Gretch
@gvnett.bsky.social
ME/CFS Endurer. Still missing and still trying to send gentle day wishes to all the never well warriors.
It’s ok if you’re not ok. It’s all such a lot. Even though I am
alone in a dark room, scared and in pain I know there are millions of people who share and understand my grief, loss and yearning.
#mecfs #LongCovid #ChronicIllness #pwME
alone in a dark room, scared and in pain I know there are millions of people who share and understand my grief, loss and yearning.
#mecfs #LongCovid #ChronicIllness #pwME
October 22, 2025 at 12:32 AM
It’s ok if you’re not ok. It’s all such a lot. Even though I am
alone in a dark room, scared and in pain I know there are millions of people who share and understand my grief, loss and yearning.
#mecfs #LongCovid #ChronicIllness #pwME
alone in a dark room, scared and in pain I know there are millions of people who share and understand my grief, loss and yearning.
#mecfs #LongCovid #ChronicIllness #pwME
October 20, 2025 at 1:17 AM
A rose bud without its bloom and yet still so beautiful. #FindingBeautyWhileBedbound #mecfs #pwME #BedBoundSoulFood
October 2, 2025 at 4:47 AM
A rose bud without its bloom and yet still so beautiful. #FindingBeautyWhileBedbound #mecfs #pwME #BedBoundSoulFood
September 15, 2025 at 1:02 AM
Non chronics, we ask that you don’t confuse what helps a person cope with what cures a person of an illness. #mecfs #pwME #MEAwareness
September 7, 2025 at 10:30 PM
Non chronics, we ask that you don’t confuse what helps a person cope with what cures a person of an illness. #mecfs #pwME #MEAwareness
It is not your fault pacing is so hard. It is not your fault that the smallest of things have a huge cost. It is not your fault the survival is often incompatible with pacing. It is not your fault that we don’t live in a world with access to adequate support to manage our illness. #mecfs #pwME
August 9, 2025 at 12:00 AM
Still, after all this time my productivity prioritising brain tells me the opposite but my body knows rest is a right not a reward #mecfs #PwME #LongCovid #spoonie
August 3, 2025 at 10:33 PM
Still, after all this time my productivity prioritising brain tells me the opposite but my body knows rest is a right not a reward #mecfs #PwME #LongCovid #spoonie
Tried it.
Still cureless.
Wellness tips are no match for a debilitating, chronic, complex, multi system illness. #mecfs #pwME #MEAwareness
Still cureless.
Wellness tips are no match for a debilitating, chronic, complex, multi system illness. #mecfs #pwME #MEAwareness
July 22, 2025 at 10:55 PM
Tried it.
Still cureless.
Wellness tips are no match for a debilitating, chronic, complex, multi system illness. #mecfs #pwME #MEAwareness
Still cureless.
Wellness tips are no match for a debilitating, chronic, complex, multi system illness. #mecfs #pwME #MEAwareness
It’s not just you, stop, rest, pace is so much harder than it sounds. Without access to a ton of support, crash, rest, go is often the only option for basic survival. But #StopRestPace is still incredibly worthwhile when possible. #LongCovid #MECFS #pwME
July 20, 2025 at 12:28 AM
It’s not just you, stop, rest, pace is so much harder than it sounds. Without access to a ton of support, crash, rest, go is often the only option for basic survival. But #StopRestPace is still incredibly worthwhile when possible. #LongCovid #MECFS #pwME
Daily kindness reminder: no matter what unhelpful societal message your brain is repeating, your body knows self compassion is a productive pursuit. #pwME #mecfs #stoprestpace #LongCovid #ChronicIllness
July 13, 2025 at 9:51 PM
Daily kindness reminder: no matter what unhelpful societal message your brain is repeating, your body knows self compassion is a productive pursuit. #pwME #mecfs #stoprestpace #LongCovid #ChronicIllness
July 9, 2025 at 10:48 PM
Stop rest pace is so much harder than it sounds and so rarely possible without access to adequate support. But worth it to try when you can. I say that as someone who paid a very high price for only stopping and resting when I crashed and had no choice #SevereME #mecfs #LongCovid
June 3, 2025 at 12:09 AM
Stop rest pace is so much harder than it sounds and so rarely possible without access to adequate support. But worth it to try when you can. I say that as someone who paid a very high price for only stopping and resting when I crashed and had no choice #SevereME #mecfs #LongCovid
Another #MEAwarenessMonth done and another long recovery for the #MillionsMissing who gave the tiny bit they had to fight for a better future. #StongerTogether #mecfs #PwME
June 2, 2025 at 12:30 AM
Another #MEAwarenessMonth done and another long recovery for the #MillionsMissing who gave the tiny bit they had to fight for a better future. #StongerTogether #mecfs #PwME
There are millions of us with broken batteries and broken lives. See us, believe us, help us. #MEAwarenessmonth #PwME #MillionsMissing #MECFS
May 24, 2025 at 12:32 AM
There are millions of us with broken batteries and broken lives. See us, believe us, help us. #MEAwarenessmonth #PwME #MillionsMissing #MECFS
Dear health professionals, it’s really very simple. #mecfs is a biological illness not a psychological illness. #meawarenessmonth #millionsmissing #pwme
May 20, 2025 at 1:11 AM
Dear health professionals, it’s really very simple. #mecfs is a biological illness not a psychological illness. #meawarenessmonth #millionsmissing #pwme
We are experts at enduring suffering. We should not have to do it without any help, understanding or support from heath care professionals #millionsmissing #mecfs #disabilitysos
May 12, 2025 at 11:18 PM
We are experts at enduring suffering. We should not have to do it without any help, understanding or support from heath care professionals #millionsmissing #mecfs #disabilitysos
May 12, 2025 at 12:49 AM
May 11, 2025 at 4:29 AM
In a kinder more understanding world it wouldn’t be so hard. Self care would be supported and reinforced for people with chronic illness. Instead of self care being seen as a reward for productivity. #pwME #millionsmissing #MEawarenessmonth
May 9, 2025 at 10:55 PM
In a kinder more understanding world it wouldn’t be so hard. Self care would be supported and reinforced for people with chronic illness. Instead of self care being seen as a reward for productivity. #pwME #millionsmissing #MEawarenessmonth
May 8, 2025 at 8:29 PM
We’re treated as if our mind is too broken to think positively.
We’re treated as if our coping mechanisms are too broken to reduce our anxiety and stress. We’re treated as if our choices are too broken.
When the research is clear – WE HAVE BROKEN BODIES.
#MEAwareness #MillionsMissing #PwME #MECFS
We’re treated as if our coping mechanisms are too broken to reduce our anxiety and stress. We’re treated as if our choices are too broken.
When the research is clear – WE HAVE BROKEN BODIES.
#MEAwareness #MillionsMissing #PwME #MECFS
May 7, 2025 at 11:17 PM
We’re treated as if our mind is too broken to think positively.
We’re treated as if our coping mechanisms are too broken to reduce our anxiety and stress. We’re treated as if our choices are too broken.
When the research is clear – WE HAVE BROKEN BODIES.
#MEAwareness #MillionsMissing #PwME #MECFS
We’re treated as if our coping mechanisms are too broken to reduce our anxiety and stress. We’re treated as if our choices are too broken.
When the research is clear – WE HAVE BROKEN BODIES.
#MEAwareness #MillionsMissing #PwME #MECFS
