Juna
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elljuna.bsky.social
Juna
@elljuna.bsky.social
Tree-hugging socialist and devoted cat mom living the chronic life. #pwME ♿ #AuDHD #Neurodivergent 😷 up to save lives 💕 She/Her
Reposted by Juna
CTA — Call Your Congressperson and Urge Them To Vote Against the House Budget Resolution Being Voted on Next Week

It is 11PM on Thursday night and an email from a high ranking Hill healthcare staffer has just hit my inbox: Medicaid faces an "existential" vote in the House, probably Tuesday...
CTA: Medicaid "existential" vote next week | Matthew Cortland
Get more from Matthew Cortland on Patreon
www.patreon.com
February 21, 2025 at 3:59 AM
Reposted by Juna
February 10, 2025 at 10:16 AM
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PBS News wants to hear from those who have been affected by COVID. The more information they have on what COVID has done and is still doing to people, the better.

pbsnewshour.formstack.com/forms/covid
February 10, 2025 at 9:48 AM
Reposted by Juna
If we want to stop Elon Musk from destroying our entire society we have to make sure there is never another billionaire. They can't just be taxed out of existence, we tried that in the 60's and 70's and once they retook political power they dismantled everything

Moreover, ICE must be destroyed
February 9, 2025 at 6:22 PM
Reposted by Juna
MAGA/MAHA want massive cuts to Medicaid, resulting in catastrophic coverage loss.

Monday, 2/10 @ 4PM ET, we're doing a webinar on how to advocate for Medicaid with the legislative staff of a Member of Congress or U.S. Senator

(This is not geared towards providers/clinicians)

Register ⤵️
Welcome! You are invited to join a meeting: Congressional Medicaid Advocacy Webinar . After registering, you will receive a confirmation email about joining the meeting.
MAGA and MAHA are planning massive cuts to Medicaid that would result in catastrophic coverage losses. So on Monday, February 10th, at 4PM ET, we'll be doing a webinar on how to advocate for Medicaid ...
us02web.zoom.us
February 7, 2025 at 7:17 PM
Reposted by Juna
#MEcfs #LongCovid #NEISvoid hi hive mind, request please: can you point me to any papers or materials for clinicians that evidence or summarise heart and circulatory problems in ME? So, yes, POTS/dysautonomia but also wider, like the findings on preload failure. I have an incredibly patronising...
November 22, 2024 at 10:45 AM
Reposted by Juna
🤔 Community Question FEEDS
There's a tricky issue with the ME hashtag.

If we add #ME to the feed it's too broad & picks up LOTS of random things.
#me/cfs picks up Japanese anime.
#mecfs is ok but we have to include the cfs

We just thought people should be aware of this when #...1/2
November 20, 2024 at 8:27 PM
Reposted by Juna
I like this blocklist which blocks anyone with “MAGA” in their bio bsky.app/profile/did:...
November 18, 2024 at 12:19 AM
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hey! do you make cool art & sell it? post your art & shop in this thread! crafts, jewelry, prints, whatever! holiday gifting szn is a great time to support indie creators #artsky 🎨🖌️🖼️
November 17, 2024 at 9:05 PM
Reposted by Juna
November 10 2024 #MutualAidThread! Post your needs here.

Rules:
1. Use Alt Text on images
2. Boost as many posts as you can in this thread
3. Only post once in this thread per day.

#HelpSky #MABoost #FundSky #MutualAid #HelpFolksLive2024
November 10, 2024 at 6:36 AM
Reposted by Juna
This thread is now done for the night! If you visited two hours ago, there are new posts; just keep clicking through to the end.

Goodnight, Newskies and members of the good old #NEISvoid! Sleep well. 😴
✨Welcome, Newskies, to Bsky! ✨

This is going to be a thread of introductory fino. The first thing we're going to do is reply to this post with a "pushpin" icon in the emoji stuff below.

Do that now, and I'll explain why in my next post! (1/?)
October 17, 2024 at 4:18 AM
Reposted by Juna
For the new twitter friends, here are two of my favorite things about bluesky:

1) if you block someone, they vanish. If they QTd you, it just says "blocked". Nuclear block stops trolls. They hate it.

