+Anna Williams
eagleswings2004.bsky.social
+Anna Williams
@eagleswings2004.bsky.social
Headache Advocate- I experience chronic cluster headache, trigeminal neuralgia, migraine, and SUNCT.
Join Clusterbusters and the AHDA in raising awareness for cluster headache! Our 10th Annual VIRTUAL #CureforCluster 5k will kick off Saturday, June 7th, 2025.

For more info and to register:
runsignup.com/cureforclust...
Cure for Cluster Virtual 5k Run/Walk
The Cure for Cluster Virtual 5k Run/Walk is on Saturday June 7, 2025.
runsignup.com
May 3, 2025 at 6:14 PM
@clusterbusters.bsky.social will have it's 20th annual cluster headache patient conference Sept 11-14 near Dallas, TX. cbdallas2025.planningpod.com?fbclid=IwY2x...
20th Annual U.S. Patient Conference!
Clusterbusters is excited to return to in-person conferences this September 11-15, 2025. Don't miss it!
cbdallas2025.planningpod.com
April 11, 2025 at 11:44 AM
Reposted by +Anna Williams
TODAY! Join Clustersbusters board and staff in a free chat for #ClusterHeadacheAwarenessDay at 12pm ET.

After signing up, you'll receive an email with a link for the Zoom. Register here: us02web.zoom.us/meeting/regi... #ClusterHeadache
March 23, 2025 at 1:35 PM
Reposted by +Anna Williams
Please help share #ClusterHeadache facts in honor of #ClusterHeadacheAwarenessDay. Let's educate others about this debilitating neurological disease. Together, we are stronger!

Join Clusterbusters this Sunday, 3/23 at 12pm ET for an informal chat. Register for free: us02web.zoom.us/meeting/regi...
March 21, 2025 at 10:52 PM
I just called my reps with @5calls.org, you should too: 5calls.org
5 Calls
Spend 5 minutes. Make 5 calls. Make your voice heard.
5calls.org
February 25, 2025 at 6:07 PM
Chronic Pain Workshop for Social Security Administration put on by National Academies- proud to be on the planning committee and will be attending to moderate a panel. www.nationalacademies.org/event/43975_... #ChronicPain @nationalacademies.org
www.nationalacademies.org
February 23, 2025 at 8:10 PM
Those with Facial Pain- the Facial Pain Association will have an in-person conference in Minneapolis June 7-8th. I'll be a speaker on a panel or two ;) www.facepain.org/2025-fpa-in-... #TrigeminalNeuralgia #FacialPain #FacePainTogether #FacialPainAssociation
2025 FPA In-Person Conference
FPA is the world's largest organization providing education, support and advocacy for all those who suffer from neuropathic facial pain.
www.facepain.org
February 23, 2025 at 8:08 PM
Conference season is upon me- registering for my conferences! Clusterbusters will have their 20th conference in the DFW area - join us here: cbdallas2025.planningpod.com #ClusterHeadache #ClusterBuddies #Clusterbusters
20th Annual U.S. Patient Conference!
Clusterbusters is excited to return to in-person conferences this September 11-15, 2025. Don't miss it!
cbdallas2025.planningpod.com
February 23, 2025 at 8:07 PM
Reposted by +Anna Williams
Scientists at the Centers for Disease Control and Prevention were ordered to withdraw any pending publications, at any scientific journal, that mention terms such as “transgender,” “immigrant,” “L.G.B.T.” or “pregnant people.”
February 2, 2025 at 1:05 AM
Ways to combat the stress...homemade gluten free sour dough bread, preparing my vanilla extract to sit for 9-12 months and my vanilla sugar should be ready in 2 weeks!
January 25, 2025 at 4:39 PM
Reposted by +Anna Williams
Interesting. In the UK TN is classed as a disability thanks to the work of some of the members of TNA UK
www.tna.org.uk
Trigeminal Neuralgia Association UK: TNA
We are the National Charity for Trigeminal Neuralgia (TNA UK). We provide information, support and encouragement to those who suffer this excruciatingly painful condition
www.tna.org.uk
November 23, 2024 at 5:25 PM
I'd like to share some news that came through last week. I've been selected to serve on a committee to plan a workshop by National Sciences for the Social Security Administration, "Exploring the Treatment and Management of Chronic Pain and Implications for Disability Determinations: A Workshop".
November 18, 2024 at 8:10 PM
Reposted by +Anna Williams
I'm really wanting to not be on Twitter anymore. And would love to rebuild the #migraine and #MigraineChat community here. It was thriving for so long until Melon Husk effed everything up over there.

So please start by passing the word about the feed to all your friends with migraine.
November 10, 2024 at 3:21 PM