I have kept up with the person for years. They live in a skilled nursing facility due to rare disease and ME. The situation has become unbearable. If you can give or share please do. Link in thread. @rarediseasepatient.bsky.social

#pwME #MyalgicEncephalomyelitis #MECFS #RareDisease #spoonie

I am very worried about @rarediseasepatient.bsky.social. This is someone I have known for years. They are reaching out for help. They are in an extremely unsafe situation in a nursing home in California. In need of legal help/ patient advocate. And funds especially if they are kicked out.

As we come to the end of #GivingTuesday, I have $50 left to match for the fundraiser for @meactnet.bsky.social! #MEAction also has a matching offer right now so your gift will be tripled. meaction.funraise.org/fundraiser/h...

Thank you. Rest well!

#pwME #MyalgicEncephalomyelitis #MECFS #LongCovid