HemoGirlsRock
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hemogirlsrock.bsky.social
HemoGirlsRock
@hemogirlsrock.bsky.social
Hemophilia Educator, Advocate, Research Supporter (Program Coordinator), Patient. All opinions are my own.🌈🏳️‍🌈
Adult specialist aren’t any better…. By the time I see my new dermatologist I will have waited 18 months for my initial appointment in February 2026. I have had an urgent referral into a G.I. specialist after endoscopy last August… I’m still waiting for an appointment and I have good insurance. 🤦🏻‍♀️
July 7, 2025 at 6:43 AM
I think it likely was….. almost every dentist in the county dropped it at the same time.
June 20, 2025 at 5:09 PM
And feet too!
June 20, 2025 at 5:08 PM
Historically, simultaneously, most dentists dropped Delta Dental. So many did there was little that could be done. They claimed the reimbursements were no longer enough to sustain livable wages for their practices. Many will courtesy bill your insurance and you will be paying out of network prices.
June 20, 2025 at 12:11 AM
They are offering some care, but won't perform a surgery until age 19 now.
June 17, 2025 at 12:33 AM
It’s my understanding that Seattle children’s is also cutting some care because of similar reasons.
June 16, 2025 at 4:25 AM
Does it have to do with Medicaid reimbursements?
June 16, 2025 at 4:20 AM
Of 3.2 million people predicted to have VWD under 2% are actuallyseen at hemophilia treatment centers. Therefore, this 16 year statistic, while a great stride in learning more, is a highly biased sample and likely grossly underestimated.
2/
May 10, 2025 at 5:05 PM
😔
February 16, 2025 at 7:29 PM
🤦🏻‍♀️
February 15, 2025 at 4:15 AM
I’m terrified this countdown will mean nothing… he told many people that they only had to vote this time and would never have to vote again. I’m not convinced he’s leaving.
February 1, 2025 at 9:04 AM
So scary
January 11, 2025 at 6:49 PM
I was also looking for her and can’t find anyone by that name!
January 9, 2025 at 3:59 PM