Empowering Patients,LLC • Alison
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empoweringpts9.bsky.social
Empowering Patients,LLC • Alison
@empoweringpts9.bsky.social
👋🏼advocate (1° #IBD #Crohns #UlcerativeColitis #ostomy) • ALWAYS learning #healthcare system while fighting own • Bridging communication between clinicians🤝patients • Sports~Buckeyes🌰, Reds, Bengals • #GIsky #Gastrosky #IBDsky
linktr.ee/empoweringpts9
There’s truly some people I couldn’t have done any drop of this without or continue to move to next step. I’m currently in a rehab facility & haven’t been in my bed in months.
Only some are on SoMe, but you surely learn who’s really there for you. @schwartzbergmd.bsky.social
@GIdietitian.bsky.social
June 28, 2025 at 5:14 AM
Extremely overdue & v quick update for those who don’t know due to extended SoMe break.

𝒮𝓊𝒸𝒸ℯ𝓈𝓈𝒻𝓊𝓁! #IBD/#Stoma refashion Jan 29, 2025. ARFID is tough.

Unrelated, March, thoracic #osteomyelitis seeded at T10/T11 - ID severely undertreated. Led to extensive surg of 𝐅𝐔𝐋𝐋 spinal fusion T5-L5
June 28, 2025 at 5:14 AM
7wks s/p #IBD #ostomy new stoma

A better update pending, but this one can be huge and for those that know me and/or hamantaschen.

Showing note because it’s part of my authenticity during recovery & this crew has helped hold me to get me this far.

Brought to you by the letters DSFR
#Purim
March 20, 2025 at 11:57 PM
Including missed updates

1 Month s/p #IBD op (authentic):
✔️Leaks
✔️Tears
✔️Hope
✔️advance foods
02/22: Started day with good friend sending pic IYKYK & another sending a heartfelt note - began hype to head to Ohio

Thankful friend flew LGA 🔁 CVG - flight was rough physically/emotionally, but I made it
March 3, 2025 at 2:49 AM
Blurry eyes.

It’s surreal I’m finally on this side of surgery recovery.

Major educational needs exposed & when I’ve recovered more, you better believe I’ll work to rectify so others don’t lose >10yrs to #IBD gaslighting… plans being discussed.

Really thankful & grateful to CRS TEAM
#Ostomy #PSC
February 7, 2025 at 2:07 AM
#IBD/#Ostomy Surgery countdown to relief:
🖐️ 5 days. 🙌🏼 Coming soon. Long and storied history of this TPN and RN debacle, but being an informed patient can come in handy.
January 24, 2025 at 5:12 AM
I hear you after I just turned mine off. If you have an iPhone, there’s some on it directly & you can put it into your swipe down menu. The big downfall is it eats battery, so make sure it’s plugged in.
Markup tool is bad anymore, but here’s quick steps.
#3 has to have the toggle flipped to use
December 7, 2024 at 4:39 PM
Touching back. I realized I do have a way to see which people put us in. It takes a minute to update, but here’s what pulls for you. Also in other words, unless IAF has something, this is no help and you’re a musician. Somehow you’re still sneaking under the IBD radar clearsky.app
November 27, 2024 at 8:31 PM