HemoGirlsRock
@hemogirlsrock.bsky.social
Hemophilia Educator, Advocate, Research Supporter (Program Coordinator), Patient. All opinions are my own.🌈🏳️🌈
Please stop using the 16 year CDC statistic when talking about how long it takes for women to be diagnosed with VWD!!! This statistic is taken out of context and misquoted. The CDC study interviewed 75 women with VWD who managed to get a diagnosis and be treated at a hemophilia treatment center.
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May 10, 2025 at 5:04 PM
Please stop using the 16 year CDC statistic when talking about how long it takes for women to be diagnosed with VWD!!! This statistic is taken out of context and misquoted. The CDC study interviewed 75 women with VWD who managed to get a diagnosis and be treated at a hemophilia treatment center.
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What a gift to join Hemophilia Federation of America and National Bleeding Disorders Foundation today on World Hemophilia Day to advocate in DC for women with bleeding disorders.
April 18, 2025 at 4:04 AM
What a gift to join Hemophilia Federation of America and National Bleeding Disorders Foundation today on World Hemophilia Day to advocate in DC for women with bleeding disorders.
Reposted by HemoGirlsRock
Reposted by HemoGirlsRock
This. Especially Senate Republicans.
The greatest political scandal today is not what Trump is doing. It is the fact that congressional Republicans have given up their role in the constitutional system as a check on the executive branch. If we are in a constitutional crisis, it is as much on Mike Johnson and John Thune as anyone else.
February 16, 2025 at 3:56 PM
This. Especially Senate Republicans.
How many of you know someone who’s lost a job or has a job in jeopardy due to all these new executive orders? I’m guessing most people on here.😔
February 16, 2025 at 7:03 PM
How many of you know someone who’s lost a job or has a job in jeopardy due to all these new executive orders? I’m guessing most people on here.😔
Reposted by HemoGirlsRock
It's the second time "The Star-Spangled Banner" drew that reaction in two games the United States has played at the NHL-run international tournament.
Fans in Montreal loudly boo U.S. anthem prior to Americans' 4 Nations game vs. Canada
It's the second time "The Star-Spangled Banner" drew that reaction in two games the United States has played at the NHL-run international tournament.
www.npr.org
February 16, 2025 at 3:05 PM
It's the second time "The Star-Spangled Banner" drew that reaction in two games the United States has played at the NHL-run international tournament.
Reposted by HemoGirlsRock
The irony of the richest man in the world almost single-handedly destroying an agency designed to help the world’s poor, so that the U.S. federal budget has more room for another giant tax cut for the richest man in the world and his pals, should not be lost on anyone. [Cartoon by Mike Luckovich]
February 15, 2025 at 11:01 PM
The irony of the richest man in the world almost single-handedly destroying an agency designed to help the world’s poor, so that the U.S. federal budget has more room for another giant tax cut for the richest man in the world and his pals, should not be lost on anyone. [Cartoon by Mike Luckovich]
Reposted by HemoGirlsRock
I've seen them around my local haunts. It's not an insignificant number.
February 15, 2025 at 11:27 AM
I've seen them around my local haunts. It's not an insignificant number.
Reposted by HemoGirlsRock
It’s the hill they are willing to let their child die on…
February 16, 2025 at 12:04 AM
It’s the hill they are willing to let their child die on…
Reposted by HemoGirlsRock
In 2023, the University of Michigan received $683 million in NIH funding w indirect costs of 56% (~$382 million)
With the new cap of 15%, which also applies to current funding, that’s $280 million less per year than budgeted.
And that’s just one institution.
This will BREAK academia.
With the new cap of 15%, which also applies to current funding, that’s $280 million less per year than budgeted.
And that’s just one institution.
This will BREAK academia.
February 8, 2025 at 3:06 PM
In 2023, the University of Michigan received $683 million in NIH funding w indirect costs of 56% (~$382 million)
With the new cap of 15%, which also applies to current funding, that’s $280 million less per year than budgeted.
And that’s just one institution.
This will BREAK academia.
With the new cap of 15%, which also applies to current funding, that’s $280 million less per year than budgeted.
And that’s just one institution.
This will BREAK academia.
Over 1 million women are likely affected by #hemophilia worldwide. Read to learn more.
Missing persons: Women and girls with hemophilia
Columnist G Shellye Horowitz has long suspected that numerous women with hemophilia remain undiagnosed. Finally, research confirms it.
hemophilianewstoday.com
January 17, 2025 at 2:22 AM
Over 1 million women are likely affected by #hemophilia worldwide. Read to learn more.
Reposted by HemoGirlsRock
Canada TURNS THE TABLES On Trump With A BRUTAL OFFER. Elizabeth May (green party) offers Blue states "Become part of Canada" with Benefits.
#Canada
#cdnpoli
#onpoli
#Amerpoli
#Canadasky
Click here Below
www.youtube.com/channel/UCyV...
#Canada
#cdnpoli
#onpoli
#Amerpoli
#Canadasky
Click here Below
www.youtube.com/channel/UCyV...
