GotNoSpoons
gotnospoons.bsky.social
GotNoSpoons
@gotnospoons.bsky.social
Mom, wife, web developer, artist. Chronically ill with #LongCovid / #POTS / #MECFS . I make custom armbands for the Visible app which is a lifesaver for me.
Reposted by GotNoSpoons
THIS IS HUGE! Researchers at Stanford University have developed a dual-antibody treatment that remains effective against ALL SARS-CoV-2 variants by targeting a less-mutable part of the virus. This breakthrough could lead to longer-lasting therapies that OUTPACE viral evolution. 🧪🧵⬇️
March 9, 2025 at 4:00 PM
Reposted by GotNoSpoons
I strongly agree with Leah here 👇
February 2, 2025 at 5:55 PM
Reposted by GotNoSpoons
Really chuffed to be a co-author on this paper (pre-print) via Visible & Imperial College 💙

Odds of a crash 45% lower during late luteal phase compared to peak during menstrual phase

www.medrxiv.org/content/10.1...

#MECFS #LongCovid
Digital health app data reveals an effect of ovarian hormones on long COVID and myalgic encephalomyelitis symptoms
Background Long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) disproportionately affect females, suggesting modulation by sex hormones. We sought to investigate whether symptom...
www.medrxiv.org
February 2, 2025 at 11:23 PM
Reposted by GotNoSpoons
Them: But there’s no biomarker for #LongCovid, no wonder many people don’t believe it
Me: You get migraines right?
Them: Yes
Me: What blood test did you have to diagnose them?
Them: I didn’t, I get strange flashes so I know I’m getting 1
Me: So they were diagnosed on symptoms alone?
Them: Yes
Me: 😏
November 18, 2024 at 2:46 PM
Reposted by GotNoSpoons
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November 17, 2024 at 3:37 PM
Reposted by GotNoSpoons
Absolutely this 👏 #mecfs #MyalgicEncephalomyelitis
When you’re chronically ill - your baseline is everything. You will protect it at all costs.

Non disabled people can’t understand how much independence and autonomy means to us. Whatever small amount we have left - is priceless.

That’s why we don’t take necessary risks. We know what’s at stake.
November 16, 2024 at 12:43 AM
Reposted by GotNoSpoons
#MECFS #PEM #longcovid #chronicillness

This is the dance we do every.single.day.

By itself is exhausting.
November 17, 2024 at 12:19 AM