at 8:34 AM
hyperemesisie.bsky.social
Hearing that some HG patients are having difficulties getting Cariban. This is the latest on shortages from @irishpharmacyunion.bsky.social 👇
Screencap from IPU website showing Cariban resupply date of 7th Feb 2025
January 24, 2025 at 10:12 AM
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More about what you can do to reduce your risk of this complication (and a note for any healthcare providers!)
What can I do to reduce my risk? Take your HG medications and do your best to stay hydrated. Tell your doctor if you are not able to leave bed due to your symptoms. Try to get out of bed and move a few times a day, even for a few minutes. Ask your medical team if they have done a VTE Risk Assessment, and if so, if they have taken HG into account. Your risk should be re-assessed throughout your pregnancy, and also after delivery. You may need to do extra things to reduce your risk, such as wearing compression stockings or taking anti-clotting medications. Note for healthcare providers The MBRRACE 2024 report covers maternal deaths in the UK and Ireland 2020-2022. Thrombosis was the leading cause of death (43 women). As noted on p26: "Assessors noted that there appeared to be a perception amongst clinicians that early pregnancy is safe and late pregnancy is the period of risk with regards to VTE. This notion should be challenged, especially in women at high risk of VTE....six [of 16 women who died of thrombosis in the first trimester] had severe hyperemesis." Further resources https://www.hyperemesis.ie/get-help/reducing-risks-/ Thrombosis.ie for more details on risk factors, awareness, treatment, and recovery. Hyperemesis Ireland logo
January 21, 2025 at 9:52 AM
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HG is tough enough and we don't want to scare anyone. But it's important to know that HG increases your risks of other conditions in pregnancy.. first up, blood clots (thrombosis).

#hyperemesis #thrombosis #pregnancy
HG risks: blood clots This is general information. As always, talk to your own healthcare providers about your needs and circumstances. Hyperemesis Ireland logo What is it? A blood clot can occur anywhere in the body, but are most common in the veins in the legs or pelvis (Deep Vein Thrombosis or DVT). If a clot forms in - or travels to - essential parts of the body like the lungs, heart, or brain, they can be life-threatening. In pregnancy and the six weeks afterwards, the risk of blood clots is increased for everyone: approx 1 in 1000 women. It is preventable and treatable, but in the UK & Ireland it is the most common cause of death in pregnancy and postnatally. Why would HG increase my risk? People who get blood clots usually have multiple risk factors. Pregnancy is one. Two others are dehydration and immobilisation (in bed for 3+ days). If you have HG and it is not well-treated, you can easily become dehydrated, and some of us are bedbound for days, weeks, or months. Other risk factors can include: - smoking, being over 35, a high BMI - family/personal history of blood clots or clotting disorders - recent surgery including c-section - recent Covid19 infection - varicose veins What are the symptoms? Get emergency medical help if you notice any of the following: Swelling or pain in your leg, arm, or pelvis (usually on one side) Warmth or redness in your leg or arm Shortness of breath or rapid breathing Chest pain (particularly when breathing deeply) Coughing or coughing up blood. Severe headache or blurred vision Thrombosis Ireland logo
January 21, 2025 at 9:49 AM
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- 50% HALF of women with HG considered termination.
- 5% have had at least one termination because of HG
“I was still struggling severely with HG at 17w and told the [hospital] that I was thinking about going to England for a termination. They sprang into action and put me under [another doctor] who advocated for me and said he would sign off to have a termination done here [in the hospital in Ireland]. They then gave me a high daily steroid dose as a last resort. Luckily this worked for me, but if it hadn’t been for [that doctor] standing up for me, and me finally feeling like I was being listened to, I would have gone to England.” - HG patient, Dublin.
January 8, 2025 at 10:00 AM
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This is why we exist. This is the difference that early and proactive treatment can make to HG patients and their babies. Thanks to Trish in our support group for sharing with us.
#hyperemesisgravidarum
"My first HG pregnancy was horrific. I couldn't access Cariban at first, and then I couldn't afford it. My daughter stopped growing and was born tiny, and I was left with several health problems afterwards. It took years for me to feel like I was ready to get pregnant again. This time I was given medication by my GP to take preemptively and then Cariban at 6 weeks. Even at its worst, it has been easier than the first time. And this baby is measuring right where she should be. My second pregnancy (although still very difficult) has been a night and day difference to my first, and has been very healing for me.
January 6, 2025 at 8:48 PM