Heidi
@heidihedges.bsky.social
Podcast host @Thisdownsideuplifepod
Rett Syndrome Advocate
Marketing & Communications Chair
Rocky Mountain Rett Association
Colorado State Rep
International Rett Syndrome Foundation
Rett Syndrome Caregiver Speaker
Acadia Pharmaceuticals-Daybue
Rett Syndrome Advocate
Marketing & Communications Chair
Rocky Mountain Rett Association
Colorado State Rep
International Rett Syndrome Foundation
Rett Syndrome Caregiver Speaker
Acadia Pharmaceuticals-Daybue
Hi! New here! Is there a way to start a “group” or “category?” I have a child with Rett Syndrome and want to start a group here for other Rett families. We are currently trapped in FB for groups but a lot of us want to leave and start something new in a safe place. Thanks!
January 21, 2025 at 11:31 PM
Hi! New here! Is there a way to start a “group” or “category?” I have a child with Rett Syndrome and want to start a group here for other Rett families. We are currently trapped in FB for groups but a lot of us want to leave and start something new in a safe place. Thanks!