January 6, 2025 at 1:13 AM
Canada TURNS THE TABLES On Trump With A BRUTAL OFFER. Elizabeth May (green party) offers Blue states "Become part of Canada" with Benefits.
#Canada
#cdnpoli
#onpoli
#Amerpoli
#Canadasky
Click here Below
www.youtube.com/channel/UCyV...
#Canada
#cdnpoli
#onpoli
#Amerpoli
#Canadasky
Click here Below
www.youtube.com/channel/UCyV...
Reposted by HemoGirlsRock
As a Canadian, I prefer this version. Blue states, come join us and leave the MAGA fever dream behind. We offer universal healthcare, sane gun control laws and a commitment to peace, order, and good gov’t, ideals that we don’t always live up to but at least no one is storming parliament.
January 8, 2025 at 2:14 AM
As a Canadian, I prefer this version. Blue states, come join us and leave the MAGA fever dream behind. We offer universal healthcare, sane gun control laws and a commitment to peace, order, and good gov’t, ideals that we don’t always live up to but at least no one is storming parliament.
🤦🏻♀️🤦🏻♀️🤦🏻♀️
January 4, 2025 at 6:47 PM
🤦🏻♀️🤦🏻♀️🤦🏻♀️
Reposted by HemoGirlsRock
ANOTHER MODEST PROPOSAL
December 30, 2024 at 6:32 AM
ANOTHER MODEST PROPOSAL
This does say a lot.
December 22, 2024 at 8:34 PM
This does say a lot.
Hematologists are so good at protecting women w/ hemophilia during surgery and the days immediately following hysterectomy. Quite a few, however, forget about bleeding risk weeks after as stitches dissolve, sending patients to the ER pouring 🩸
Let’s talk about potential bleeding risk after hysterectomy
Sharing a personal anecdote, columnist G Shellye Horowitz discusses a potential bleeding risk that develops weeks after a hysterectomy.
hemophilianewstoday.com
December 20, 2024 at 1:47 AM
Hematologists are so good at protecting women w/ hemophilia during surgery and the days immediately following hysterectomy. Quite a few, however, forget about bleeding risk weeks after as stitches dissolve, sending patients to the ER pouring 🩸
Reposted by HemoGirlsRock
Thank God Vanity Fair is keeping it REAL!
December 15, 2024 at 9:48 PM
Thank God Vanity Fair is keeping it REAL!
Reposted by HemoGirlsRock
Reposted by HemoGirlsRock
I’ve cared for infants who stopped breathing w/ pertussis.
School aged kids who died of flu or COVID.
And many of my patients can’t be vaccinated because they’re on chemotherapy or are immune compromised.
Vaccinations save lives of those who get them & those who cannot.
It’s that simple.
School aged kids who died of flu or COVID.
And many of my patients can’t be vaccinated because they’re on chemotherapy or are immune compromised.
Vaccinations save lives of those who get them & those who cannot.
It’s that simple.
December 14, 2024 at 2:50 AM
I’ve cared for infants who stopped breathing w/ pertussis.
School aged kids who died of flu or COVID.
And many of my patients can’t be vaccinated because they’re on chemotherapy or are immune compromised.
Vaccinations save lives of those who get them & those who cannot.
It’s that simple.
School aged kids who died of flu or COVID.
And many of my patients can’t be vaccinated because they’re on chemotherapy or are immune compromised.
Vaccinations save lives of those who get them & those who cannot.
It’s that simple.
Reposted by HemoGirlsRock
FUN FACT: Measles, polio, diphtheria, mumps, rubella and tetanus are six once-common illnesses that vaccines have contained for decades, saving many millions of lives.
December 13, 2024 at 6:59 PM
FUN FACT: Measles, polio, diphtheria, mumps, rubella and tetanus are six once-common illnesses that vaccines have contained for decades, saving many millions of lives.
Reposted by HemoGirlsRock
Doctors seethe over insurance cos. “out of control” tactics. Revenues at United Healthcare exceeded $370 BILLION last yr.
“They have so much power, they are out of control. They believe they are untouchable.”
www.vanityfair.com/news/story/a...
#MedSky #BlueSky 🧪 #IDSky #medtwitter #EMSky
“They have so much power, they are out of control. They believe they are untouchable.”
www.vanityfair.com/news/story/a...
#MedSky #BlueSky 🧪 #IDSky #medtwitter #EMSky
Doctors Seethe Over Insurance Companies’ “Out of Control” Tactics
Nothing can justify the killing of UnitedHealthcare CEO Brian Thompson, but providers agree that America’s insurance system is off the rails. “I am kind of surprised this hasn’t happened earlier,” say...
www.vanityfair.com
December 13, 2024 at 7:32 PM
Doctors seethe over insurance cos. “out of control” tactics. Revenues at United Healthcare exceeded $370 BILLION last yr.
“They have so much power, they are out of control. They believe they are untouchable.”
www.vanityfair.com/news/story/a...
#MedSky #BlueSky 🧪 #IDSky #medtwitter #EMSky
“They have so much power, they are out of control. They believe they are untouchable.”
www.vanityfair.com/news/story/a...
#MedSky #BlueSky 🧪 #IDSky #medtwitter #EMSky
