Duncan Edmonstone
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edmonstone.net
Duncan Edmonstone
@edmonstone.net
UK-based lung cancer patient advocate. Used to work in IT. Progressive.

(Don’t try and visit edmonstone.net there’s nothing there right now)
Not just any doors... "serious" doors (whatever they are)
November 2, 2025 at 10:58 AM
Thank you - I thought that was the most likely answer. I’ve seen plenty of other study reports where another drug was used to boost immune response and increase efficacy of an ICI. No reason to think it would work for other treatment modalities. Still very interesting research!
October 23, 2025 at 6:03 AM
Fascinating stuff - I couldn't work out from the free-to-view element of the study whether this worked just for patients who were receiving treatment with ICIs, or *all* cancer patients. Either way, this is going to seriously upset a particular type of person (probably more on X than Bluesky!)
October 22, 2025 at 6:27 PM
That's how I started, and now I have the advocacy bug!
October 17, 2025 at 3:04 PM
This! Every patient is an advocate, even if just for their own care, and all our experience is of value to someone, somewhere in the whole treatment environment. It starts with telling your own story and then listening to others, and *every* patient can do that.
October 17, 2025 at 3:03 PM
You missed the key part in that exchange... Humpty Dumpty's response to Alice's question. Surprisingly deep lessons buried in a children's book.
October 9, 2025 at 7:23 PM
I know everyone's an expert after the fact, and I'm sure you have your reasons, but for anyone in Cheshire, you should really start any train journey from Crewe. It's better connected with more options than anywhere else in the Northwest, including the major cities.

Otherwise, I 100% empathise.
October 7, 2025 at 6:39 PM
This is in addition to the already strong evidence of the link between lung cancer in never smokers and PM2.5 emissions:

www.crick.ac.uk/news/2022-09...

And yes, I am a non-smoker with lung cancer.
Scientists reveal how air pollution can cause lung cancer in people who have never smoked
Cancer Research UK-funded scientists at the Francis Crick Institute and UCL have revealed how air pollution can cause lung cancer in people who have never smoked.
www.crick.ac.uk
September 8, 2025 at 7:28 AM
There’s a glut of posts on LinkedIn about moving to Dubai… I’m always tempted to post the response “cool story bro, who are you going to vote for when you’re there?”
August 14, 2025 at 9:58 AM
But maybe they’re not focused on the brain for your scans
August 13, 2025 at 6:33 PM
Oh… for PET scans I was told that after the radioactive glucose is injected you have to sit quietly and not engage your brain… this is so the brain doesn’t pull the glucose to it to feed it… this prevents hot spots covering potential malignant sites or showing up as false positives…
August 13, 2025 at 6:33 PM
CTs are too short… MRIs are too noisy. PET though… that wait after they put the rad-juice in you… yep I usually fall asleep then.
August 13, 2025 at 2:47 PM
I did see your first book in Waterstones Manchester once… so they did have a few copies (more than 2 I think). I already had my copy from the initial unbound run… did you at least get paid for that first run?
August 9, 2025 at 3:07 PM
The rest of the essay is bitterness that $$ isn’t being spent where he thought it should be. And I don’t recognise the “hope is for dopes” message at all. Hope is all that sustains an awful lot of patients. Maybe my view is coloured by not living in a country where healthcare is for-profit.
August 7, 2025 at 6:33 AM
Interesting read. As a stage 4 patient I recognise/understand the sentiment, especially about there being “no money in finding a cure”. I presume this was why you posted this (with govt funding which went to academic research being cut, we are now more than ever in the hands of private enterprise)
August 7, 2025 at 6:29 AM
So basically a bunch of losers who spent their teenage years playing video games and masturbating to porn are mad at some people who didn’t do that?
August 2, 2025 at 6:14 AM