2) If someone QTs you & you don't like it, you can detach your post from theirs. BRILLIANT TBH?
October 17, 2024 at 2:53 AM
Reposted by Juna
Hi, quick lowdown:

-the For You feed is called Discover here.
-add the Mentions and Quotes feeds to see those.
-You can filter posts by tag, so tag your artwork to make it easier to find.
-use the Sky Follower Bridge plugin to find your twitter moots
-we have video, DMs, pinned posts now
October 17, 2024 at 12:30 AM
Reposted by Juna
Ah, yes, welcome, natural disaster victims, to the victim blaming disabled people get when privileged people don’t want to think about scary things so they make them your fault. The last four years have been full of it.

If you just make flawless choices, bad things can’t happen to you!
September 28, 2024 at 11:02 PM
Reposted by Juna
OnStar has given customers in the areas affected by Hurricane Helene free access to their onboard WiFi capabilities.

If you have a Chevrolet, Buick, GMC, or Cadillac with Onstar system inside, you now have wifi access, even if you don't have an onStar subscription:
www.onstar.com/services/cri...
September 29, 2024 at 4:56 AM
Reposted by Juna
PSA FOR PEOPLE AFFECTED BY THE HURRICANE

Most insurance providers have a clause for spoiled food. Especially in times of disaster, it is a no questions asked payment of $200-$500 to recover food lost to power outages or other disaster spoilage, but you have to call up and request it!
September 28, 2024 at 11:47 PM
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I couldn't help it...
September 23, 2024 at 10:07 PM
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My dearest friend @spitkitten.bsky.social organized this for me. I’m turning 60 on the 21st! & moving the 29th inshallah. My number was picked in a lottery for a subsidized, accessible, apt near Albany. I’m not exaggerating - this will save my life. I’d so appreciate Reskeets & any donations 💕💸
Help Saoirse move, organized by Caren Sumption
Hi, all, I'm Caren, and this is my second fundraiser for my dear friend, Saoirse. The first one wa… Caren Sumption needs your support for Help Saoirse move
www.gofundme.com
February 1, 2024 at 11:29 AM
Reposted by Juna
I’ve spent a lot of time this past year thinking about how some people react to injustice from a place of “that should never have happened to ME” while other people react with “that should never have happened to ANYONE” and how much the future depends on moving as many people as possible from 1 to 2
October 19, 2023 at 2:17 PM
Reposted by Juna
Interesting report on Charité Fatigue Center's 2nd International Meeting on ME/CFS & implications of #LongCovid for diagnosis & treatment.

Of particular interest: focus on (a) biological underpinnings, including endothelial & immune dysfunction, (b) modern treatments & (c) clinical trials

#MECFS
Understanding, diagnosing, and treating Myalgic encephalomyelitis/chronic fatigue syndrome – State...
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a devastating disease affecting millions of people worldwide. Due to the 2019 pandemic …
www.sciencedirect.com
October 16, 2023 at 2:51 PM
Reposted by Juna
I wrote about Elizabeth Warren co-sponsoring KOSA even AFTER Marsha Blackburn said KOSA was necessary to "protect minor children from the transgender in our culture." There's simply no excuse for Warren not to understand what KOSA will do. www.techdirt.com/2023/10/03/s...
Senator Elizabeth Warren Supports Bill To Silence LGBTQ+ Voices
At this point, any Senator signing on to support KOSA cannot deny that the bill has been written explicitly to suppress LGBTQ+ voices. The Heritage Foundation said so directly earlier this year. An…
www.techdirt.com
October 3, 2023 at 11:04 PM
Reposted by Juna
It goes bell riots, eugenics wars, ww3, THEN warp drives, first contact, and the federation.

Personally, I'd prefer to skip thise first three, but some of y'all keep not believing the fuckin stove is hot, so.
October 4, 2023 at 3:06 PM
Reposted by Juna
Feeds that may interest the ♿️ community include:

#Disability Feed
bsky.app/profile/did:...

#ChronicIllness
bsky.app/profile/did:...

#MECFS
bsky.app/profile/did:...

LongCovid
bsky.app/profile/did:...

Covid Cautious
bsky.app/profile/did:...

Disability Justice
bsky.app/profile/did:...
October 2, 2023 at 4:52 AM